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Adult Men

Thousands of Families Observe World Hemophilia Day

April 17, 2014

Today (April 17th), 聽tens of thousands of families across our nation and around the world will聽recognize聽World Hemophilia Day to raise awareness of bleeding disorders. 鈥淲orld Hemophilia Day brings public awareness about bleeding disorders and encourages the development of improved treatment,鈥 said Kimberly Haugstad, Executive Director of Hemophilia Federation of America (HFA). 鈥淲orldwide, 1 in 1,000 […]

Bloomberg News: Merck Data a Potent Rival to Gilead鈥檚 Hepatitis C Pill

April 15, 2014

By: Drew Armstrong Merck & Co. (MRK)鈥檚 experimental hepatitis C pill produced clinical trial results positioning the drug as a strong competitor to a potential blockbuster therapy from Gilead Sciences Inc. (GILD) Merck鈥檚 two-drug combination once-a-day pill stopped the virus in 98 percent of newly treated patients with few major side effects, according to a […]

The Benefits of Martial Arts

April 11, 2014

When considering a physical activity for themselves or their family members with a bleeding disorder, many people overlook the possibility of martial arts. Martial arts can be defined as any of the traditional forms of Oriental self-defense or combat that utilize physical skill and coordination without weapons, such as karate, aikido, judo, or Kung Fu, […]

A Carrier Seen Through Her Father鈥檚 Eyes

April 9, 2014

Having hemophilia is an interesting challenge for an individual. Throughout my life, I have tried to learn as much as I could about this condition and find a way to overcome the adversities it often presents. I thought I had this thing down to a science, but I had no idea what to expect as […]

CDC Webinar: New Challenges in Hemophilia

April 8, 2014

On Thursday, April 3, 2014 the Centers for Disease (CDC) control hosted an informative and important webinar about new challenges facing the hemophilia community. If you missed it, take a look at Dr. Guy Young, Director of the Hemostasis and Thrombosis Center at Children’s Hospital Los Angeles, presentation slides聽about about the impact of: overweight and […]

Infusing Love: It’s All About the People

March 26, 2014

In 2008 my husband, two kiddos and I traveled to our first Hemophilia Federation of America (HFA) annual Symposium.聽 We had been to a couple of NHF meetings since the kids had been born but we did not know much about HFA.聽 Kim Bernstein, a truly talented community advocate, had been pushing me that I […]

NY Times: Progress Against Hepatitis C, a Sneaky Virus

February 26, 2014

Forty years ago, a beloved neighbor was bedridden for weeks at a time with a mysterious ailment. She knew only that it involved her liver and that she must never drink alcohol, which would make things worse. It was decades before the cause of these debilitating flare-ups was discovered: a viral infection at first called […]

Inhibitor Family Camp: Our Own Kind of Oz

December 20, 2013

What is Inhibitor Family Camp? Hemophilia Inhibitor Family Camp was founded in 2010 by聽Comprehensive Health Education Services (CHES), and is made possible through an educational grant provided by Novo Nordisk. There are currently two programs held annually, both take place at camps that are part of the Serious Fun Network (formerly known as The Hole […]

Keeping Their Memory Alive: World AIDS Day

December 1, 2013

Had I been the Matthew my mother was expecting to give birth to, my life would have been astronomically different. I was born right around the time the first factor concentrates to treat hemophilia were available for home use. Had I been born a male rather than a female, I probably would have been diagnosed […]

A 504 Plan Can Help Protect Your Child

November 19, 2013

I’m just like any other father when it’s time for my children to go back to school鈥攕o excited! All kidding aside, transitioning back to school can be difficult for everyone if you’re not prepared. When it comes to the extra challenges our kids with bleeding disorders face, the added stress can become an even larger […]

Developing Autonomy vs. Relying on Others

November 12, 2013

The transition from childhood to adulthood can be full of exciting opportunities to have new experiences and shape one鈥檚 own unique individuality. However, adulthood can also come with its own set of challenges, including decreased reliance on parents and taking important steps to reach personal life goals. For young adults living with bleeding disorders, additional […]

Community News: Blood Vibrations

October 29, 2013

              Community members Billy Conde Goldman and Matt Tache of Portland, Oregon recently launched Blood Vibrations, an ongoing project gathering music created by people in the bleeding disorders community. The goal of the project is to provide a forum for creativity, expression and sharing. Anyone with a bleeding disorder […]

CHOICE: Improving HFA Services for the Community

October 22, 2013

To all of you who have taken the time to participate in the CHOICE (Community Having Opportunity to Influence Care Equity) Project by taking the survey, thank you. For those who have yet to take the survey, please do (call 800-230-9797 or go to choice.hemophiliafed.org). CHOICE is about the bleeding disorders community and working with […]

