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During this time of rapidly-changing news surrounding the COVID-19 outbreak, HFA will continue to publish updates and information about COVID-19 and its effects on the bleeding disorders community.

Updates on medical information and statements affecting patients:

Updates on how COVID-19 is impacting companies and the products they produce to treat bleeding disorders:

Updates on operations and services of organizations serving the bleeding disorders community:



HFA has created a Frequently Asked Questions site to answer some questions we have heard from community members.

Visit FAQ Webpage


We have heard concerns within the bleeding disorders community about access to care and the availability of products and services during the ongoing coronavirus emergency. We hear your concerns! Please know that we are meeting with pharmaceutical companies, specialty pharmacies and HTC providers to discuss how to maintain uninterrupted access to care, and we will let you know what we learn. In the meantime, we want to hear from you if you have any issues accessing your products or care, via the Patient Voice inbox. We commit to continue to provide you with as much information on as timely a basis as possible.



As a community, we know how important it is for people with bleeding disorders to maintain comprehensive health insurance. Amid the uncertainty of the ongoing coronavirus emergency, we want to remind you that insurance options exist even for those who may be facing job or other economic impacts.

    • You may be eligible for Medicaid if you meet the income eligibility criteria based on your current monthly income, and if you live in one of the 37 states that have expanded their Medicaid programs to cover all low-income adults.
    • Open enrollment is available for Medicaid and for CHIP year-round, for individuals and families who meet their state’s age, income, and other eligibility criteria.
    • If you had health insurance through your job, or a family member’s job, and you lose that insurance (e.g. through unemployment, a job change, loss of hours, etc.), you may become eligible for a special enrollment period: an opportunity to buy health insurance through
    • If you purchase a new insurance plan on the individual market, stay away from skimpy options (e.g., short-term health plans, Farm Bureau, or health sharing ministry plans) that do not meet ACA consumer protection standards and will not provide adequate coverage for your bleeding disorder.

For additional coverage options for those without job-based coverage, download these handouts:

Your national organizations are here to help. Please contact us if you have questions about how to navigate coverage issues.

Contact Us


Moments when the community is scared and vulnerable can be times when scammers may come out in full force. Follow these tips to protecting yourself from fraud during COVID-19.

Watch our short video on protecting yourself from fraud:


Below are resources for the bleeding disorders community to connect about mental health and wellness:

  • Weathering the Storm by Headspace Mobile App
  • HFA’s Mental Health Handout
  • If you are currently in crisis:
    • Text “Home” to 741741 to reach the Crisis Text Line
    • Call (800) 273-8255 for the National Suicide Prevention Lifeline. Prevención del suicidio en Español: (888) 628-9454
    • Call (800) 662-HELP for a referral to local treatment facilities, support groups, and community organizations for mental health and substance use disorders (Español disponible)
  • HFA’s Crisis Hotline ‘Print and Save’ Resource



As COVID-19 threatens the livelihood of families in the bleeding disorders community, HFA has responded by creating an HFA COVID-19 Relief Fund as a restricted fund within the Helping Hands program. We are providing rapid financial relief for bleeding disorders families who are facing a significant loss of income due to COVID-19 and are unable to pay an essential household bill. Referrals can be made by a health care professional, social worker, bleeding disorder organization rep, or pharmacy/homecare rep.


HFA Helping Hands continues to serve our community through Emergency Assistance, Items Assistance, and Inhibitor Support programs. The eligibility requirements and process to apply for those programs can be found on our website. If we receive requests for needs which do not fall within the scope of our program, we will direct inquirers to appropriate alternative resources including those below and on our Patient Assistance Portal.


Other Urgent Household Bills Resources:

  • Patient Advocation Foundation COVID Care has case managers who provide patients with chronic disease impacted by COVID-19 with information and education about accessing and paying for care, managing basic cost of living needs like food, rent and mortgage, utilities, insurance, and necessary transportation costs that have become difficult to manage due to the pandemic. Call 1-800-532-5274 Option “0” or request help through an online intake at
  • Patient Services Inc. (PSI) has launched a COVID-19 emergency assistance program for current and active PSI patients. Patients must meet income requirements and have a member of the household diagnosed with COVID-19 and/or suffered a job loss/reduction in work due to COVID-19. Eligible patients may receive a one-time grant for $500.
  • The Patient Assistance Network Foundation launched a new COVID-19 Treatment and Prevention Fund to provide $300 of direct financial relief to qualifying Medicare beneficiaries with cancer, chronic or rare diseases who have also been diagnosed with COVID-19 or asked to self-quarantine by their healthcare provider or a government agency. See if you qualify for the PAN Foundation COVID-19 Treatment and Prevention Fund here.
  • National Organization for Rare Disease’s COVID-19 Rare Disease Critical Needs Non-Medical Assistance Fund
    • Helps rare disease patients with up to $1000 financial assistance for utilities, phone, cell phone, internet; emergency repairs to car, furnace, home or major appliances; assistance with travel and/or lodging logistics and expenses; rent or mortgage; or support for adaptive learning during school closures.
    • Patients must have a confirmed rare disease diagnosis
    • US citizens or provide documentation of permanent US residency status; or resident of the United States for at least six months.
    • Applicants must meet financial eligibility criteria (at or below 400% of the Federal Poverty Level guidelines (FPL) or demonstrate financial impact/mitigating circumstances due to the COVID-19 pandemic

    Call (203) 242.0497 or email with your full name, phone number and rare disease diagnosis. Espanol available.

