Donate

Too often our bleeding disorders community becomes segmented. While we all either have a bleeding disorder, or have loved ones with a bleeding disorder, there are many diverse life experiences that make up our world. Join HFA and a panel of bleeding disorders community members to hear uplifting stories, share common experiences, and to weave together the fabric of our corner of the world. Come prepared to interact with panelists through phone, computer, or tablet. We are all bonded by more than blood!

Day: July 14, 2022

Time:聽7:00 PM EST

Register Today

Debbie de la Riva | Facilitator

Debbie is the Founder of Mental Health Matters Too which strives to raise awareness of mental health issues in the bleeding disorders community, normalize the conversation about it and help others find resources for care. Debbie has been an active volunteer in the community for the past 24 years serving as a member of various NHF’s committees such a the Prevention Program, First Step, Steps for Living, Annual Meeting Planning and served as a member of the HFA Board of Directors. She is a licensed professional counselor and a certified Mental Health First Aid Instructor. She lives in Houston Texas and has a son with severe hemophilia.

Jonah “Andy” Anderson | Panelist

Jonah 鈥淎ndy鈥 Anderson (they/he) is an educator based in Ithaca, NY, where they work in student life. They studied Anthropology at the Ohio State University and have worked in distance learning, rare disease education and advocacy, and as a teacher of English as a second language. Between 2018-2019, Andy worked with Hemophilia Federation of America to curate an exhibit on the history of bleeding disorders. They were also recognized as a 2020 Jewish Federations of North America Changemakers Fellow. They are interested in LGBTQIA+ competent healthcare, the intersection of spirituality and medicine, and the outdoors.

Mark Borreliz, JD | Panelist

Mark Borreliz (he/him/his) is a lawyer with severe hemophilia A who lives with his wife Ellen in eastern Massachusetts. He practiced in Boston as a health care regulatory attorney for forty years before his recent retirement. Mark contracted HIV and hepatitis C from blood products infused in the 1980s and considers himself extremely fortunate to have seen his son and daughter grow to adulthood. His activities in the bleeding disorders community have included service at various times on the boards of the New England Hemophilia Association and the National Hemophilia Foundation, as well as on the consumer advisory board and operational advisory board of his HTC.

Adetoun Adewoye (Addie) | Panelist

Adetoun Adewoye (Addie) is originally from Nigeria and now resides in Alpharetta, Georgia. She is the mother ofa five-year-old son. Addie’s first bleeding disorder diagnosis came in 2020. She has von Willebrand disease severe type 2B.


Sign up for E-mails, Dateline Magazine, and other ways to stay connected.