Inhibitors Will Not Inhibit Our Family

October 10, 2013

I’m sitting and watching my son Blake play catch in the park with a friend. He runs for the ball and trips on a rock and lands in the dirt. I stay seated…and it’s really hard. I remind myself that we are in a different place now, but it’s still very hard. A year ago, […]

Infusing Love: Mom: On My Nerves, But Always Has My Back

August 28, 2013

One of the ways many moms have learned the most about raising a child with hemophilia is by talking with our community鈥檚 鈥淏lood Brothers,鈥 the guys who have grown up and moved away from home, whether they be in college or have grandchildren of their own.聽 These men are able to give it straight about […]

Hepatitis C: Our History and Advances on the Horizon

August 8, 2013

Recognizing National Hepatitis Awareness Month The month of May is recognized to bring awareness around those living with viral hepatitis. The awareness effort encourages people to get tested for hepatitis and to evaluate treatment options. According to the Centers for Disease Control and Prevention (CDC), an estimated 3.2 million people in the U.S. with chronic […]

Andy Matthews: Training Ground

January 21, 2012

Growing up with hemophilia, Andy Matthews was lucky enough to live across the street from a hematologist. The doctor told his parents the best thing they could do for Andy was give him cryoprecipitate treatments at home. Cryoprecipitate was an early version of today’s factor treatments, using human plasma to treat clotting disorders. Andy was […]

Martin Addie: An Advocator

January 21, 2012

I grew up in Wisconsin the sixth of 2 girls and 5 boys, and moved with my parents and younger brother to Houston, Missouri 聽in 1978 after graduating high school. My younger brother, myself and an adult nephew have severe hemophilia and my sisters are carriers. My wife Janeen celebrated our 30th anniversary in June […]

Gears For Good, Paul Brayshaw

January 12, 2012

HFA President Paul Brayshaw participated in the Gears For Good Bikeride 2011.聽 We interviewed him during the ride, check out what he has to say about growing up with severe hemophilia and staying active.

Step by Step Infusion, Produced by: Nicholas Reiser & Leland Smith

August 30, 2011

Nicholas Reiser explains the process of infusing himself with clotting factor. Nicholas Reiser and Leland Smith were both a part of HFA’s Young Leaders program at Symposium and are now a part of HFA’s Media Task Force.

Advocacy Issues, Andy Mathews

August 20, 2011

Andy Matthews discusses advocacy issues that he feels are important.

Given a Gift, Andy Matthews

August 16, 2011

Growing up with hemophilia is not always easy for Andy, but his positive attitude has always gotten him through the tough times. Andy looks at the life he has been given as a gift!

Full Fledged Boy, Terry Lamb

July 30, 2011

Having hemophilia doesn’t mean you or your child must live a sedentary life, cut off from all opportunities for fitness. Just ask Terry Lamb of Virgina, who is 59 years old and lifts weights six days a week. On his day off, he swims. When Terry was born, there was no such thing as prophylaxis […]

A Situation, Mark Antell

July 30, 2011

Just a few decades ago, hemophilia did not just mean you had a bleeding disorder. It also meant that you were at high risk of being infected with blood-borne illnesses. Mark Antell knows this well. He received Hepatitis C through a blood transfusion sometime in the 60s or 70s. And the AIDS crisis of the […]

Terry Lamb

July 2, 2011

Terry talks about growing up with hemophilia and how staying active has helped him live a wonderful life!

Living With Hepatitis C

July 1, 2011

Mark Antell talks candidly about his hemophilia and hepatitis C.

John Jarratt In Action

June 21, 2011

John Jarratt speaks to a group about growing up with hemophilia. This is a longer piece, so grab a cup of coffee and we promise you will gain some perspective from John’s wisdom!

The Importance of Comprehensive Care

June 3, 2011

Watch this video to understand why comprehensive care is vital for people in the hemophilia community to live a long, healthy life. You will hear from individuals who have directly been impacted by comprehensive care and an individual who works in one of the centers and has seen first hand the success of comprehensive care.

Martin Addie: Advancements In Treatment

May 27, 2011

Martin shares how the advancements in treatment for his severe hemophilia has affected his life. Martin went from missing 100 days of school his freshman year of high school to only missing聽 8 days his sophomore year because hemophilia medication was made available to use at home and he no longer had to go to […]

The Man and His Music: John Jarratt

May 17, 2011

John Jarratt is 63 years young! His positive attitude is contagious!


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