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Infusing Love: A Mom's View - A blog dedicated to mothers of children with bleeding disorders.

One of the things that surprised me most about joining the bleeding disorders community was the sense of family.聽 Thomas鈥檚 diagnosis was the first in our family history (although we鈥檇 later find out I鈥檓 a carrier), so the shock of hemophilia was hard to shake, but the open arms we met made it a bit easier to accept.

Every event we attended literally began with hugs.聽 It was like seeing long lost family each time.聽 This weekend, over 700 people are coming together for the annual HFA Symposium, or what I like to call 鈥淭he Great Hemophilia Family Reunion.鈥澛 Sure, we鈥檒l attend educational sessions and get product updates from industry sponsors, but I think it鈥檚 safe to say that the real draw of the weekend is getting to see our bleeding family from across the country and the opportunity to meet new blood brothers and sisters.聽 There will be hugs and laughter, and even a few tears as we remember our family who is no longer with us and look ahead to the bright future that many of our kids now have due to advancements in treatment. It will be just like a family reunion, the only thing missing is Grandma鈥檚 famous peach cobbler.

If you are attending Symposium this weekend, try to find me and I鈥檒l give you a great big hug. I can鈥檛 wait to see my hemo family because what we lack in clotting powerwe make up for it in the love we have for one another. The importance of being with our community, with people who understand and 鈥済et it鈥 is invaluable. 聽I have eagerly awaited this meeting so that I can be rejuvenated by my hemo family.聽 In keeping with Symposium 2013鈥檚 theme, we are a TEAM 聽— together we achieve more.聽 Our blood unites us.

Sonji Wilkes was born and raised in North Carolina, where during high school, she developed an appreciation for volunteerism and community service. 聽She graduated Magna Cum Laude with a BA in Behavioral Science from the Metropolitan State College of Denver in 2001. 聽Sonji volunteers extensively in the bleeding disorders community and was selected as the 2006 National Hemophilia Foundation鈥檚 Volunteer of the Year. 聽Sonji, her husband Nathan, and three children:聽聽Nora (11), Thomas (9), and Natalie (7), currently reside in Colorado.
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*Note: 鈥淚nfusing Love: A Mom鈥檚 View,鈥 is a blog collection of personal opinions and a representation of individuals experiences. While extensive efforts are made to ensure accuracy of the content, the blog entries do not represent HFA or its Board of Directors. The blog is also not intended to be construed as medical advice or the official opinion/position of HFA, its staff, or its Board of Directors. Readers are strongly encouraged to discuss their own medical treatment with their healthcare providers.


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