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#46606

Michael Wile
Participant

I am a watchdog by virtue of being on the HFA leadership committee. We are a special interest group looking out for people with bleeding disorders. We are watching the US Government it’s agencies, insurance companies, the pharmaceutical industry, blood banks, hospitals, researchers and other interest groups and stakeholders to make sure their interests align with our intersts. Our intersts include product safety, data collection, accessibility, affordability, and availability of the products that we require to live well and not just survive! When our interests don’t align, we take action by lobbying congress, suing, protesting, writing letters, voting, campaigning and raising funds. That’s how one becomes a watchdog.


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