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Infusing Love: A Mom's View

This post is written as a special shout-out to my husband; a hemo dad, and all the other caregivers who have patience just like my husband Shane.

I鈥檓 pretty lucky to have a husband who is very involved in Maddox鈥檚 infusions. My husband, Shane, gives Maddox his infusions three times a week. As a full-time guidance counselor, I currently have to leave early for work..聽When I have a day off I try my hardest to be there to infuse, but it鈥檚 Shane who is solely the go to for all of Maddox鈥檚 infusion needs.

On Memorial Day I was home, so Shane and I decided to infuse together. Maddox was not having it. He was trying to squirm in his highchair, was drooling and crying (a bad combination to keep the site sterile), and just wanted to be held by his mama. As a side note: Maddox usually never has any problems with his infusions. He sits there with his iPad, and lets Shane infuse with no problem.

I think Maddox was confused as to why I was even there, because this wasn鈥檛 his routine. As I tried to hold Maddox calmly Shane tried to go into his port. 鈥淚鈥檓 missing because he鈥檚 moving,鈥 Shane informed me. Shane had to start over again because the needle came out. Attempt number two and Maddox was still not having it. I probably would have thrown the whole kit out the window by now, but Shane just took a deep breath and tried again. I whispered under my breath, 鈥淐ome on Shane, don鈥檛 miss.鈥 Success…blood return! Phew, that definitely was a lot.

I commend my husband, because he truly is amazing. He鈥檚 got patience, knowledge, and does well under pressure!

Having a child with hemophilia is not easy by any means; however, it鈥檚 crucial to have a strong support network where there is balance. Each infusion is different, along with different needs and severities of hemophilia. Maddox is doing well, and that鈥檚 all that matters. He鈥檚 got a hemo mom and hemo dad who strive to be the best they can be for him.

Heather lives in Massachusetts with her husband, Shane, and her young sons, Logan and Maddox.

*Note: 鈥淚nfusing Love: A Mom鈥檚 View,鈥 is a blog collection of personal opinions and a representation of individuals experiences. While extensive efforts are made to ensure accuracy of the content, the blog entries do not represent HFA or its Board of Directors. The blog is also not intended to be construed as medical advice or the official opinion/position of HFA, its staff, or its Board of Directors. Readers are strongly encouraged to discuss their own medical treatment with their healthcare providers.

 

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