Insurance systems must meet the realities of lifelong, high-cost conditions like bleeding disorders, and must function to protect rather than exclude. This pillar ensures patients remain protected across all coverage types and transitions, without fear of losing access due to bureaucracy, plan changes, or cost, by embedding permanent, diagnosis-based protections into public and private insurance law. Lifelong coverage must be affordable, consistent, and tailored to the reality of bleeding disorders.
The policy priorities listed below will change in the coming months as HFA works to redesign our policy work and provide the community with new education and policy documents.