HFA reports on a particularly concerning insurance problem unfolding in Tennessee, and how HFA is responding; news on Medicaid eligibility reviews; changes in blood donation policy; and much more.
On Friday, January 27, 2023, the U.S. Food and Drug Administration announced proposed changes to national blood and plasma donation policies. The draft FDA guidance, …
The World Federation of Hemophilia (WFH) has developed a registry to monitor the long-term safety and efficacy of gene therapy for people with hemophilia: the WFH Gene Therapy Registry (GTR). The launch of the WFH GTR coincides with the first approvals of gene therapy for hemophilia by both the United States Food and Drug Administration (FDA) and the European Medicines Agency (EMA).
On January 1st, Blue Cross Blue Shield of Tennessee (BCBST) implemented formularies for their health plans (individual, small group, and large group) that remove 17+ …
A community member writes in about their struggles with a friend who is pressuring them to switch to the specialty pharmacy that they work for. Addy share tips with writer as how to try to both keep their friendship and their pharmacy.
States win authority to restart Medicaid eligibility determinations in April The omnibus spending legislation passed late in the year by Congress will let states resume …
On December 23rd, Congress passed a $1.7 trillion year-end spending package that averts a government shutdown and funds the government through September 2023. The 4,000+ …
Dear Addy, I want to give back this holiday season, but I’m not sure how. Can you recommend ways to be more involved in my …
On October 28, 2022, thirty-two bleeding disorders (BD) community stakeholders met to learn about BD in women, discuss gaps in care and research for women, …
Midterm elections are mostly wrapped up as November draws to a close. The race between Sen. Raphael Warnock and Herschel Walker heads to a runoff …
In this edition of State of the States, South Dakota votes to expand Medicaid, Oregon receives landmark approval to provide continuous Medicaid coverage for young children, and Delaware joins 14 other states in protecting copay assistance for consumers. Midterm elections result in little change in partisan control of state legislatures while states race to prepare for the looming end of the COVID public health emergency and the prospect of mass Medicaid terminations.
FOR IMMEDIATE RELEASE First-Ever Gene Therapy Approved for Hemophilia B National patient advocacy organization issues formal statement. WASHINGTON, D.C., Nov. 23, 2022—Hemophilia Federation of America …
Five years ago, Hemophilia Federation of America articulated a broad vision that includes advocating for improved care and quality of life for those affected by …
An update for the hemophilia community from BioMarin regarding a previously reported serious adverse event in the ongoing hemophilia A gene therapy [valoctocogene roxaparvovec, BMN …
Dear Addy, With the holidays ahead of us, I’m trying to focus on taking care of myself. However, I struggle to do this between family, …