Hemophilia Federation of America is seeking community leaders to form a research network focused on the engagement of women in research.

This network is forming as part of a project called the Females in Research Sharing and Translation (FIRST) project. The vision for this network is to assemble a group of stakeholders and female patients in the bleeding disorders community to commence discussions, become further educated, and begin outlining a research agenda in an effort to increase female influence and engagement in research development, implementation, and the dissemination of results; with the objective of ultimately affecting clinical care for females with bleeding disorders, and potentially other rare disease states

Download the Full Community-Based Research Network Member Description

For more information please contact:
The HFA Research team at
or Janet Chupka at

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