Dear Addy,

I鈥檓 participating in an Advocacy Day with my local bleeding disorders organization this month. I have limited experience with legislative advocacy and it鈥檚 been a long time since I took a civics class! Could you share insight on what to expect and how to prepare?

Proactive Participant

Dear Participant,

This is a timely question, as many state legislatures are in session. You don鈥檛 need experience with legislative advocacy to make the most of your day. HFA鈥檚 new resource, Legislative Toolkit for Patients and Caregivers, is a comprehensive resource to help new and seasoned advocates alike. The toolkit includes a presentation on talking to your legislator, reports from other patient advocacy organizations and experts in the field, and documents on how a bill becomes a law, roles during a meeting, writing to your legislator, etc. You can also find a podcast series on civics 101!

Use these past Dear Addy posts, including attending NHF鈥檚 Washington Days and legislative day follow-up, for additional support.

Remember, you are the expert on your story and on what access to care means to you and your family. Share what you know and you鈥檒l have a great day. Thank you for engaging and making your voice heard!



Have a question? Click HERE. Your name will be changed in the response.

HFA frequently receives questions from the bleeding disorders community related to advocacy issues. The questions often impact the entire community. In an effort to reach the largest audience possible with our responses to these widely applicable questions, HFA developed 鈥淒ear Addy.鈥 Questions submitted to this column are edited in order to protect privacy and should be considered educational only, not individual guidance.


Sign up for E-mails, Dateline Magazine, and other ways to stay connected.