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Your story can impact the entire community!

When you share your story, Hemophilia Federation of America is able to create better programs and services to support the needs of the bleeding disorders community and make positive change through advocacy and policy efforts. Below are the community surveys currently open:

Are You a Woman with Hemophilia A, B or vWD?

With so many new and emerging treatments introduced in recent years, it can get confusing. If you have been diagnosed with hemophilia A or B, we would like to know more about your knowledge of gene therapy and the latest treatments available, and how you discover what is on the horizon for your treatment.

Take HFA’s Women’s Survey

Do You Have Hemophilia A or B?

With so many new and emerging treatments introduced in recent years, it can get confusing. If you have been diagnosed with hemophilia A or B, we would like to know more about your knowledge of gene therapy and the latest treatments available, and how you discover what is on the horizon for your treatment.

Take HFA’s Gene Therapy Survey

HFA’s Health Disparities Survey

It is crucial we understand your experiences with inequities within bleeding disorders and the impact of health disparities have had on your life. Your responses will have a profound impact on our work in this area.

Take HFA鈥檚 Health Disparities Survey

HFA-NHF COVID-19 Survey

We have partnered with NHF to assess the impact of COVID-19 on the mental health of people in our community. Help us understand how you are dealing with COVID-19, what we can do support you, and how our results compare to those of the UK and Germany.

Take the COVID-19 Survey


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