Page 2 - HFA Dateline 2021 Q4 Winter

EXECUTIVE CORNER

HI FRIENDS,

I’m not quite sure how it’s the beginning of 2022 “Some holiday highlights for me
already, but here we are. I hope you had a wonderful included wreath-making with
and safe holiday season, getting to have both restful
and joyful moments. Some holiday highlights for me friends, playing many rounds
included wreath-making with friends, playing many of the game ‘Codenames’ with
rounds of the game “Codenames” with my family and my family and reading a few
reading a few wonderful books. I’m hopeful for what
this new year will bring and can’t wait to meet some of wonderful books.”
you at our planned in-person events.

On page 8 of this issue, I think you’ll enjoy the photos and story of Hogan Lust. Now a teenager,
Hogan has found success through tournaments hosted by the North American One-Armed Golfer
Association. Hogan developed left-sided cerebral palsy after a brain bleed as a baby. But he picked
up a golf club when he was only 3, learning to swing with only his right arm, and he has been
succeeding in golf ever since.

On page 14, you’ll find a feature article highlighting
just a few of the women in the bleeding disorders
community, who often went undiagnosed for years
because doctors never suspected a bleeding disorder.
This is a common tale for many adult women with
bleeding disorders. As awareness continues to grow
about bleeding disorders—including hemophilia—in
women, I hope our community’s girls and future
generations are diagnosed much earlier
and don’t have to suffer the years of excess bleeding
that can have such a huge impact on a person’s health
and quality of life.
On page 20, we’re excited to bring you an article
about the history and current status of hemophilia
treatment centers (HTCs). Do you know when they
were created and why? How are they funded? And
how can you access their services if there isn’t an HTC
near you? The story is a fascinating look at the past
and present of HTCs.

On page 26, see how HFA has helped community members achieve their career goals, and provide more
financial stability to their families, through new Job Readiness Grants. These are truly inspiring stories.

Please enjoy this issue of Dateline Federation. As always, if you have questions about anything
included within these pages, please reach out to the HFA team. We are here to support you!

Allie Ritcey

Chair, HFA Board of Directors

2 DATELINE FEDERATION < www.hemophiliafed.org