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Health Care Coverage

HFA ‘Champion Award’ Given to 4 Members of Congress

June 19, 2014

On June 18, 2014, we hosted a successful Hill Day in Washington, DC聽alongside an online Virtual Hill Day聽to gain support for bill HR 460, The Patients鈥 Access to Treatment Act聽in the US Senate, and other issues like聽the ability for third-party non-profits to help make payments on behalf of patients, and funding for the Centers for […]

Dear Addy: Small Business Health Options Program (SHOP)

May 26, 2014

Dear Addy, I am a small business owner with fewer than 25 employees and I have a child with hemophilia. The private insurance I provide my employees has gotten very expensive. I don鈥檛 know if I can afford it any more. Can you let me know what options I have? I don鈥檛 want to stop […]

Stop CMS from Blocking Patients from Accessing Health Insurance

May 12, 2014

The Issue: CMS has released an interim final rule, Patient Protection and Affordable Care Act; Third Party Payment of Qualified Health Plan Premiums (CMS鈥9943–IFC). This proposed rule defines criteria for health insurance providers in the federal marketplace to accept third party premium assistance from specific entities: 鈥 Ryan White HIV/AIDS program; 鈥 Specific Federal and […]

Dear Addy: Lifetime Caps vs. Annual Caps

April 20, 2014

                Dear Addy, I know 鈥淥bamacare鈥 eliminated lifetime caps on January 1, 2014, but are there still annual caps on healthcare costs? Capped-Out __________________________________ Dear Capped-Out, Happily the answer is no, as of January 1, 2014. Actually, it was on September 23, 2010, that the Affordable Care Act […]

Dear Addy: Individual Mandate

January 27, 2014

Dear Addy, My daughter with von Willebrand disease has health insurance but I don鈥檛 have health insurance for myself. What will happen if I decide not to purchase any? Coverage Unsure ____________________________ Dear Unsure, The deadline to purchase insurance without facing a penalty is March 31, 2014. Because of the individual mandate under the Affordable […]

Dear Addy: Washington Days

January 13, 2014

                Dear Addy, I am going to NHF鈥檚 Washington Days and I have an opportunity to speak with my Congress person about hemophilia issues. I am worried I don鈥檛 know enough and that my Congress person will not take me seriously. How do I prepare for this meeting? […]

Dear Addy: Pre-Existing Condition Insurance Plan

December 9, 2013

Dear Addy, I have a young child with substantial medical costs. For the past couple of years I have spent 20-40% of my income on medical bills. Unfortunately my income is “too high” for Medicaid. I live in Texas and I currently have PCIP (pre-existing condition insurance plan) insurance which ends this month. What do […]

Dear Addy: Open Enrollment

November 26, 2013

Dear Addy, It is open health insurance enrollment time for my company. Do I still have to worry about qualifying for coverage because I have a pre-existing condition? Open Enrollment Jitters in Minnesota ___________________________ Dear Jitters, The cold in Minnesota should make you shake more than the issue of pre-existing conditions in 2014. Starting in […]

Are You Prepared for the Healthcare Insurance Marketplace?

November 11, 2013

The countdown to the launch of the new online Health Insurance Marketplace is on. Are you ready? If you, like many Americans, have questions about what the Marketplace is and what it does, there are excellent resources available to help answer these questions. Here are some of the most frequently asked questions: 鈥淭he Marketplace鈥 The […]

Dear Addy: Individual Mandate

September 16, 2013

Dear Addy, I just turned 27 and have lots of debt. Instead of purchasing health insurance, I would rather use the money I make to pay down what I owe. I have mild hemophilia and I have not had a bleed in a year. Do I still need to have health insurance under the new […]

Physician Payment Sunshine Act Sheds Light on Payments Made to Doctors

September 16, 2013

A little-discussed provision of the Affordable Care Act is making physicians, hospitals and manufacturers in the health care industry reconsider how they do business.聽 The Physician Payment Sunshine Act requires certain drug, medical device and biological manufacturers to disclose to the聽Centers for Medicare & Medicaid Services (CMS)聽any payments or other transfers of value to physicians […]

Essential Health Benefits: What are they and who decides?

