When navigating the online ecosystem of the bleeding disorders community, it can be confusing as to which organizations run what site. While some organizations run pages with transparent naming, like HFA’s Facebook page, sometimes it’s not so clear. We developed this tool to shine a light on those pages and resources that may not have the most transparency in their name.  If you have any questions or feel we’ve omitted a site, please let us know! Email us at info@hemophiliafed.org or call (202) 675-6984.

Facebook

Industry
Who They Are	What They’re Called	Who Manages the Page
	Bleeding Disorders Community	Takeda (formerly Shire)
	ALPROLIX® [Coagulation Factor IX (Recombinant), Fc Fusion Protein]	Sanofi Genzyme
	Hemophilia CoRes	Sanofi Genzyme
	ELOCTATE [Antihemophilic Factor (Recombinant), Fc Fusion Protein]	Sanofi Genzyme
	Genentech	Genentech
Â	HEMLIBRA® (emicizumab-kxwh)	Genentech
	Changing Hemophilia	Novo Nordisk
	Our Hemophilia Community	Pfizer
	MicroHealth	MicroHealth LLC
	Supporting Bleeding Disorders	Octapharma
	Bleeding Disorders Resources Network	Specialty Infusion Company
	Hemophilia Market Research	Trace Resource Group, a market research vendor
	Tribeca Communications Hemophilia Market Research	Tribeca Communications
	Hemophilia TalkShop	We were unable to verify the ownership of this page
	Your Hemophilia Resource	We were unable to verify the ownership of this page

If you feel we’ve omitted a site, please let us know! Email us at info@hemophiliafed.org or call (202) 675-6984.
Last updated September 2020.

Other
Who They Are	What They’re Called	Who Manages the Page
	Hemos Unite	Matti Vann (Hemophilia Mother)
	Stop the Bleeding! A comedic web series.	Believe Digital
	webleed.org	webleed.org/sangramos.com

If you feel we’ve omitted a site, please et us know! Email us at info@hemophiliafed.org or call (202) 675-6984.
Last updated March 2020. 

Twitter​

Industry
Who They Are	What They’re Called	Who Manages the Page
	@TakedaPharma	Takeda
	@BayerPharma	Bayer
	@SanofiGenzyme	Sanofi Genzyme (formerly Bioverativ)
	@CSLBehring	CSL Behring
Â	@genentech	Genentech
Â	@novonordiskus	Novo Nordisk
	@pfizer_news	Pfizer Inc.
	@DiplomatRx	Diplomat (formerly BioRx)
	@MediciGlobal	Medici Global, a market research firm
	@MicroHealthTalk	Microhealth LLC
	@soleohealth	Soleo Health Homecare

If you feel we’ve omitted a site, please let us know! Email us at info@hemophiliafed.org or call (202) 675-6984.
Last updated September 2020. 

Other
Who They Are	What They’re Called	Who Manages the Page
	@fuchsiasupport	Comprehensive Bleeding Disorders Center
	@HemosUnite	Matti Vann, a hemophilia mother
	@MarkTKenny	Mark Kenny, a hemophilia father
	@TheMightySite	The Mighty
	@HemophiliaTeam	We were unable to verify the ownership of this account, however My Hemophilia Team offers this information.
	@WeBleedOnline	webleed.org/ sangramos.com
	@WomenBleed	Women’s Bleeding Disorder Coalition

If you feel we’ve omitted a site, please let us know! Email us at info@hemophiliafed.org or call (202) 675-6984.
Last updated March 2020. 

 Mobile Apps

Industry
Who They Are	What They’re Called	Who Manages the Page
	Beat Bleeds	Takeda (formerly Shire)
	FactorTrack	Bayer HealthCare Pharmaceuticals Inc.
	HemoTrax	CSL Behring LLC
	Medtep Hemophilia	Grifols
	Coags Uncomplicated	Novo Nordisk
	HemaGo	Novo Nordisk
	HemMobile	Pfizer
	MyFactor	BioRX
	MicroHealth Hemophilia	Microhealth LLC

If you feel we’ve omitted a mobile app, please let us know! Email us at info@hemophiliafed.org or call (202) 675-6984.
Last updated March 2020. 

Other
Who They Are	What They’re Called	Who Manages the Page
	HemoTool	Dakota Rosenfelt, a hemophilia patient

If you feel we’ve omitted a mobile app, please let us know! Email us at info@hemophiliafed.org or call (202) 675-6984.
Last updated March 2020. 

Websites

Industry
Who They Are	What They’re Called	Who Manages the Page
	Genentech in Hemophilia	Genentech
	HemeWork	Genentech
	HEMLIBRA® (emicizumab-kxwh)	Genentech
	CHALLENGE ACCEPTED Show	Genentech