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Community Voices

Dear Addy: Traveling with a Bleeding Disorder

July 21, 2021

Dear Addy: As Covid becomes better managed, I鈥檓 looking to travel as the world opens back up. I鈥檓 a student, and I might even be applying to study abroad next spring. Either way I make plans, it鈥檚 going to be my first time travelling internationally as an adult; what should I do to prepare myself […]

Dear Addy: Healthcare Costs

May 24, 2021

Dear Addy, I heard that a new law was passed that may lower my costs for health insurance. How can I learn more? Sincerely, Frugal Fran  

Dear Addy: Rookie Advocate

April 22, 2021

 

COVID-19 Resources and Updates

April 8, 2021

Updates During this time of rapidly-changing news surrounding the COVID-19, HFA聽will publish information and resources about to assist our bleeding disorders community. Vaccinations HFA Financial Assistance Other Resources Fraud Alerts Medical, Industry and Product News  

Dear Addy: Diversity and Inclusion

February 18, 2021

Hemophilia Federation of America is excited to now offer video responses to Dear Addy questions. While the United States grapples with issues of聽diversity, equity and inclusion, and improvements have been made throughout the country, a community member inquired what HFA is doing to address diversity, equity and inclusion. Senior Manager of Policy and Advocacy, Kimberly […]

Dear Addy: Vexxed about Vaccines

February 4, 2021

Hemophilia Federation of America is excited to now offer video responses to Dear Addy questions. We recently had a community member ask for guidance on the COVID-19 vaccine. Kimberly Ramseur, HFA鈥檚 Senior Policy Manager, provides some more information.

Dear Addy: 2020 Election

December 21, 2020

Dear Addy, I鈥檓 seeing a lot about the 2020 Election results and it is all very confusing. Does HFA have a comprehensive resource that I can use to better understand the outcomes of this year鈥檚 election. Signed, Dear Constituent, Due to COVID-19, in some states the manner in which people voted may have changed to […]

Dear Addy: ACA for 2021

November 23, 2020

Dear Addy, I know that open enrollment for health insurance begins Nov. 1, 2020. At the same time, I鈥檓 hearing about a Supreme Court case that could overturn the Affordable Care Act (ACA)! As a person with a bleeding disorder, what should I do about health insurance for 2021? Signed, Anxious About Insurance Dear Anxious, […]

Dear Addy: Ready to Vote

October 21, 2020

Dear Addy, It鈥檚 been an extremely stressful year due to COVID-19. Elections are coming up fast and I鈥檓 not sure what steps I need to take to vote. Any help? Ready To Vote Dear Ready, I agree this year has presented a lot of new challenges for everyone and learning new ways to cope. As […]

Dear Addy: Eager Learner

October 1, 2020

  Dear Addy, One of my favorite things to do is to learn about different health policies and legislation that impacts people living with a bleeding disorder. Right now, I have been limited to only information I can find in my state and Congress. I would like to learn more about what goes on in […]

Mes de la Herencia Hispana 2020: Nutrici贸n

September 30, 2020

Mi relaci贸n con la hemofilia empez贸 muy temprano en mi vida. Conservo muchos recuerdos, episodios que aun hoy d铆a los tengo grabados en mi memoria. Me llega la imagen de mi padre (que ten铆a hemofilia severa A) acostado en una cama o sentado en una silla teniendo mucho dolor, sin poder caminar y a veces […]

Intern Introspective: Tameelah’s Podcast

September 18, 2020

  As a part of the HFA Policy and Government Education internship, the interns are tasked with creating a final capstone project encompassing what they have learned, culminating in the creation of advocacy and policy programming that is aimed at a young adult audience. The capstone is fully intern-driven, from concept to execution, with support […]

Intern Introspective: Will’s Reflections

September 7, 2020

  By Will Hubbert As sad as it is to write, my time as an intern at HFA has come to an end. I鈥檝e loved my time here, so I want to use this last reflection as an opportunity to thank my mentors and recommend the program. HFA鈥檚 internship is a truly amazing experience, and […]

2020 Award Recipients

August 29, 2020

Each year Hemophilia Federation of America honors the service of special individuals who have gone above and beyond in support of the bleeding disorders community. HFA鈥檚 2020 awards were presented during a virtual ceremony on Aug. 25, 2020. HFA celebrates these individuals: 聽聽聽聽聽聽聽聽聽聽聽聽聽聽 Watch the 2020 Awards Ceremony Here!

Former Board Chair Recognition, 2020 | Josh Hemann

August 26, 2020

Each year Hemophilia Federation of America honors the service of special individuals who have gone above and beyond in support of the bleeding disorders community. HFA鈥檚 2020 awards were presented during a virtual ceremony on Aug. 25, 2020. HFA celebrates these individuals. Josh Hemann Former Board Chair Recognition HFA recognizes former board chairs for their […]

Volunteer of the Year, 2020 | Tracy Cleghorn

August 26, 2020

Each year Hemophilia Federation of America honors the service of special individuals who have gone above and beyond in support of the bleeding disorders community. HFA鈥檚 2020 awards were presented during a virtual ceremony on Aug. 25, 2020. HFA celebrates these individuals. Tracy Cleghorn Volunteer of the Year The Staff at HFA looks forward to […]

