Your Voice Matters: Advocacy Basics for the Bleeding Disorders Community

Are you curious to learn how your voice can make a difference for people bleeding disorders? Have you been nervous or hesitant about getting involved or unsure where to start? Join us for a simple discussion about advocacy—an everyday action that helps decision-makers understand what life with a bleeding disorder is really like.

This webinar, the first in a two-part series, is designed to help you understand the strength of your voice and personal experience, build confidence in sharing your story and learn more about how you can get involved with HFA’s advocacy efforts. Together, we will focus on what it means to be an advocate and what tools HFA has to help, so that you can leave with the knowledge that your lived experience matters and that HFA is ready with practical first steps and support for you to get involved.

• Help you understand that advocacy is not only for experts
• Define what advocacy means and how it’s different from lobbying
• Introduce HFA’s Five Pillars as the simplest way to connect your lived experience to public policy
• Help you identify at least one issue or experience that connects to one of the Five Pillars
• Show you concrete ways to get started on your advocacy journey through the Bleeding Disorders Advocacy Network at HFA.

Thank you to our sponsor, Sanofi.