Hemophilia Federation of America is seeking community leaders to form a research network focused on the engagement of women in research.聽
This network is forming as part of a project called the Females in Research Sharing and Translation (FIRST) project. The vision for this network is to assemble a group of stakeholders and female patients in the bleeding disorders community to commence discussions, become further educated, and begin outlining a research agenda in an effort to increase female influence and engagement in research development, implementation, and the dissemination of results; with the objective of ultimately affecting clinical care for females with bleeding disorders, and potentially other rare disease states聽
Download the Full Community-Based Research Network Member Description
For more information please contact:
The HFA Research team at research@hemophiliafed.org
or Janet Chupka at j.chupka@hemophiliafed.org聽
