Dear Addy,

I鈥檝e been sharing HFA鈥檚 Facts a Day about Bleeding Disorders Awareness Month, but I want to do more. How can I help raise awareness about bleeding disorders?


Ready to Activate

Dear Ready to Activate,

It鈥檚 wonderful to hear that you are motivated to help spread the word about bleeding disorders! As a rare chronic disorder population, it鈥檚 important that we raise our voices and make others aware.

There are lots of ways you can get involved:

  • HFA has put together an advocacy calendar for the month and is sharing tips for how you can make advocacy a part of your regular routine. Be sure to look for those each day on HFA鈥檚 Facebook and Twitter feeds.
  • Contact your local media outlet and ask if they鈥檒l do a piece on bleeding disorders, what鈥檚 happening in the community, and why this month is important to you.
  • Want to be a stronger advocate? Volunteer!聽Contact聽your local bleeding disorders organization and learn about opportunities that fit your schedule and interests.
  • Wear some bleeding disorders awareness gear. You will be surprised how many people ask you to tell them more.
  • Ask your elected officials to attend a local event to meet community members and learn more about bleeding disorders.
  • Stay informed and share updates from HFA鈥檚聽Word From Washington聽(breaking policy news), and聽Washington Wire聽(monthly email roundup of the top issues)

But even when March ends, you can still raise awareness for bleeding disorders all year long. Stay involved all year long!



Have a question? Click聽HERE. Your name will be changed in the response.

HFA frequently receives questions from the bleeding disorders community related to advocacy issues. The questions often impact the entire community. In an effort to reach the largest audience possible with our responses to these widely applicable questions, HFA developed 鈥淒ear Addy.鈥 Questions submitted to this column are edited in order to protect privacy and should be considered educational only, not individual guidance



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