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Dear Addy Corner

Dear Addy: Traveling with a Bleeding Disorder

July 21, 2021

Dear Addy: As Covid becomes better managed, I鈥檓 looking to travel as the world opens back up. I鈥檓 a student, and I might even be applying to study abroad next spring. Either way I make plans, it鈥檚 going to be my first time travelling internationally as an adult; what should I do to prepare myself […]

Dear Addy: Healthcare Costs

May 24, 2021

Dear Addy, I heard that a new law was passed that may lower my costs for health insurance. How can I learn more? Sincerely, Frugal Fran  

Dear Addy: Rookie Advocate

April 22, 2021

 

Dear Addy: Diversity and Inclusion

February 18, 2021

Hemophilia Federation of America is excited to now offer video responses to Dear Addy questions. While the United States grapples with issues of聽diversity, equity and inclusion, and improvements have been made throughout the country, a community member inquired what HFA is doing to address diversity, equity and inclusion. Senior Manager of Policy and Advocacy, Kimberly […]

Dear Addy: Vexxed about Vaccines

February 4, 2021

Hemophilia Federation of America is excited to now offer video responses to Dear Addy questions. We recently had a community member ask for guidance on the COVID-19 vaccine. Kimberly Ramseur, HFA鈥檚 Senior Policy Manager, provides some more information.

Dear Addy: 2020 Election

December 21, 2020

Dear Addy, I鈥檓 seeing a lot about the 2020 Election results and it is all very confusing. Does HFA have a comprehensive resource that I can use to better understand the outcomes of this year鈥檚 election. Signed, Dear Constituent, Due to COVID-19, in some states the manner in which people voted may have changed to […]

Dear Addy: ACA for 2021

November 23, 2020

Dear Addy, I know that open enrollment for health insurance begins Nov. 1, 2020. At the same time, I鈥檓 hearing about a Supreme Court case that could overturn the Affordable Care Act (ACA)! As a person with a bleeding disorder, what should I do about health insurance for 2021? Signed, Anxious About Insurance Dear Anxious, […]

Dear Addy: Ready to Vote

October 21, 2020

Dear Addy, It鈥檚 been an extremely stressful year due to COVID-19. Elections are coming up fast and I鈥檓 not sure what steps I need to take to vote. Any help? Ready To Vote Dear Ready, I agree this year has presented a lot of new challenges for everyone and learning new ways to cope. As […]

Dear Addy: Eager Learner

October 1, 2020

  Dear Addy, One of my favorite things to do is to learn about different health policies and legislation that impacts people living with a bleeding disorder. Right now, I have been limited to only information I can find in my state and Congress. I would like to learn more about what goes on in […]

Dear Addy: Frantic Freshman

August 18, 2020

    Dear Addy, This will be my first year going off to college and I鈥檓 a little bit nervous about it. The prospect of traveling hundreds of miles away from home and my HTC was already daunting, and COVID has only made this big transition feel even bigger. What can I do to make […]

Dear Addy: Family Planner

July 21, 2020

Dear Addy, My high school sweetheart and I are in our senior year of college and recently began a conversation about life after school. Are there any resources for us to learn more about starting a family when you know you are a carrier or have a history of bleeding disorders in your family?聽 Signed, […]

Dear Addy: Avid Advocate

June 16, 2020

Dear Addy, Each year, I travel to Washington, D.C., and my state capitol to meet with my legislators and members of Congress to discuss issues that are most important to the bleeding disorders community. Due to COVID-19, I have heard that in-person visits are no longer viable options. How can I make sure my voice […]

Dear Addy: Cautious to Proceed

May 20, 2020

Dear Addy- I recently learned I am eligible to receive an Economic Impact Payment or 鈥渟timulus check鈥. While I have not received any funds yet, I have received several voicemails stating that I am required by law to provide personal banking information, my social security number and pay a fee before I can receive any […]

Dear Addy: Seeking Assistance

April 20, 2020

Dear Addy- Like many others, I have been laid off of work due to COVID-19. I鈥檓 supposed to receive pandemic unemployment assistance through the CARES Act, but it鈥檚 not in my bank account yet and I have bills to pay. Can HFA鈥檚 Helping Hands program help? Signed, Need a Little Help From My Friends Dear […]

Dear Addy: Panicked and Confused

March 23, 2020

Dear Addy,聽 Due to the recent COVID-19 crisis, my employer has made drastic cuts to my work schedule and I am facing potential unemployment. As a person living with a bleeding disorder, I鈥檓 not sure how this will impact me. I鈥檝e been getting benefits through my employer for a while now, but without a job, […]

Dear Addy: Excused School Absence

February 18, 2020

Dear Addy, My child wants to attend our state’s Advocacy Day, but she has a limited number of excused absences. I want her to learn how to advocate for herself and the bleeding disorders community, as well as to see democracy in action. Can you offer guidance for working with her school to allow the […]

