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#47088

Michael Wile
Participant

I absolutely agree with Natalie that we need more doctors involved in hemophilia advocacy. Who better understands the needs of hemophiliacs than hemophiliacs themselves and their doctors. Physician advocates can certainly make great strides in laying out the basic necessities to maintain good health while living with hemophilia. In the ACA there were provisions made for free preventive services(example mammography)so that we could prevent higher costs down the line. There should be similar free preventive services in hemophilia. For example, hemophiliacs should get free joint sonography to prevent target joints from developing, free harvoni to prevent cirrhosis and hepatocellular carcinomas. These latter conditions inevitably lead to much more expensive liver transplants down the line.


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