Department: Public Affairs

Shellye – California

Tell Congress: No Healthcare Cuts “People with bleeding disorders want to be active, contributing, impactful members of society. Access to affordable healthcare keeps us healthy and enables us to give to our country like everyone else.”

Sean – California

Tell Congress: No Healthcare Cuts “Access to affordable healthcare is critical to my family and the bleeding disorders community, because without it, life-saving treatments like recombinant factor become financially out of reach. For those of us with bleeding disorders, missing even a single dose can mean joint damage, internal bleeding, or a medical emergency – […]

Emily – Minnesota

Tell Congress: No Healthcare Cuts “Access to affordable healthcare is critical to my family so that my husband, with severe hemophilia, can pursue a successful career, provide for his family, and play with our kids without worrying about debilitating internal bleeds.”

John – California

Tell Congress: No Healthcare Cuts “Due to the high cost of medication, affordable healthcare is critical for community well-being. Lack of access to affordable healthcare compromises the ability to live a normal life, hindering access to necessary amenities and impacting overall health. Ensuring affordable healthcare is paramount,”

Kathy – Florida

Tell Congress: No Healthcare Cuts “In the 1980s, FDA-approved blood products, contaminated with HIV, killed my husband, a hemophiliac. Today, I have countless of HIV-positive friends whose lives depend on affordable healthcare to not only treat their bleeding disorders, but to stay alive with AIDS-related therapies. To be frank, robbing them — and all Americans […]

Robert – Georgia

Tell Congress: No Healthcare Cuts “The care for hemophilia, VWD and other bleeding disorders has improved dramatically in the last few decades, and this progress was built on an amazing clinical research infrastructure that was funded by the government. The management of bleeding disorders is expensive, and it isn’t feasible to self-fund this healthcare. We […]

Curtis – Minnesota

Tell Congress: No Healthcare Cuts “For someone like myself who is low income, but not old enough to be on Medicare, affordable healthcare is crucial for treatment of my bleeding disorder. Without proper medical treatment of an injury or a joint bleed, my hemophilia will cause long term health issues that in the long run […]

Alyce – Ohio

Tell Congress: No Healthcare Cuts “When people like me and my dad can afford the necessary checkups and medications to adequately treat our condition, we are able to avoid debilitating conditions such as degenerative joint disease. This means that I can be a bedside nurse for decades to come, and my father can care for […]

Amanda – Louisiana

Tell Congress: No Healthcare Cuts “Access to affordable healthcare is vital for families like mine, because hemophilia B isn’t optional – without treatment, even minor injuries can be life-threatening. Lifesaving medication is incredibly expensive, and without coverage, it’s simply out of reach for us. Cutting healthcare access puts lives at risk and creates fear and […]

Adam Alver

Adam is an experienced community advocate and political scientist with over 10 years of work across various sectors, including public policy, property management, business administration, and sales. A member of the bleeding disorders community affected by Hemophilia A and a prior inhibitor, he is a former HFA intern, Policy Analyst, and board member of the […]