Dear Addy,
I attended Symposium in April and gained a lot from the advocacy sessions. I want to incorporate what I learned at Symposium into my regular routine. What recommendations do you have for making advocacy an everyday activity?
Signed,
Maintaining the Momentum
Dear Momentum,
Thanks for attending HFA’s Symposium last month in Providence. It’s good to hear your feedback and interest in putting into practice what you learned during Symposium. Here is a list of common activities we make time for every day; consider using this time alternatively to act in support of the bleeding disorders community.
- Got time to post a Tweet? (5 minutes)
- Forward HFA’s action alert e-mails to family, friends, and colleagues.
- Got time for a coffee run? (15 minutes)
- Share HFA’s posts on Facebook, Instagram, and Twitter. Add a personal message so people know why it’s important to you and how they can help.
- Read HFA’s Health Care Legislation Outlook to stay up-to-date on the latest in federal health care policy.
- Got time to check Facebook? (30 minutes)
- Call your legislator. Use HFA’s Words That Work document to construct your speech before you call.
- Share your story with HFA.
- Participate in HFA’s Project CALLS if you’ve experienced an issue with your insurance.
- Got time to play games on your phone? (1 hour)
- Write a letter to your representative about how legislation personally affects you and the bleeding disorders community at large. Read about writing your legislator here and view a sample letter.
- Like watching videos online? Check out HFA’s Advocacy YouTube page. Videos range from two minutes to one hour.
- Got time to watch an entire series on Netflix? (2+ hours)
- Reach out to your local bleeding disorders organization to attend a legislative day.
- Contact your Legislator’s District Director and set up a meeting to educate them about bleeding disorders and access to treatment. District Directors are typically senior staff and tasked with figuring out how issues affect the state/local area.
Keep up the momentum and let HFA’s Outreach team know what additional resources you need to stay involved and informed.
Sincerely,
Addy
Have a question? Click HERE. Your name will be changed in the response.
HFA frequently receives questions from the bleeding disorders community related to advocacy issues. The questions often impact the entire community. In an effort to reach the largest audience possible with our responses to these widely applicable questions, HFA developed “Dear Addy.” Questions submitted to this column are edited in order to protect privacy and should be considered educational only, not individual guidance.
