Your experiences are key to our research.


With the HFA Community Research Portal, HFA is developing and curating patient-centered research surveys for everyone in the bleeding disorders community.聽We are currently in the process of transitioning to a new Portal. Please stay tuned for more information on this exciting update!

Recently Concluded Surveys:

  • CHOICE 2.0
  • Gene Therapy & You
  • HFA PRIDE Project
  • Spanish Gene Therapy
  • COVID-19 Mental Health and Coping
  • COVID-19 Vaccination Pulse Check

Ongoing Projects

    • Novo Nordisk
    • CDC (with link to CDC pages so we鈥檙e not housing the CDC info on RSH pages)
    • FIRST project (will be completed soon)
    • WIRED

Several additional surveys are being developed and will be launched in the upcoming months. New surveys will be announced when they are ready. Results of our surveys are presented in research posters and through social media.

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