News Archives - Hemophilia Federation of America

News Archives

Editorial: The Preservation of Protection

Pfizer Survey Shows Patients Still Want More from Treatment

Gene Therapy Remains Top of Mind for Hematologists

Answering Back to School Questions

Don’t Leave Home Without It

Nasal Spray STIMATE Returning To Market This Fall

CSL Provides Update on HEMGENIX® Supply and Patient Access

HFA Proud to Receive Top Rating from Charity Navigator

Bleeding Disorders Organizations Partner to Prepare for Coming Medicaid Changes

Sanofi Provides a Statement on FDA Letter

The Enduring Legacy of Bleeding Disorders Camp

Incyte Completes Acquisition of Vega Therapeutics, Expanding its Hematology Portfolio

MASAC Announces First-Ever Recommendations for Routine Iron Screening in People with Bleeding Disorders

FDA Approves Pfizer’s HYMPAVZI for the Treatment of Two Additional Hemophilia A or B Patient Populations

Incyte Acquires Vega Therapeutics, Expanding its Hematology Portfolio into Bleeding Disorders

HFA Provides Update on Historical Archives Project

HFA Joins 47 Other Organizations to Warn of Massive Coverage Losses Under Medicaid Ruling

May is Hepatitis Awareness Month

HFA Submits Testimony to House Appropriations Committee Subcommittee

HFA Joins 43 Other Organizations in Urging Protection from Further Medicaid Cuts

HFA Education Manager Highlights Bleeding Disorders Awareness in Texas

Takeda Announces Important Product Supply Update of HEMOFIL and RECOMBINATE

How HFA’s New LMS Platform Will Benefit the Community

Member Organization Spotlight: The Louisiana Hemophilia Foundation

A Shared Experience About Periodontitis and Bleeding Disorders

Employee Spotlight

Dr. Dana Kuhn: Sharing His Thoughts in a Letter to our Community

Running Against the Odds: The Journey of Skyler Tulley

What’s Coming in 2026 — and Why Every Advocate Matters

Why AI Matters for HFA and the Community

CSL Behring Provides Update on HEMGENIX Availability

Why Copay Fairness Matters for the Bleeding Disorders Community

Word From Washington: A New Year, Similar Policy Fights

Patients Need a Path Forward: 40 Patient Advocacy Orgs Urge Senate to Extend ACA Tax Credits

Pfizer – Adverse Event in Clinical Trial

HFA Introduces Five Pillars of Public Policy

Word From Washington: The Shutdown, Health Insurance, and Protecting Our Community

Black Voices Summit Report

State of the States: Grappling with Healthcare Changes

US FDA Approved Takeda’s sBLA for VONVENDI

Word From Washington: The “Big Beautiful Bill” and Bleeding Disorders

Dr. Dana Kuhn: Sharing His Thoughts in a Letter to our Community

Medicaid Data Shared with Immigration Authorities: a Joint Statement from HFA and NBDF on Patient Privacy

Coming Together at Symposium 2025: A Look Back

Iron Deficiency in Women and Girls with Bleeding Disorders: What You Need to Know

Before You Push the Bird Out of the Nest

Member Organization Spotlight: The Hemophilia Foundation of Michigan

A Significant Crisis that Calls for Major Action

Together, We Can Change Lives Before the Summer Ends!

Employee Spotlight

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