COVID-19 Resources and Updates

WFH Announces COVID-19 Vaccination Guidance for People with Bleeding Disorders

COVID-19 Relief Fund: When COVID-19 threatened the livelihood of our bleeding disorders community, HFA responded by creating an HFA COVID-19 Relief Fund as a restricted fund within the Helping Hands program. We are providing rapid financial relief for bleeding disorders families who are facing a significant loss of income due to COVID-19 and are unable to pay an essential household bill. Referrals must be made by a health care professional, social worker, bleeding disorder organization rep, or pharmacy/home care rep.

HFA Helping Hands: HFA offers Emergency Assistance, Items Assistance and Inhibitor Support for eligible individuals. If we receive requests for needs that do not meet eligibility requirement, we will direct inquirers to our Patient Assistance Portal.

• Patient Advocation Foundation: COVID Care Resource Center
• Patient Assistance Network Foundation: COVID-19 Support Fund
• National Organization for Rare Diseases
• The Assistance Fund: COVID-19 Health Insurance Assistance Program
• Rent Relief updates
• United Way’s 211.org: Find local agencies who can help with food, bills and other needs.
• AuntBertha.org: Enter your ZIP code to browse a list of services and programs.

• Find out if you are eligible for SNAP (Supplemental Nutrition Assistance Program)
• USDA Food and Nutrition Service
• Find your local food banks at Feeding America
• Find budget-friendly, healthy recipes at Hunger + Health

• Learn more about unemployment benefits in your state
• For guidance on workplace safety, wages and leave, see the Department of Labor Coronavirus page.

Review Your Health Coverage

Contact us if you have questions about navigating coverage issues.

• HFA’s Mental Health Check-in Video Series: Practicing Self-Care
• HFA’s Mental Health Check-in Video Series: Accessing Mental Health Services
• HFA’s Mental Health Check-in Video Series: 5-4-3-2-1 Grounding Techniques
• HFA’s Mental Health Check-in Video Series: Cultivating a Gratitude Practice
• HFA’s Mental Health Check-in Video Series: Five Ways to Support Your Mental Health
• The CDC Offers Insight into Coping During COVID-19
• Crisis Text Line Toolkit, Especially for Frontline Workers, Nurses or HTCs
• Coping with Stress by the World Health Organization (WHO)
• Advice for Chronic Illness Patients — Preventing Loneliness
• HFA Webinar Recording: Let’s Talk Mental Health in Times of Crisis
• HFA’s Mental Health in Times of Crisis Handout
• Weathering the Storm by Headspace Mobile App
• HFA’s Mental Health Handout
• HFA’s Crisis Hotline ‘Print and Save’ Resource
• If you are currently in crisis:
  • Text “Home” to 741741 to reach the Crisis Text Line
  • Call (800) 273-8255 for the National Suicide Prevention Lifeline. Prevención del suicidio en Español: (888) 628-9454
  • Call (800) 662-HELP for a referral to local treatment facilities, support groups, and community organizations for mental health and substance use disorders (Español disponible)

• If you find yourself in a dangerous domestic situation while quarantined at home with your spouse, please reach out to the National Domestic Violence Hotline at (800) 799-SAFE (7233).
• If you or someone you know is aware of child abuse during quarantine, please visit the CDC’s Child Abuse Prevention website or PreventChildAbuse.org Resources and Information.
• HFA’s Be Prepared Toolkit
• HFA’s Emergency Room Toolkit
• HFA’s Nourishing the Couples Relationship Webinar
• HFA’s Coping with Sibling Issues Toolkit
• HFA’s Stop Sibling Quibbling Webinar
• A Whole New World: Parenting in a Pandemic — Newborns to Preschoolers
• A Whole New World: Parenting in a Pandemic — School-age Children
• A Whole New World: Parenting in a Pandemic — Adolescents, Teens and Young Adults
• The Conversation: Talking to Your Kids About COVID
• Free animated online lesson for kids on coronavirus
• Helping Kids Cope with COVID-19 Stress by National Association of School Psychologists
• Khan Academy — free courses for all grade levels to help kids master subjects and accelerate learning while at home.
• Adventure Academy — interactive gaming app with educational lessons.
• PBS Learning Media — provides free lesson plans, videos and games aligned with classroom standards.
• GreatMinds.org — online resources for parents and teachers for math, English language arts and science.
• HFA’s Dateline Federation Kids Corner “You Can Be a Superhero” coloring page