Member Organization Spotlight Award, 2020 | Hemophilia of South Carolina, Sue Martin, Executive Director

August 26, 2020

Each year Hemophilia Federation of America honors the service of special individuals who have gone above and beyond in support of the bleeding disorders community. HFA鈥檚 2020 awards were presented during a virtual ceremony on Aug. 25, 2020. HFA celebrates these individuals. Hemophilia of South Carolina, Sue Martin, Executive Director Member Organization Spotlight Award HFA […]

Ron Neiderman Humanitarian Award, 2020 | Rich Pezzillo

August 26, 2020

Each year Hemophilia Federation of America honors the service of special individuals who have gone above and beyond in support of the bleeding disorders community. HFA鈥檚 2020 awards were presented during a virtual ceremony on Aug. 25, 2020. HFA celebrates these individuals. Rich Pezzillo Ron Neiderman Humanitarian Award This award is for extraordinary and inspirational […]

Special Service Recognition, 2020 | Laveane Lovelady

August 26, 2020

Each year Hemophilia Federation of America honors the service of special individuals who have gone above and beyond in support of the bleeding disorders community. HFA鈥檚 2020 awards were presented during a virtual ceremony on Aug. 25, 2020. HFA celebrates these individuals. Laveane Lovelady Special Service Recognition This award was chosen by HFA staff in […]

It Takes a Village Award, 2020 | Harvey Gates Sr.

August 26, 2020

Each year Hemophilia Federation of America honors the service of special individuals who have gone above and beyond in support of the bleeding disorders community. HFA鈥檚 2020 awards were presented during a virtual ceremony on Aug. 25, 2020. HFA celebrates these individuals. Harvey Gates Sr. It Takes a Village Award This award is provided to […]

Terry Lamb Health and Wellness Award, 2020 | Chris Bombardier

August 26, 2020

Each year Hemophilia Federation of America honors the service of special individuals who have gone above and beyond in support of the bleeding disorders community. HFA鈥檚 2020 awards were presented during a virtual ceremony on Aug. 25, 2020. HFA celebrates these individuals. Chris Bombardier Terry Lamb Health and Wellness Award This award is for exceptional […]

Charles Stanley Hamilton Legacy Award, 2020 | Carl Weixler

August 26, 2020

Each year Hemophilia Federation of America honors the service of special individuals who have gone above and beyond in support of the bleeding disorders community. HFA鈥檚 2020 awards were presented during a virtual ceremony on Aug. 25, 2020. HFA celebrates these individuals. Carl Weixler 2020 Charles Stanley Hamilton Legacy Award This award is for extraordinary […]

Dear Addy: Frantic Freshman

August 18, 2020

    Dear Addy, This will be my first year going off to college and I鈥檓 a little bit nervous about it. The prospect of traveling hundreds of miles away from home and my HTC was already daunting, and COVID has only made this big transition feel even bigger. What can I do to make […]

Intern Introspective: An Average Week

July 30, 2020

It鈥檚 hard to believe, but our summer interns are more than halfway through their time with us this summer. In this blog post Will and Tameelah give you an inside look into an average week in the life of an intern, and in Will鈥檚 words, 鈥渉opefully inspire some intrepid young person to apply for this […]

Dear Addy: Family Planner

July 21, 2020

Dear Addy, My high school sweetheart and I are in our senior year of college and recently began a conversation about life after school. Are there any resources for us to learn more about starting a family when you know you are a carrier or have a history of bleeding disorders in your family?聽 Signed, […]

Intern Introspective: Making Our Mark

July 6, 2020

Earlier this summer, we introduced you to Will and Tameelah, our summer Policy and Government Education interns. Both young adults have been active in their local bleeding disorders community and are passionate about keeping their peers involved. This week we asked Tameelah and Will to share how they want to make their mark in our […]

Intern Introspective: Meet Our 2020 Policy & Government Relations Interns

June 19, 2020

My name is Tameelah Dawson. I am 21 years old from Lexington, S.C., and currently a senior at Claflin University in Orangeburg, S.C., pursing a bachelor鈥檚 degree in psychology. I have been heavily active in the hemophilia community for well more than five years. I鈥檝e served as a junior board member for Hemophilia South Carolina […]

Dear Addy: Avid Advocate

June 16, 2020

Dear Addy, Each year, I travel to Washington, D.C., and my state capitol to meet with my legislators and members of Congress to discuss issues that are most important to the bleeding disorders community. Due to COVID-19, I have heard that in-person visits are no longer viable options. How can I make sure my voice […]

Dear Addy: Cautious to Proceed

May 20, 2020

Dear Addy- I recently learned I am eligible to receive an Economic Impact Payment or 鈥渟timulus check鈥. While I have not received any funds yet, I have received several voicemails stating that I am required by law to provide personal banking information, my social security number and pay a fee before I can receive any […]

Mental Health Awareness Campaign: Celebramos el mes de la Concientizaci贸n Salud Mental.

May 15, 2020

隆Salud Mental es para todos! Mayo es el mes de la concientizaci贸n de la salud mental. Este mes sirve para concientizar e informar a el mundo entero de los desaf铆os de salud mental. Tambi茅n, de los esfuerzos que se est谩n haciendo. Reconocemos, que estamos enfrentando un tiempo de aislamiento y encierro y que es muy […]


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