Donate

In August, HFA鈥檚 Educational Webinar will focus on people with Inhibitors and people with Acquired Hemophilia. Did you know that if you have Acquired Hemophilia your body鈥檚 immune system forms antibodies against your own clotting factor? If you or your child has an inhibitor, your immune system forms antibodies against infused factor.

The reality of coping with an immune system response is a commonality in both of these challenging conditions.

Join us to learn the basics of Inhibitors 鈥 Who gets them, how, why, and what are the treatment options.

Tuesday, August 2nd

7:00 鈥 8:00 pm EST

Register Here

Additionally, learn about acquired hemophilia, how it is treated and who may be at risk.

Come and understand the differences and similarities between these two conditions.

This webinar will address the following:

  • Inhibitors 101
    • Causes, diagnosis, treatment options, available support
  • Acquired Hemophilia 101
    • Causes, diagnosis, treatment options, where to find more information and support
  • Similarities and differences between Inhibitors and Acquired Hemophilia
  • After the webinar presentation, there will be a short time for Q&A.

HFA is honored to partner with CHES to bring you this presentation.

Presenters will include Janet Brewer, founder of CHES and a person whose family has had to cope with inhibitors, and Dr. Bobby” Duc Q. Tran, MD, MSc, Hematologist

This is an opportunity for the bleeding disorders community to address the challenges unique to living with Inhibitors or Acquired Hemophilia

Our Speakers

Dr. 鈥淏obby鈥 Duc Q .Tran, MD, Msc 聽is an assistant professor in the Department of Hematology and Medical Oncology at the Emory University School of Medicine in Atlanta, Georgia. He is an adult hematologist in the HoG Center for Bleeding & Clotting Disorders of Emory. He received his medical degree from the University of South Carolina in Columbia. He completed a residency in internal medicine at the University of South Florida in Tampa where he also served as Chief Resident. He, then, completed a fellowship in hematology at Emory University.聽Dr. Tran serves as the Southeast Region Core Center Medical Director and is an active clinical researcher in the fields of hemophilia and bleeding disorders.

Janet Brewer Janet Brewer and Eric Lowe founded CHES (Comprehensive Health Education Services) in 2009 to provide support and services for those affected by inhibitors, given their own personal experience living with one. They continue to host the only national family camp and adult men’s retreat dedicated to those with an inhibitor. CHES supports the ultra rare bleeding disorder community through their One Drop: Rare Bleeding Disorder Summit and women with coagulation disorders program, LadyBugs.聽 Their programs have offered participants opportunities to participate in studies for phenotyping and MSKUS.聽 LifeLines for Health, a biannual publication produced by CHES provides resources and information to the bleeding disorder community. As a retired elementary special education teacher and mother of 3 children, all affected by hemophilia A, Janet has spent a lifetime advocating and creating inclusive, intimate learning environments that facilitate safe spaces for community growth, independence, resiliency and acceptance.


Sign up for E-mails, Dateline Magazine, and other ways to stay connected.