Hemophilia Federation of America is a national nonprofit organization that assists, educates and advocates for the bleeding disorders community.
By Matthew Perrone, AP Health Writer Associated Press -The Food and Drug Administration issued a positive review Wednesday for a highly anticipated hepatitis C drug from Gilead Sciences, saying the pill cures more patients in less time than currently available treatments. The agency posted its review of Gilead’s sofosbuvir online ahead of a meeting Friday where […]
AUGUSTA, Maine (Wall Street Journal) — The hunt for cheaper prescription drugs long has led consumers to reach beyond U.S. borders, but under a Maine law set to take effect Wednesday, their search now will have the state’s blessing. The law, the first of its kind, sanctions the direct purchase of mail-order drugs from some […]
Just a few decades ago, hemophilia did not just mean you had a bleeding disorder. It also meant that you were at high risk of being infected with blood-borne illnesses. Mark Antell knows this well. He received Hepatitis C through a blood transfusion sometime in the 60s or 70s. And the AIDS crisis of the […]
Chuck and Vicki talk about their family life with hemophilia.
John Reed inspires with his positive outlook on his life with hemophilia. John decided early on that he was not going to let hemophilia control his life, he was going to take control and live his life.
Mark created a Hemophilia Task Force group in Connecticut. This group had state legislators, national non-profit advocates, patients, and hemophilia doctors working together to ensure people with bleeding disorders in CT receive the best care possible. What are you waiting for?! YOU can make a difference in your state too!
Mark and Sasha give us a peek into their lives as a couple dealing with Hemophilia, HIV and hepatitis C. They discuss the importance of community and the value of support from people who understand.
Barry has hemophilia, HIV, and hepatitis C. Â He discusses the realities of being diagnosed HIV positive as a teenager and the many challenges he has faced throughout his life. Â Barry hopes by sharing his story he will empower others to share theirs.
The Long Mile by Barry Haarde Download Barry’s Story There was only one more hill to climb as I rounded the corner that brought the finish line into view. I had ridden my bicycle 175 miles since lining up at the starting point back in Houston the day before. After more than 10 hours on […]
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CONTACT HFA
999 N Capitol Street NE Suite 201
Washington, D.C. 20002
Phone: 202.675.6984
Toll Free:
Fax: 202.675.6983
Email: info@hemophiliafed.org
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