August 26, 2013

As we have discussed in previous posts, beginning in 2014, under the Affordable Care Act (ACA), Medicaid plans and small group and individual plans sold inside and outside of the Health Insurance Marketplace must cover a package of 10 categories of items and services known as Essential Health Benefits (EHBs).聽 These categories include: Ambulatory patient […]

Health Insurance Options in 2014

August 20, 2013

In a recent post, we discussed the insurance mandate itself.聽 That is, the requirement that most people have health insurance beginning in 2014 or face a financial penalty.聽 We also briefly mentioned the insurance options that will be available to you in order to fulfill this requirement.聽 They are鈥 Have employer-sponsored insurance Be covered by […]

Out of Pocket Maximums and the 2014 Transition Year

August 14, 2013

Beginning in 2014, the Affordable Care Act (ACA) will set maximum limits on how much consumers can be required to pay out-of-pocket annually for their health care.聽 Under the law, the maximum amount a consumer with single coverage will pay out-of-pocket will generally be $6,350, while a family could pay up to $12,700. In 2015, […]

Medicaid Expansion in Your State

April 18, 2013

聽 The Medicaid program is a federal and state partnership to provide health insurance for those who are financially and medically needy. It is a vital safety net in our health care system. Federal law sets a baseline of eligibility categories for states to follow, but states have the flexibility to cover above that baseline […]

The Wilkes Family, “Thanks ObamaCare”

April 9, 2012

My son Thomas was born in 2003. After his circumcision, he continued to bleed. Within a day, my husband Nathan and I were told that our newborn son had severe hemophilia, a genetic blood clotting disorder. A local hematologist was at our bedside within 30 minutes of us getting the call. She was there to […]

Advocacy Issues, Andy Mathews

August 20, 2011

Andy Matthews discusses advocacy issues that he feels are important.

A Hopeful Future

July 12, 2011

Ryan and EJ share their experiences growing up with hemophilia. The future of our community is hopeful with the advancements in care and support from others who understand!

Grounded In Reality: The Effects of Health Care Reform on Leland Smith

June 7, 2011

For some, the teenage years are the time to dream. But Leland Smith, who has severe hemophilia A, has always had to be firmly grounded in reality. “[Careers] like movie star or athlete aren’t even in the books,” he says wistfully. Leland’s hemophilia comes with a complication called an inhibitor: a resistance to the medication […]

Transitions: The Effects of Health Care Reform on Alex Ell

May 13, 2011

Twenty-three year old Alex Ell was diagnosed with hemophilia at birth.聽 Hemophilia is a rare genetic bleeding disorder that results in excessive bleeding, occurring spontaneously or as a result of an injury. 聽Bleeding episodes cause聽pain and damage to joints, muscles and organs.聽These episodes are treated聽with an聽intravenous infusion of blood clotting products to replace the missing […]

Much More Hopeful: The effects of Health Care Reform on the Dunham family

February 11, 2011

Health care reform is a controversial issue, but for families dealing with chronic medical conditions, there is no controversy.聽 For Jenni Dunham of Tennessee, whose husband Chris and son Jacob both have von Willebrand disease, the future has gotten “much more hopeful” since the reform. Jenni estimates that Jacob, now three, would have reached the […]

Watch Lisa Grasshoff’s HELP Committee Testimony

February 1, 2011

“Full Committee Hearing – The Affordable Care Act: The Impact of Health Insurance Reform on Health Care Consumers” Lisa Grasshoff’s testimony to the HELP(Health, Education, Labor and Pensions) Committee begins at minute 112:50. Watch Lisa’s testimony

A Little Bit of Relief

January 15, 2011

For parents of children with hemophilia, the future is a constant worry.聽 While this will always be the case, the recent healthcare reforms have provided a little bit of relief.聽 Heidi and Andrew Forrester from Washington are the parents of William, a two-year-old with severe hemophilia A.聽 While William was lucky enough to be covered […]

HFA President, Brayshaw Host President Obama in Backyard

September 25, 2010

Washington, DC:聽 President Barack Obama held a backyard discussion on healthcare reform at the home of Hemophilia Federation of America’s President, Mr. Paul Brayshaw.聽聽Paul, an individual with Hemophilia is a resident of Falls Church, VA. He聽opened the forum with a statement regarding the positive impact of the Affordable Care Act as it relates to individuals […]

Bleeding Disorders Family Meets President Obama

May 21, 2010

The Forbes family shares their story of visiting the Oval Office.


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