Querida Addy: Mes de concientización sobre los trastornos hemorrágicos

Estimado cliente,

Estoy interesado en que se apruebe una resolución local que declare y celebre que marzo es el Mes de Concientización sobre los Trastornos de la Coagulación. Mi única pregunta es... ¿cómo hago eso exactamente?

firmado,
Resuelto para una resolución


Estimado Resuelto para una Resolución

¡Estamos encantados de saber que está interesado en que se apruebe una resolución local del Mes de concientización sobre los trastornos de la coagulación! Quizás te sorprendas: ¡es más fácil de lo que crees! A continuación se presentan algunos consejos, plantillas y recursos que pueden ayudarle en el camino.

Marzo es la resolución del mes de concientización sobre los trastornos hemorrágicos

Si está interesado en que se apruebe la Resolución del Mes de Concientización sobre los Trastornos de la Coagulación, deberá comunicarse con los representantes de su ciudad, pueblo y/o condado local. Utilice el correo electrónico de muestra a continuación (en la sección "Borrador de correo electrónico para su legislador local") como plantilla o escriba su propio correo electrónico para sus representantes locales.

Aquí hay algunos consejos adicionales para su correo electrónico:

  • Guarde la sección “Muestra de proclamación/declaración de marzo como mes de concientización sobre los trastornos de la coagulación” a continuación como documento y adjúntelo a su correo electrónico.
  • Cuente SU historia sobre cómo los trastornos hemorrágicos le afectan a usted y a su familia:
    • ¿Cuál es su condición y cómo la trata? ¿Cómo es su vida diaria?
    • ¿Qué le preocupa de vivir con un trastorno hemorrágico?
  • Ayuda con imágenes: una fotografía dará vida a su historia y mostrará cómo es la vida cotidiana con un trastorno hemorrágico, así que no dude en adjuntar una a su correo electrónico.

Encontrar a sus legisladores locales

Encuentre los representantes de su condado:

Encuentre los representantes de su ciudad/pueblo:

  • Comuníquese con la oficina del alcalde de su ciudad y/o pueblo o con los miembros del concejo municipal.

Organización miembro de la HFA

Es posible que su organización miembro local de la HFA ya esté trabajando para aprobar una resolución sobre el mes de concientización sobre los trastornos de la coagulación a nivel estatal, ciudad o condado. Conéctese con su organización miembro local de HTC para averiguar y ver qué puede hacer para ayudar.

Haga clic aquí para encontrar su organización miembro local de la HFA.

Borrador de correo electrónico para su legislador local

Línea de asunto: SOLICITUD: Declarar marzo como el mes de concientización sobre los trastornos de la coagulación

Estimado ,

Como su elector y miembro de la comunidad de trastornos de la coagulación, le pido su apoyo para declarar marzo como el Mes de concientización sobre los trastornos de la coagulación en . Consulte el borrador de proclamación adjunto para su consideración.

Los trastornos hemorrágicos son afecciones médicas crónicas graves para las que existe tratamiento, pero no cura. El sangrado incontrolado puede provocar dolor y daño permanente a músculos, articulaciones y órganos; en casos críticos puede causar la muerte. Las personas con trastornos hemorrágicos necesitan atención especializada para recibir un diagnóstico adecuado y controlar su trastorno. Es posible que muchas personas no sepan que padecen un trastorno hemorrágico, que es una de las muchas razones por las que es tan importante crear conciencia.

<BRIEF PERSONAL STORY>

Al proclamar marzo como el Mes de los trastornos de la coagulación en usted puede ayudar a los electores como yo, que somos pacientes, familiares y cuidadores, a crear la conciencia pública y el apoyo para la atención adecuada que las personas con trastornos hemorrágicos necesitan y merecen.

Para obtener información adicional sobre los trastornos hemorrágicos, visite el sitio web de la Federación Estadounidense de Hemofilia (hemophiliafed.org). Mientras tanto, comuníquese con nosotros si tiene alguna pregunta.

Gracias por su tiempo y espero tener noticias suyas.

Atentamente,

<YOUR NAME>

Ejemplo de proclamación/declaración de marzo como mes de concientización sobre los trastornos de la coagulación

POR CUANTO, YO, , de <CIUDAD/CONDADO/PARROQUIA>, me enorgullece conmemorar marzo de 2022 como el Mes de Concientización sobre los Trastornos de la Coagulación en el estado de <CIUDAD/CONDADO/PARROQUIA>; y</p> <p>POR CUANTO, esta designación formalizará y ampliará la designación de marzo de 1986 hace 30 años como “Mes de Concientización sobre la Hemofilia” por el Presidente Ronald Reagan; y</p> <p>CONSIDERANDO que el Departamento de Salud y Servicios Humanos federal designó marzo de 2016 como el Mes Nacional de los Trastornos de la Coagulación; y</p> <p>CONSIDERANDO que, en 2019, 25 gobiernos estatales y 54 locales aprobaron una proclamación/resolución que declara marzo como el Mes de Concientización sobre los Trastornos de la Coagulación; y</p> <p>POR CUANTO, los defensores de los trastornos hemorrágicos, durante este mes, usan un material rojo alrededor del cuello (por ejemplo, collares, bufandas, corbatas); y</p> <p>CONSIDERANDO que estos trastornos hemorrágicos, que comparten la incapacidad de formar un coágulo sanguíneo adecuado, se caracterizan por un sangrado prolongado después de una lesión, cirugía, traumatismo o menstruación y pueden provocar una morbilidad significativa y pueden ser mortales si no se tratan eficazmente; y</p> <p>CONSIDERANDO que muchas personas con hemofilia se infectaron con VIH y hepatitis C en la década de 1980 debido a la contaminación del suministro de sangre y de sus productos sanguíneos; y</p> <p>POR CUANTO, este Mes de la Concientización en generará una mayor conciencia y comprensión no sólo de la hemofilia sino de todos los trastornos hemorrágicos hereditarios, incluida la enfermedad de von Willebrand, que por sí sola afecta a aproximadamente el uno por ciento de la población de EE. UU. o más de 3,2 millones de personas; y</p> <p>POR CUANTO, este Mes de Concientización fomentará un mayor sentido de comunidad y propósito compartido entre las personas con todos los trastornos hemorrágicos hereditarios; y</p> <p>CONSIDERANDO que este Mes de la Concientización aumentará la conciencia y la participación en el viaje de los trastornos hemorrágicos hereditarios más allá de nuestra comunidad hacia el público en general, permitiendo la prevención de enfermedades, procedimientos innecesarios y discapacidades; ahora</p> <p>POR LO TANTO, YO, ,<TITLE> de <CIUDAD/CONDADO/PARROQUIA>, haga aquí por proclamar el mes de marzo de 2022, como: <strong>MES DE CONCIENTIZACIÓN SOBRE LOS TRASTORNOS HEGROGRÁFICOS</strong> en .</p> <h3 class="wp-block-heading"><strong>¿Tiene preguntas adicionales o necesita ayuda?</strong></h3> <p>No dude en comunicarse con nuestro equipo de Asuntos Públicos en advocacy@hemophiliafed.org.</p> <p>Atentamente,</p> <p>Addy</p> <p>¿Tengo una pregunta? <a href="mailto:dearaddy@hemophiliafed.org">Envíanos un correo electrónico</a>. 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