Dear Addy: Reporting Insurance Issues

January 21, 2020

Dear Addy, I鈥檓 already experiencing issues with my health insurance, despite being less than a month into the new year. What resources does HFA have for reporting these issues? Signed, Frustrated Consumer Dear Frustrated, HFA understands your frustration and wants to hear from you. We strongly encourage you to reach out to HFA with stories […]

Dear Addy: Informed Voter

December 16, 2019

Dear Addy, With the 2020 elections less than a year away, I鈥檇 like to become more informed about the candidates鈥 positions on health reform issues. Can you recommend resources to find and compare information? Signed, Informed Voter Dear Voter, Health reform will continue to be a critical issue for 2020 candidates, as it was during […]

Dear Addy: 2020 Open Enrollment

October 30, 2019

Dear Addy, I keep seeing reminders about open enrollment beginning November 1, 2019. As a person with a bleeding disorder, what should I look for in an insurance plan? Signed, Investigating Insurance Dear Investigator, The聽Open Enrollment Period聽is a time frame each year when health insurance plans or聽HMOs (health maintenance organizations)聽are required by law to accept […]

Dear Addy: Medicare Open Enrollment 2020

October 23, 2019

Dear Addy, I am a Medicare beneficiary weighing my plan options for 2020. What do I need to know about choosing a plan for the coming year? Medicare Beneficiary Dear Beneficiary, Every year Medicare open enrollment runs from Oct. 15 through Dec. 7. This is the time of year when you can decide to stay […]

Dear Addy: Public Charge Rule

September 16, 2019

Dear Addy, I鈥檝e seen HFA post on social media about changes to the public charge rule. What are the changes and how could they affect the bleeding disorders community? Signed, Concerned Advocate Dear Advocate, Para obtener informaci贸n en espa帽ol, haga clic aqu铆. Thanks for reaching out about this important and developing issue. As you may […]

Dear Addy: Off to College

August 19, 2019

Dear Addy, My family is active with our local bleeding disorders community, but now I am going to college in a different state. How do I find an organization near my school so I can remain involved as a community advocate in a new state and at the national level? Signed, Active Young Advocate Dear […]

Dear Addy: Back to School 2019

July 12, 2019

Dear Addy, My son has hemophilia and I鈥檓 nervous about his safety as he starts school this year. How can I advocate for him at school and make sure his bleeding disorder is understood? Signed, Nervous Nancy Dear Nervous, You are not alone 鈥 many families struggle with this experience! Taking a proactive approach to […]

Dear Addy: Virtual Hill Day

July 2, 2019

Dear Addy, I recently saw HFA post on Facebook about an advocacy day on Capitol Hill. I wasn鈥檛 able to participate on the day of the event; can I still get involved? Signed, Advocacy Amplified Dear Advocacy, Yes! The posts you saw were in conjunction with HFA鈥檚 annual Patient Fly-in and Virtual Hill Day on […]

Dear Addy: History Exhibit

May 20, 2019

Dear Addy, I attended HFA鈥檚 Symposium in San Diego and really enjoyed the history exhibit. Is there a way for me to access the timeline? I鈥檇 like to read more about the history of the bleeding disorders community. Signed, Advocate for the Ages 聽Dear Advocate, Yes! You can access the latest version of HFA鈥檚 historical […]

Dear Addy: 5 Minutes for Project CALLS

April 15, 2019

Dear Addy- I am having a horrific time with my insurance company getting a prior authorization approved. I know I should call Project CALLS, but I simply don鈥檛 have time to be on the phone with the insurance company and Project CALLS. Why is it so important that I let HFA know what鈥檚 going on […]

Dear Addy: Raising Awareness

March 18, 2019

Dear Addy, I鈥檝e been sharing HFA鈥檚 Facts a Day about Bleeding Disorders Awareness Month, but I want to do more. How can I help raise awareness about bleeding disorders? Signed, Ready to Activate Dear Ready to Activate, It鈥檚 wonderful to hear that you are motivated to help spread the word about bleeding disorders! As a […]

Dear Addy: Manufacturer Copay Assistance & Accumulator Adjuster Programs

February 18, 2019

Dear Addy, I use a manufacturer copay assistance program to help me meet the out-of-pocket costs associated with my clotting factor product. My insurer just notified me that it will no longer apply that assistance to my deductible and out-of-pocket maximums! Can they do that? Signed, Distressed Over Deductibles Dear Deductibles, You have run up […]

Dear Addy: Surprise Billing

January 21, 2019

  Dear Addy I鈥檝e heard the term 鈥渟urprise billing鈥 in the news recently and I鈥檓 concerned about how it could affect my family, especially if we have to go to the emergency room for a bleed and a provider is out-of-network. Can you share more on this issue and what we can do if it […]

Dear Addy: Advocacy Leadership Council

December 24, 2018

Dear Addy, I鈥檓 the parent of a hemophiliac and I鈥檇 like to become more involved in advocacy work to support my child and the bleeding disorders community at-large. Does HFA have any advocacy programming available for parents? Signed, Active Advocate 聽 Dear Advocate, Yes! HFA recently announced the creation of a new Advocacy Leadership Council. […]


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