Black Voices Quarterly Call

Purpose

The Hemophilia Federation of America is excited to host a series of virtual (Zoom-based) quarterly “check-in” calls with Black & African American members of the bleeding disorders community (ages 18+) from across the US. These calls are a continuation of the HFA’s Black Voices Summit which was held in July 2025 in an effort to continue growing the Black & African American bleeding disorders community and build dialogue around personal experiences related to healthcare access barriers and advocate for solutions. This program will be hosted by HFA and facilitated by bleeding disorder patient community advocates.

Goals

• Identify shared and common health access issues experienced by the Black-Identified & African American communities that may be underrepresented in bleeding disorders policy and advocacy efforts.
• Identify possible solutions that close the gap to unmet needs in healthcare access, affordability and support.
• Identify opportunities to advocate for more equitable access to care on behalf of the bleeding disorders community.