HFA has PRIDE! HFA received $250,000 funding award through the Eugene Washington PCORI Engagement Awards program, an initiative of the Patient-Centered Outcomes Research Institute (PCORI). The funds supported the Patient-centered Research for Innovation, Development, and Education (PRIDE) Project via training and education of bleeding disorder community stakeholders in patient centered outcomes research (PCOR) and comparative effectiveness research (CER). PRIDE Project training resulted in capable and confident lifelong PCOR and CER participants who have a positive impact on those with bleeding disorders.
The project used a blended learning method, which included in-person trainings, online education, and print resources, to train bleeding disorders community stakeholders in PCOR and CER. The PRIDE Project provided knowledge, tools, and connections to facilitate discussions and planning among researchers and stakeholders for future PCOR and CER initiatives. HFA PCOR and CER training focuses on four (4) key areas.
- What is PCOR and CER?
- Why are PCOR and CER important to patients, caregivers, healthcare providers, and other stakeholders?
- How do I become a knowledgeable participant in PCOR and CER?
- How do I use PCOR and CER results to improve health outcomes?
We expect training in these four areas will result in educated and informed community stakeholders able to determine on which research areas they should focus to achieve the most beneficial and relevant results to improve health outcomes of the bleeding disorders community.
PRIDE Project Webinars
You can participate in PRIDE training in several ways. Below is a list of webinars and soon we will have training modules online.
|What are PCOR & CER?||May 31, 2017||All||Watch the webinar!|
|How do I participate in PCOR & CER as a Community Member?||September 20, 2017||Patients and Caregivers|
|How do I participate as a healthcare provider, researcher, or other stakeholders?||November 28, 2017||Healthcare providers and other bleeding disorder stakeholders|
|How do patients and caregivers use PCOR and CER results to improve health outcomes?||January 17, 2018||Patients and Caregivers|
|How do healthcare providers, researchers, or other stakeholders use PCOR and CER results to improve health outcomes?||April 27th, 2018||Healthcare providers and other bleeding disorder stakeholders|
|What’s the Next Step?||July 2018||All|
|PCORI Capstone Presentation and Events||April 2019||All||
San Diego, CA