  • Though the March 2020 CARES Act eviction protection has expired and only some states have extended renter protections, the Center for Disease Control (CDC) announced a national ban on evictions through December 31 for people who lost work during the pandemic and do not have other good housing options. You can see the official language on this website. To invoke the order, the people on the lease have to provide the landlord with a signed copy of this declaration, which includes several statements you need to attest to. If you need assistance with your right to remain in housing, find a legal aid organization near you.
  • Service by United Way: Call 2-1-1 or visit to find local agencies who can help with food, bills and other needs.
  • Visit and enter your ZIP code to browse a list of services and programs.
  • The National Low Income Housing Coalition has created an interactive map that highlights rental assistance programs across the states that support families impacted by the pandemic. You can use the map and the searchable database to find emergency rental assistance programs near you.
  • This article published on Nolo provides information on eviction moratoriums and tenant protections due to the pandemic. Visit this page to see the latest information on COVID-19-related tenant protections by state.
  • HFA’s Patient Assistance Portal
  • See coronavirus news and guidance from the Food and Nutrition Service from the U.S. Government
  • The March 2020 CARES Act suspends time limits on federal food assistance (“SNAP”) for unemployed childless adults between the ages of 18 and 49, and allows states to suspend work requirements imposed on SNAP beneficiaries.
  • Related articles:  Investopedia Coronavirus Mortgage Relief, NPR What To Do If You Can’t Pay Your Rent  and NPR Despite A New Federal Ban, Many Renters Are Still Getting Evicted




  • Unemployment Insurance is administered jointly by the U.S. Department of Labor and individual states. In March 2020 new federal law greatly expanded unemployment insurance benefits to include self-employed and gig workers and to provide an extra $600 per week and additional 13 weeks of benefits above what your state mandates.
  • For the most recent updates about federal unemployment benefits and how to apply for  benefits see this webpage from the U.S. Department of Labor.
  • For guidance on workplace safety, wages, and leave, see the Department of Labor Coronavirus page.


  • Depending on your income level, you may receive an automatic direct cash payment from the federal government of up to $1,200 per individual, $2,400 per couple, and $500 per child under the age of 17. The government expects to begin sending out payments in April.
  • You do not need to apply to receive a payment though you may need to have filed a 2018 or 2019 tax return.
  • Advice from the Chair of the Senate Finance Committee: “The best way to ensure you receive a recovery rebate is to file a 2019 tax return if you have not already done so. This could be accomplished for free online from home using the IRS Free file program.”


NORD’s COVID-19 Rare Disease Premium and Medical Assistance ProgramCall (203) 242.0497 or email with your full name, phone number and rare disease diagnosis. Espanol available. Provides financial assistance for certain out-of-pocket costs associated with patient’s health insurance premiums and/or provides eligible uninsured and under-insured patients with financial support for out-of-pocket medical expenses limited to:

  • Medical visits and telehealth consults
  • Laboratory and diagnostic testing
  • Physical and/or occupational therapy and/or other physician prescribed therapy
  • Durable medical equipment
  • Medical supplies (tube feeding supplies, dressing kits, personal protective equipment)

The Assistance Fund (TAF) COVID-19 Health Insurance Assistance Program provides grants up to $2,500 for health insurance for the remainder of 2020. Recipients who have experienced a disruption in their health insurance coverage due to a COVID-19 related job loss.

  • Applicants required to submit verification that they have lost insurance, purchased new insurance or are paying for a continuation of their previous insurance, and proof of economic hardship.
  • Applicants must have been actively enrolled or have been enrolled in a TAF copay program in 2020; you must have filed a claim in 2020; and must not be currently enrolled in a TAF financial assistance program. See additional details and apply on the website 







Terminology: The novel virus has been named “SARS-CoV-2” and the disease it causes has been named coronavirus disease 2019 or “COVID-19.” We recommend The New York Times’ article on this topic, which provides an overview about what we know about the virus and COVID-19. Let science, data, government agencies, and credible news sources be your resources during this time. Inflammatory posts on social media will only worry you more. Stay calm and educate yourself.


Everyone should take the following routine precautions to safeguard themselves from all germs and viruses.

Take Precautions
  • Physical distancing, as recommended by the CDC and other health organizations.
  • Avoid contact with sick people
  • Avoid touching your eyes, nose, or mouth with unwashed hands
  • Clean your hands often by washing them with soap and water for at least 20 seconds or using an alcohol-based hand sanitizer that contains 60%–95% alcohol. Soap and water should be used if hands are visibly dirty. It is especially important to clean hands after going to the bathroom; before eating; and after coughing, sneezing or blowing your nose.
Household Preparedness

It’s important for all households to be prepared for an emergency of any kind, but even more so for someone with a bleeding disorder.  The U.S. Centers for Disease Control and Prevention have published helpful interim guidance on how to “Get your Household Ready for Coronavirus Disease 2019 (COVID-19).” Among other things, the CDC recommends creating a household plan of action; practicing good personal health habits; and planning ahead for potential temporary disruptions to school and workplace operations.


Call ahead to a healthcare professional if you develop a fever1 and symptoms of respiratory illness, such as cough or difficulty breathing, and have been in close contact2 with a person known to have COVID-19 or if you live in or have recently traveled to an area with ongoing spread. Tell your healthcare professional about your recent travel or contact. Your healthcare professional will work with your state’s public health department and the CDC to determine if you need to be tested for COVID-19. The CDC’s website is the best source for information on this subject.

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