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Dear Addy,

I’ve been sharing HFA’s Facts a Day about Bleeding Disorders Awareness Month, but I want to do more. How can I help raise awareness about bleeding disorders?

Signed,

Ready to Activate


Dear Ready to Activate,

It’s wonderful to hear that you are motivated to help spread the word about bleeding disorders! As a rare chronic disorder population, it’s important that we raise our voices and make others aware.

There are lots of ways you can get involved:

  • HFA has put together an advocacy calendar for the month and is sharing tips for how you can make advocacy a part of your regular routine. Be sure to look for those each day on HFA’s Facebook and Twitter feeds.
  • Contact your local media outlet and ask if they’ll do a piece on bleeding disorders, what’s happening in the community, and why this month is important to you.
  • Want to be a stronger advocate? Volunteer! Contact your local bleeding disorders organization and learn about opportunities that fit your schedule and interests.
  • Wear some bleeding disorders awareness gear. You will be surprised how many people ask you to tell them more.
  • Ask your elected officials to attend a local event to meet community members and learn more about bleeding disorders.
  • Stay informed and share updates from HFA’s Word From Washington (breaking policy news), and Washington Wire (monthly email roundup of the top issues)

But even when March ends, you can still raise awareness for bleeding disorders all year long. Stay involved all year long!

Sincerely,

Addy

Have a question? Click HERE. Your name will be changed in the response.

HFA frequently receives questions from the bleeding disorders community related to advocacy issues. The questions often impact the entire community. In an effort to reach the largest audience possible with our responses to these widely applicable questions, HFA developed “Dear Addy.” Questions submitted to this column are edited in order to protect privacy and should be considered educational only, not individual guidance

 

 

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