Treatment of a bleeding disorder is very聽expensive. Factor concentrates are one of the most expensive drugs in the market and even people with good health insurance can be impacted by the financial aspects of managing a bleeding disorder.聽It is critical for patients and caregivers to have health insurance and understand their financial responsibility.

Health Insurance

It is extremely important that people with bleeding disorders have health insurance. The costs associated with treating a bleeding disorder are very high, so parents of children with bleeding disorders and people living with the disorder must know their insurance coverage well. The Patient Protection and Affordable Care Act (ACA) has changed many of the rules of health insurance, including the removal of lifetime caps on insurance policies, and it has made it illegal for insurance companies to deny insurance based on pre-existing conditions. Visit for details on ACA.

Financial Responsibility

Even a person with聽“good insurance” may聽see their聽finances affected because of the high costs of the treatment of a bleeding disorder. Anyone involved in the care of a person with a bleeding disorder must understand their health insurance policy well and be familiar聽with the portions that are the patient’s financial responsibility. Insurance policies usually change one time per year. It is the patient’s or caregiver’s responsibility to review how the policy has changed and ensure they budget accordingly to cover co-pays, co-insurance amounts, deductibles, and other out-of-pocket expenses.

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