Donate

Advocacy News

What’s your question?

June 29, 2009

Obama wants to hear from you.  On Wednesday (July 1), Obama will answer questions submitted by people across the nation.  Do you have a question about health care reform?  Please submit your question (video, Facebook, Twitter, etc.) to the following link: http://www.whitehouse.gov/blog/A-National-Discussion-on-Health-Care-Reform/ KC

Congress wants to hear from you!

June 26, 2009

Congress breaks for recess beginning Monday, June 29 thru Friday, July 3 2009.  They are back in their home stated during this time.  It’s important that Congress hears from consumers.  The consumer perspective matters during such an important debate.  Decisions on reforming the health care system are happening now.  Please see the the Friday Update, dated June 26, 2009 […]

They Need to Hear From Us: Destiny

June 23, 2009

I learned that legislators do want to hear from me.

House Tri-Committees release a health care reform proposal

June 19, 2009

Today, the House Ways and Means, Energy and Commerce, and Education and Labor Committees’ released an 850-page health care reform proposal.  To read a summary, please visit the House Committee on Ways and Means website.

Gulliver’s Redux

June 14, 2009

Serving the bleeding disorders community as HFA’s Director of Public Policy for State Affairs means spending timing far flung corners of this country. It is an honor to come to your hometown and help actualize a grassroots political agenda that will serve the needs of the community.

Some days however; present greater challenges than others.

North Carolinians mount Raleigh effort for restored community supports

June 9, 2009

HNC mounted it second annual lobby day bring together several dozen consumers from across North Carolina to press lawmakers on several counts. Amongst the concerns presented by community members were recent changes

Healthcare Reform Happenings

May 31, 2009

Working through August recess is probably not appealing to our policy-makers. A few Republican Senators have jumped on the “let’s introduce healthcare reform legislation before June” bandwagon. Senators Tom Coburn, MD (R-OK) and Richard Burr (R-NC) and Congressman Paul Ryan (R-WI) and Devin Nunes (R-CA) have introduced health care reform legislation. The Patients’ Choice Act […]

HFA Road Show

May 27, 2009

The last couple of weeks have been exceptionally busy, I have found myself very much in a New York State of Mind. Special Kudos to Bob Fox, CEO and President of the Mary Gooley Hemophilia Treatment Center (Rochester, NY). Bob also serves as the New York Council on Bleeding Disorders, Bob took the point in […]

One is the loneliest number

May 20, 2009

(BRAINTREE, MA) As the fiscal year for the state’s winds down, we find 48 of the 50 states running budget deficits. Sole-sourcing continues to be an attractive way for state government to drive down its costs with respect to specialty pharmacy. Sole sourcing, sometimes called single sourcing, is the idea that by reducing the number […]

Money, Money, Money, Money…

May 14, 2009

In Maine, attempts to implement a dual source contract where two providers would service all Mainers enrolled in the state’s prescription plan “Dirigo Health.” Recent personnel changes at the Capitol in Augusta have thrown the current plan into limbo.

Yorkers on the watch against Tier IV

May 7, 2009

New York State Senators Tom Duane and Andrew Valesky have partnered to prohibit insurance carriers from charging an extra surcharge on co-pays for the most expensive medications and treatments, like factor concentrate. The bill which is still being reviewed at the committee level instructs the New York State Commissioner of Insurance


Sign up for E-mails, Dateline Magazine, and other ways to stay connected.