HFA believes paying tribute to and preserving the bleeding disorders community’s legacy of advocacy, sacrifice and treatment advancements is important. For the past five years, we have been proud to play a role in preserving that history with the “Honoring Our Past, Building Our Future” history project, where we have collected the significant stories and artifacts which best represent our community. But the project doesn’t end there.
HFA has made an initial donation of artifacts related to the history of the bleeding disorders community to the Smithsonian Institute’s National Museum of American History in Washington, D.C. This donation, which consists of items generously given by community members, is a huge step in formally preserving the history of the bleeding disorders community for future generations. More information will be made available in the future as this project develops.
Take a moment to read about our inspiration for this project and the details of seeing it to completion by viewing our Case For Support.
Make a Donation
Your financial gift will help ensure the history of the bleeding disorders community is preserved into the future. There are three ways to donate:
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- Text HFA to 243725 to receive a link to donate.
- Online, by clicking here or on the button below.
- Checks made out to Hemophilia Federation of America can be mailed to 999 North Capitol Street NE Suite 301, Washington, D.C. 20002
Submit Artifacts
HFA has collected many documents, articles and artifacts, but is aware there may be more memorabilia stashed in attics all across the country! We are looking for community members and organizations willing to share and work with HFA to preserve a comprehensive record of the community’s history.
Do you have old family photos depicting the reality of life with a bleeding disorder? Or maybe diaries or journals that reflect your or a loved one’s personal journey. We’re looking for personal items as well as newspaper articles, key documents, newsletters, posters from advocacy rallies on Capitol Hill or other artifacts that tell our story of endurance and resilience.
Submit a photo of something you have that may be added to the HFA or Smithsonian collection. A committee will review the submissions and work with you to collect and return items.
Share your historical archives so HFA can continue to shed light on this amazing community.
Thank you to all of the individuals, families, organizations and companies that have donated to the History Archive Project. It is with their support that HFA can continue to ensure that the bleeding disorder community’s history will be preserved for future generations.
Corporate/Organizations
$50,000
The Hemophilia Alliance
$1,000
Diplomat Specialty Infusion Group
$100
Comprehensive Health Education Services
HFA Member Organizations
Thank you to the Member Organizations who made contributions as pacesetters to kick-off this campaign!
$5,000
Texas Central Hemophilia Association — PacesetterÂ
$2,000
Lone Star Hemophilia Chapter — PacesetterÂ
$1,000
Alaska Hemophilia Association — PacesetterÂ
Bleeding Disorder Foundation of Washington — PacesetterÂ
Gateway Hemophilia Association — PacesetterÂ
Hemophilia Foundation of Maryland — PacesetterÂ
Hemophilia Foundation of Michigan — PacesetterÂ
Hemophilia Foundation of Oregon — PacesetterÂ
Hemophilia Foundation of Southern California — PacesetterÂ
Hemophilia of North Carolina — PacesetterÂ
Hemophilia of South Carolina — PacesetterÂ
New England Hemophilia Association — PacesetterÂ
Northern Ohio Hemophilia Association — PacesetterÂ
Rocky Mountain Hemophilia and Bleeding Disorders Association — PacesetterÂ
Southwestern Ohio Hemophilia Foundation — PacesetterÂ
Virginia Hemophilia Foundation — PacesetterÂ
$600
Tennessee Hemophilia and Bleeding Disorder Foundation— PacesetterÂ
$250
Hemophilia Alliance of Maine — PacesetterÂ
Individuals and Families
$2,000
Jane Cavanaugh Smith
$250
Packard Family
$150
Kari & Craig Atkinson
$100
Howard Haugstad
Joe & Sherry Markowitz
Joe Pugliese
Karen & Michael Bishop
Laureen Kelley
Liz Purvis
Ron Staake
Tanya Ricchi
$50
Anonymous
Anonymous
Anonymous
Anonymous
Douglas Hartsough
Jeremy Griffin
John & Diane Bruno
Lily Schwartz
Lorena Fraden
Tessa Field
$25
Anonymous
Anonymous
Anonymous
Anonymous
Brandon Roberts
Bridget Tyrey
David Macharola
Elizabeth Schauermann
Grant Belsham
Justin Lindhorst
The Knoerzer Girls
Laureen Temple
Manuel Lopez Serrano
Michele Warner
Michelle Kim
Renee Waschle
Richard Vogel
Rosemary Robinson
Seth Price
Temesha Pollock
Wanda McLendon
$20
Brenda Bordelon
In honor of Danny and Lily Shelton
Jen Loving
Maira Guild
$15
Britnee Vieira
$10
Anonymous
Anonymous
Anonymous
Linda Wakefied
*Donor names shown above reflect the name received on a donation. If you believe there is an error or would like to edit how your name is shown, please contact us at info@hemophiliafed.org