• The FDA is monitoring the impact of the outbreak on drug, biologics, and blood safety and supply. They include this information on its regularly updated coronavirus webpage.
• The FDA also has a webpage for questions for patients and caregivers.
• For updates about your local community, visit your state’s department of health website. For example, here is D.C.’s.
• For a worldwide view, visit the World Health Organization’s website.
• TheBody.com has information about COVID-19 and HIV.
• American Autoimmune Related Disease Association:COVID-19 & Autoimmune Disease
• HealthyWomen:  “Managing Your Coronavirus Anxiety: Advice from a Clinical Psychologist”
• Who Counts as Immunocompromised? A Guide for High-Risk Individuals
• International Federation on Aging:COVID-19 Resource Library 
• Mental Health America: Mental Health and COVID-19

• National Consumers League: Anti-Fraud information
• Download HFA’s Fraud Alert 1-Page Guide in English
• Download HFA’s Fraud Alert 1-Page Guide in Spanish

• Jan. 25, 2021 — HFA Hosts Forums in English and Spanish to Address COVID-19 Vaccine Questions for Bleeding Disorders
• Dec. 22, 2020 — World Federation of Hemophilia Announces COVID-19 Vaccination Guidance for People with Bleeding Disorders
• June 18,2020 — Racing Against Time, Medical Researchers, Life Science Companies and COVID-19 Survivors Launch National Campaign to Drive Blood Plasma Donation
• May 6, 2020 — Pfizer and BioNTech Dose First Participants in the COVID-19 Vaccine Development Program
• April 6, 2020 — Global Plasma Leaders Collaborate to Accelerate Development of Potential COVID-19 Hyperimmune Therapy
• March 30, 2020 — Supplemental MASAC Statement Regarding Home Delivery and Refill Under State Of Emergency Declaration
• March 27, 2020 — Diplomat Specialty Infusion Group Statement on COVID-19
• March 26, 2020 — NHF/HFA Your COVID-19 Questions Answered Webinar Recording
• March 22, 2020 — World Federation of Hemophilia COVID-19 Recommendations for Hemophilia Patients
• March 17,2020 — Plasma Protein Therapeutics Association Updated Statement on Coronavirus
• March 16, 2020 — Sanofi Looks to Leverage Previous SARS Vaccine Information to Develop COVID-19 Vaccine
• March 12, 2020 — HFA’s Coronavirus (2019-nCoV) Update #3
• March 5, 2020 — HFA’s Coronavirus (2019-nCoV) Update #2: MASAC Statement
• March 3, 2020 — National Hemophilia Foundation’s Medical and Scientific Advisory Committee (MASAC) published a letter to the community regarding the evolving coronavirus outbreak.
• Feb. 6, 2020 — HFA’s CORONAVIRUS (2019-nCoV) Outbreak Update

• Plasma Protein Therapeutics Association COVID-19 Resources Page
• May 18, 2020 — Novo Nordisk Notice on COVID-19, Rebinyn®, and Laboratory Assays
• April 27, 2020 — BioMarin Update on Clinic Trials During COVID-19
• April 24, 2020 — Takeda Expands Patient Assistance in U.S. During COVID-19
• April 16, 2020 — Genentech Notice on COVID-19, Hemlibra®, and Laboratory Assays
• April 9, 2020 — Bayer Letter on Product Availability During COVID-19
• April 2, 2020 — World Federation of Hemophilia Addresses COVID-19 Risks Specific to Bleeding Disorders Community
• March 31, 2020 — Takeda Announces Program Updates During COVID-19
• March 26, 2020 — Pfizer Pauses Recruitment of Studies
• March 26, 2020 — Spark Temporarily Suspends Suspends New Enrollment in Study
• March 26, 2020 — Octapharma USA Update on Coronavirus (COVID-19)
• March 21, 2020 — Hemlibra Supply During Coronavirus Update
• March 21, 2020 — Pfizer Hemophilia Product Availability Status
• March 20, 2020 — Takeda Guidance on Novel Coronavirus and Product Supply
• March 19, 2020 — BioMatrix Specialty Pharmacy Statement on Specialty Drug Availability
• March 17, 2020 — IXINITY Statement on Product Availability
• March 17, 2020 — Pfizer and BioNTech to Co-Develop Potential COVID-19 Vaccine
• March 16, 2020 — Grifols Update on Novel Coronavirus
• March 16, 2020 — Sanofi Does Not Anticipate Shortages for Patients Due to COVID-19 Situation
• March 16, 2020 — Novo Nordisk Letter to the Bleeding Disorders Community on COVID-19
• March 13, 2020 — CSL Behring Update on COVID-19
• March 5, 2020 — Bayer Statement on Availability of Factor VIII Products Amind 2019-NCoV (Novel Coronavirus)
• Feb. 28, 2020 — Community Statement on HEMLIBRA Supply amid 2019-nCoV (Novel Coronavirus)