Health Education

Joint Health Inhibitors Women鈥檚 Health


Are there any gaps in the bleeding disorder communities knowledge and awareness about joint health, inhibitors, and聽 bleeding disorders in women? Is Hemophilia Federation of America (HFA) meeting the community鈥檚 educational needs in understanding these bleeding disorder topics? That鈥檚 what HFA sought to discover with a series of surveys conducted in 2017.

These topics were chosen as they are of significance to improving quality of life among individuals affected with bleeding disorders. Joint health has a significant impact on quality of life for those with bleeding disorders as does testing and understanding inhibitor development. Women are also impacted by bleeding disorders and we wanted to provide them with the tools for knowledge and empowerment. HFA wanted to ensure that these topics were addressed to have substantial impact on the greatest number of community members.

Each participant who completed a survey came from HFA鈥檚 Blood Brotherhood, Blood Sisterhood and Families programs. Their information helped HFA understand components where the community had strong knowledge, areas where their were gaps in knowledge, and the challenges the participant鈥檚 face in finding the educational resources they need to understand each of the three focus areas. The information gathered in the surveys helped HFA to better target programming, to increase participation in physical activity through the joint health challenge with HFA鈥檚 member organizations, and to increase knowledge and awareness through comprehensive, interactive courses on joint health, women鈥檚 health and inhibitors in HFA鈥檚 Learning Central e-learning platform. The e-learning platform is accessible to everyone interested in learning more.


Educational courses on joint health, inhibitors and women鈥檚 health in HFA鈥檚 Learning Central

Found in Knowledge Park in Learning Central
Found in the Health and Wellness Center
Found in the Health and Wellness Center



This work is supported by Cooperative Agreement Number, NU27DD001151-05, funded by the Centers for Disease Control and Prevention. Its contents are solely the responsibility of the authors and do not necessarily represent the official views of the Centers for Disease Control and Prevention or the Department of Health and Human Services.

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