New York, NY; Washington, D.C.- Today, the National Hemophilia Foundation (NHF) joins the Hemophilia Federation of America (HFA) in announcing the “Together Project” a new initiative that unites resources and aligns the mission of the two organizations.
The Together Project kicks off with a focus on mental health, an issue of importance for many in the bleeding disorders community, those living with an inheritable blood disorder. With numerous studies having shown the high correlation between chronic disease and depression and anxiety, and with vocal input from the inheritable blood disorders community who recognize mental health as a top priority.
“This partnership couldn’t have come at a more critical time,” said Dr. Leonard A. Valentino, NHF CEO. “Together, NHF and HFA want to show that it’s okay not to be okay. Having a chronic disease – especially during a pandemic – can be overwhelming, isolating, and anxiety inducing. We hope this new effort will offer guidance, hope, and a feeling of not being alone.”
This mental health collaborative will display clear and attainable actions, conversation starters, and demonstrable outcomes related to mental health. From social media conversations to videos, webinars, and more, the mental health focus of the Together Project will form a basis for the two organizations to work together on this important topic.
“HFA is honored to partner with NHF and our Member Organizations on the Together Project to address mental health in the bleeding disorders community. For far too long, mental health has been overlooked as part of community wellness and it is our hope to bring this important topic to the forefront.Â By partnering with other patient advocacy organizations, we can provide important resources, greater understanding of the needs of the community, and hopefully de-stigmatize how mental health affects the whole person,” said Sharon Meyers, HFA President & CEO.
The Together Project will encompass united efforts around community outreach, educational programs, advocacy, and awareness campaigns. The next joint effort will be participation in World Gratitude Day on September 21, 2021. Stay tuned to social media for additional details.
Planning for the Together Project has been underway since October 2020, when NHF and HFA came together after realizing that combined efforts, resources and educational initiatives will help to better serve the community.
About the National Hemophilia Foundation
For nearly 75 years, The National Hemophilia Foundation (NHF) has championed research, education, and advocacy for inheritable blood disorders. NHF is dedicated to finding better treatments, preventative measures, and cures for inheritable blood disorders. Founded by patients in 1948, NHF’s impactful programs and initiatives are made possible through the support of a nationwide network of chapters, as well as individuals, partners, and a cooperative agreement with the Centers for Disease Control and Prevention (CDC).
About Hemophilia Federation of America (HFA)Â
HFA is a leading patient-advocacy organization for people living with a bleeding disorder and their families. The devastation inflicted by HIV and Hepatitis C was the catalyst for HFA’s founding, creating a voice for the bleeding disorder community.Â First incorporated in 1994, HFA continues to be at the forefront of advancing patients’ rights and access to care while providing educational programs and resources needed to advocate for themselves. By employing a boots-on-the ground, federation model in partnership with 50 state-based Member Organization affiliates, HFA’s reach is national, but programs and services are tailored to the unique and complex needs of smaller, local communities.