Identifying and addressing health inequities in the community.

Established in 2021 in an effort to better understand and grapple with issues facing our community, we have established the Bleeding Disorders Health Disparities Council. Through a literature review, needs assessment, and focus group, we will identify what disparities are present and the populations affected. Our preliminary review of the literature confirms that there is very little data available regarding health disparities among patients with bleeding disorders. To date, the only data collected and published pertains to pain management. Anecdotal experiences and concerns have been shared by community members, but none has been collected or recorded.

We know the COVID-19 pandemic has unearthed long-standing systemic health and social inequities for ethnic and racial minority groups including individuals who are Black, Hispanic, Latino, and American Indian/Alaskan Native. People of color have higher rates of hypertension, diabetes, and obesity and experience a disproportionate share of environmental risk factors such as limited income and educational opportunities, food insecurity, and poor access to healthcare. Groups marginalized by race and ethnicity have been oppressed by discriminatory practices which have further negatively affected these groups.

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