HFA School Tools: Your Child has a Bleeding Disorder…Now What?

HFA School tools

Children with bleeding disorders face unique challenges in school, particularly in physical activities like PE, playground play, and sports, where even minor injuries can lead to serious bleeding or bruising. They may need accommodations, such as permission to avoid high-contact activities or the ability to take medications during school hours. Educating teachers and staff about the condition is crucial for creating a safe environment. With proper planning and support, however, most children with bleeding disorders can fully participate in school and have a positive educational experience.

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Does the bleeding disorder limit any major life activities at any time? (e.g., walking, working, taking care of one’s self, school attendance)

  • NO: Bleeding Disorders are unpredictable. Consider preparing for the unexpected by having a 504 plan in place, just in case.
  • YES: Has the bleeding disorder caused an educational delay, or does your child also have a learning disability?

Things You Should Know

  • IEPs and 504s must be reviewed annually
  • You have the right to request a meeting at any time to discuss progress
  • You must be offered a copy of procedural safeguards
  • You can disagree with the school and you have the right to due process

Definitions

  • Modification = changes expectations for what a child learns
  • Accommodation = tools, resources, or strategies to help with learning
  • IEP = Individualized Education Plan
  • IDEA = Individuals with Disabilities Education

Act 504 Plan = Section 504 of the Rehabilitation Act of 1973, A federal law that requires a school district to provide a free and appropriate public education to each child with a disability. (Source: U.S. Department of Education).

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Disclaimer: Individual schools/districts may vary. The process may look different, depending on where you live.

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