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COVID-19 RESOURCES
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STATEMENTS AND UPDATES

During this time of rapidly-changing news surrounding the COVID-19 outbreak, HFA will continue to publish updates and information about COVID-19 and its effects on the bleeding disorders community.

MEDICAL NEWS
Updates on medical information and statements affecting patients:

INDUSTRY NEWS & PRODUCT AVAILABILITY
Updates on how COVID-19 is impacting companies and the products they produce to treat bleeding disorders:

NATIONAL, GOVERNMENT AND LOCAL NEWS
Updates on operations and services of organizations serving the bleeding disorders community:


RESOURCES

FAQ: BLEEDING DISORDERS AND COVID-19

HFA has created a Frequently Asked Questions site to answer some questions we have heard from community members.

Visit FAQ Webpage

PATIENT CARE AND PRODUCT AVAILABILITY CONCERNS

We have heard concerns within the bleeding disorders community about access to care and the availability of products and services during the ongoing coronavirus emergency. We hear your concerns! Please know that we are meeting with pharmaceutical companies, specialty pharmacies and HTC providers to discuss how to maintain uninterrupted access to care, and we will let you know what we learn. In the meantime, we want to hear from you if you have any issues accessing your products or care, via the Patient Voice inbox. We commit to continue to provide you with as much information on as timely a basis as possible.

CONTACT PATIENT VOICE

INSURANCE COVERAGE CONCERNS AND UNANSWERED QUESTIONS

As a community, we know how important it is for people with bleeding disorders to maintain comprehensive health insurance. Amid the uncertainty of the ongoing coronavirus emergency, we want to remind you that insurance options exist even for those who may be facing job or other economic impacts.

    • You may be eligible for Medicaid if you meet the income eligibility criteria based on your current monthly income, and if you live in one of the 37 states that have expanded their Medicaid programs to cover all low-income adults.
    • Open enrollment is available for Medicaid and for CHIP year-round, for individuals and families who meet their state’s age, income, and other eligibility criteria.
    • If you had health insurance through your job, or a family member’s job, and you lose that insurance (e.g. through unemployment, a job change, loss of hours, etc.), you may become eligible for a special enrollment period: an opportunity to buy health insurance through healthcare.gov.
    • If you purchase a new insurance plan on the individual market, stay away from skimpy options (e.g., short-term health plans, Farm Bureau, or health sharing ministry plans) that do not meet ACA consumer protection standards and will not provide adequate coverage for your bleeding disorder.

For additional coverage options for those without job-based coverage, download this handout:

Your national organizations are here to help. Please contact us if you have questions about how to navigate coverage issues.

Contact Us

MENTAL WELLNESS
Below are resources for the bleeding disorders community to connect about mental health and wellness:

FINANCIAL ASSISTANCE

URGENT HOUSEHOLD BILLS

HFA Helping Hands continues to serve the most vulnerable in our community as always. The eligibility requirements and process to apply for assistance can be found on our website. If we receive requests for needs which do not fall within the scope of our program, we will direct inquirers to appropriate alternative resources including those found on our Patient Assistance Portal.

Learn About Helping Hands

FOOD/NUTRITIONAL NEEDS

UNEMPLOYMENT BENEFITS

  • The federal government is allowing states to change their laws to provide unemployment insurance benefits related to the coronavirus (COVID-19). There may soon be additional benefits available for workers impacted by coronavirus. Contact your state’s unemployment insurance program to learn about and apply for unemployment insurance.

FAMILY/PARENT/EDUCATION RESOURCES

Addressing Family Needs
Information and Educational Resources for Parents

NATIONAL, GOVERNMENT AND OTHER PATIENT LINKS


OTHER INFORMATION

WHAT WE KNOW

Terminology: The novel virus has been named “SARS-CoV-2” and the disease it causes has been named coronavirus disease 2019 or “COVID-19.” We recommend The New York Times’ article on this topic, which provides an overview about what we know about the virus and COVID-19. Let science, data, government agencies, and credible news sources be your resources during this time. Inflammatory posts on social media will only worry you more. Stay calm and educate yourself.

WHAT CAN YOU DO NOW?

Everyone should take the following routine precautions to safeguard themselves from all germs and viruses.

Take Precautions
  • Physical distancing, as recommended by the CDC and other health organizations.
  • Avoid contact with sick people
  • Avoid touching your eyes, nose, or mouth with unwashed hands
  • Clean your hands often by washing them with soap and water for at least 20 seconds or using an alcohol-based hand sanitizer that contains 60%–95% alcohol. Soap and water should be used if hands are visibly dirty. It is especially important to clean hands after going to the bathroom; before eating; and after coughing, sneezing or blowing your nose.
Household Preparedness

It’s important for all households to be prepared for an emergency of any kind, but even more so for someone with a bleeding disorder.  The U.S. Centers for Disease Control and Prevention have published helpful interim guidance on how to “Get your Household Ready for Coronavirus Disease 2019 (COVID-19).” Among other things, the CDC recommends creating a household plan of action; practicing good personal health habits; and planning ahead for potential temporary disruptions to school and workplace operations.

THINK YOU MAY HAVE CORONAVIRUS (COVID-19)?

Call ahead to a healthcare professional if you develop a fever1 and symptoms of respiratory illness, such as cough or difficulty breathing, and have been in close contact2 with a person known to have COVID-19 or if you live in or have recently traveled to an area with ongoing spread. Tell your healthcare professional about your recent travel or contact. Your healthcare professional will work with your state’s public health department and the CDC to determine if you need to be tested for COVID-19. The CDC’s website is the best source for information on this subject.

 

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