Sending your child with a bleeding disorder to school can be an overwhelming experience. Below are tools intended to help you educate the educators and relieve some stress and worry.
- presentations (recorded webinars, customizable PowerPoints for your use, and slides from past presentations/webinars)
- downloads (articles, customizable tools/documents)
- links to other resources
PRESENTATIONS
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Hemophilia & The Student:Â This example is a customizable PowerPoint presentation for parents or guardians to use at an in-service meeting to educate school personnel about your child(s) bleeding disorder.
There are two versions; each includes a presenter’s guide: one that is less in depth and covers the basics, and a second version which is more medically based and may be good for school nurses. Parents should choose which version is best for their situation and school environment. An excellent accompanying document, “My Bleeding Disorder” is also included here.
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von Willebrand Disease (vWD) & The Student:Â This example is a customizable PowerPoint presentation for parents or guardians to use at an in-service meeting to educate school personnel about your child(s) bleeding disorder.
There are two versions; each includes a presenter’s guide: one that is less in depth and covers the basics, and a second version which is more medically based and may be good for school nurses. Parents should choose which version is best for their situation and school environment. An excellent accompanying document, “My Bleeding Disorder” is also included here.
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Setting the Stage for Success in School:Â This document includes the slides from a Dads In Action webinar from August 2011. |
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Hemophilia and School Success: Navigating the System – Webinar: This is a recorded presentation and its slides from an August 2013 Dads In Action webinar. |
DOWNLOADS
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Starting the Discussion with School Staff – A Guide to Students with Bleeding Disorders: This guide is meant as a starting point for discussions with school staff about how to best address the unique healthcare needs of students who have a bleeding disorder. |
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Your Student Has a Bleeding Disorder. Now What? A Flowchart to Help You Navigate:Â This handy flowchart was developed by HFA and a former teacher. |
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Planning an IEP or 504: This document includes a list of reasonable accommodations that parents, or guardians can consider asking for. The accommodations listed are in no means comprehensive and not every child will require each of the items. The list is broken down by Elementary and Secondary education. Parents should work with their child’s school to determine what is best and what the school is capable of providing. |
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Customizable Individual Health Plan (IHP):Â This document is a customizable example of an IHP; check with your Hemophilia Treatment Center (HTC) or school to see if they have a template they use. |
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HFA’s Dateline Article: Your Child’s School & You”:Â The following article appeared in HFA’s “Dateline” publication in the Fall 2011 edition. Includes a summary of the federal laws that help children with hemophilia and other bleeding disorders in the school setting. |
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NHF’s Hemaware Article: “Back to School”:Â The following article appeared in the National Hemophilia Foundation’s “Hemaware” publication in the July/August 2006 edition. Includes a sample 504 plan. |
LINKS TO OTHER RESOURCES
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Wright’s Law: Wright’s Law is a website dedicated to information about special education law, education law, and advocacy for children with disabilities. |
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U.S. Department of Education: The Department of Education’s mission is to promote student achievement and preparation for global competitiveness by fostering educational excellence and ensuring equal access. |
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Understood.org: Understood.org is a website dedicated to parents who have children with learning and attention issues. Their website is chock full of good school resources |
Learning Central
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HFA’s Learning Central: One of the ways you can learn about bleeding disorders is to educate yourself with medically-vetted, accurate information, like the educational information found in HFA’s Learning Central e-learning platform. You may learn something new or brush up on facts or gain the information you need to help educate others about bleeding disorders. |
