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History of Bleeding Disorders
Bleeding Disorders 101
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April 5, 2024
Advocacy News: March 2024
March 15, 2024
Update on Smithsonian Institution Project to Archive Bleeding Disorders History
February 29, 2024
Advocacy News: February 2024
February 21, 2024
Scholarship Recipient: Michael Potanin
February 21, 2024
Scholarship Recipient: Porus Pavri
February 21, 2024
Scholarship Recipient: Haylee Slonaker
February 2, 2024
Blog: Random Thoughts from a Venerable Hemophiliac
January 31, 2024
Novo Nordisk Announces Supply Shortage
January 31, 2024
Word from Washington: January 2024
January 26, 2024
Takeda Issues Voluntary Product Withdrawal
January 8, 2024
HFA Announcement to Community and Industry Partners
December 27, 2023
Word from Washington: December 2023
December 21, 2023
State of the States: Winter 2023
December 15, 2023
Dear Addy: The Marketplace
December 7, 2023
Novo Nordisk Issues Supply Notice
November 29, 2023
Word from Washington: November 2023
November 20, 2023
HFA Project Featured in International, Peer-Reviewed Scientific Journal
November 17, 2023
Dear Addy: SSI Eligibility
October 31, 2023
Word from Washington: October 2023
October 15, 2023
Dear Addy: Medicare Enrollment 2024
October 3, 2023
Court Overturns Accumulator Adjuster Rule
September 30, 2023
Word from Washington: September 2023
September 29, 2023
State of the States: Fall 2023
September 15, 2023
Dear Addy: Back to School
August 31, 2023
Word from Washington: August 2023
August 23, 2023
Update: Takeda to Voluntarily Replace Certain BAXJECT® II Reconstitution Devices
August 15, 2023
Dear Addy: In-District Legislative Meetings
July 31, 2023
Word from Washington: July 2023
July 26, 2023
Blog: Intern Introspective #7
July 19, 2023
Blog: Intern Introspective #6
July 15, 2023
Dear Addy: Finding Community
July 15, 2023
State of the States: Summer 2023
July 12, 2023
Blog: Intern Introspective #5
July 5, 2023
Blog: Intern Introspective #4
June 30, 2023
Statement: HFA Responds to Latest Gene Therapy Announcement
June 30, 2023
FDA Approves BioMarin’s Gene Therapy for Adults with Severe Hemophilia A
June 30, 2023
Sanofi Announces Data Showing Effective Bleed Protection in Children with Severe Hemophilia A
June 29, 2023
Word from Washington: June 2023
June 28, 2023
Blog: Intern Introspective #3
June 27, 2023
FDA Accepts Pfizer’s Review Application for Hemophilia B Gene Therapy Treatment
June 21, 2023
Blog: Intern Introspective #2
June 15, 2023
Dear Addy: Eager to Advocate
June 15, 2023
HFA Launches Clinical Trials Search Site
June 14, 2023
Blog: Intern Introspective
May 31, 2023
Word from Washington: May 2023
May 31, 2023
Pfizer Announces Positive Results from Hemophilia A and B Trial
May 15, 2023
Dear Addy: Financial Assistance
May 11, 2023
FDA Finalizes Blood Donor Eligibility Guidance
May 11, 2023
FDA issues response to Novo Nordisk’s request for concizumab approval
May 1, 2023
The HELP Copays Act moves forward – now in the Senate as well as in the House
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