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A Closer Look at Hemophilia Management: Improving Outcomes with Personalized Care is now available On-Demand. The RareDisease Live video education session was presented by National Organization for Rare Disorders, Inc. (NORD) in partnership with Hemophilia Federation of America and the National Hemophilia Foundation in June 2020.

Hemophilia A, also called factor VIII (FVIII) deficiency or classic hemophilia, is a genetic disorder caused by missing or defective factor VIII, a clotting protein. This means that the blood does not clot normally. When blood cannot clot properly, excessive bleeding (external and internal) occurs after any injury or damage.

Patients and their families are seeking clarity of a treatment plan, given the complexity of management for severe hemophilia. For patients and their families, adherence to a multi-faceted treatment plan is oftentimes very difficult, resulting in less than optimal symptom management. This interactive, expert-led HCP-patient-family education activity includes questions that patients and families have regarding their treatment and overall care, tips for working with the health care team, and helpful strategies that other families have employed to address day-to-day challenges.

Watch this educational session to hear a dialogue between a pediatric specialist with expertise in hemophilia, an advanced practice provider, an HFA patient advocate, and parent of a child with hemophilia.

This activity is supported by an educational grant from Genentech, a member of the Roche Group. 

 

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