Donate

Dateline

I Know Me Best

September 23, 2020

A visit to an unfamiliar hospital reminds patient of the importance of self-advocacy BY MICHAEL BISHOP, STAFF WRITER Self-advocacy is the quintessential and necessary skill for people with hemophilia. It鈥檚 something I鈥檝e been taught my entire life, and it鈥檚 something on which Hemophilia Federation of America frequently focuses its education. It鈥檚 incredibly important, and I鈥檝e […]

Best One Yet: Bleeding disorders community member creates successful annual fundraising event

September 23, 2020

BY SHAWN NEASE, GUEST WRITER You have got to be kidding me! Are you sure that is just for this year?鈥 That was me after wrapping up this year鈥檚 Delves for Donors fundraising event and checking in with the hosting store owner for a rough total of how much was raised this year. A little […]

HFA鈥檚 Summer Internship Goes Virtual

September 23, 2020

Hemophilia Federation of America has welcomed two advocacy interns for the summer of 2020, but in a new and unique way. For many years, HFA鈥檚 advocacy interns spent 10 weeks of their summer living in Washington, D.C., where the HFA office is located, engaged in hands-on activities related to policy and advocacy. But with travel […]

The Art and Science of Goal Setting and Achieving

September 23, 2020

HFA board member shares valuable tips to accomplish more BY CLYDE J.R. BRAWNER, MBA, HFA BOARD OF DIRECTORS Goal setting is often the foundation of success. We set goals for our education, our finances, our health, our careers plus many other important milestones in our lives. We often think about accomplishing our goals, rarely understanding […]

A Little Peace of Mind: HFA develops relief fund for bleeding disorders community directly impacted by COVID-19

September 23, 2020

BY EMILY ROUSH-BOBOLZ, STAFF WRITER When a pandemic hit the United States in early 2020, no one knew what to expect. Schools and businesses began to close, and people were being laid off from their jobs, but it wasn鈥檛 yet clear how the bleeding disorders community would be directly impacted. It was clear, however, that […]

COVID-19 Resources and Information for the Bleeding Disorders Community

September 23, 2020

Hemophilia Federation of America quickly responded to the needs of the bleeding disorders community during the coronavirus pandemic by creating a hub of valuable information at www.hemophiliafed.org/covid19. HFA鈥檚 COVID-19 Hub includes: Patient Care and Product Availability For patients and families concerned about access to care and the availability of bleeding disorders products and services during […]

Project CALLS: Creating Alternatives to Limiting or Lacking Services

September 23, 2020

Hemophilia Federation of America created Project CALLS to collect data and personal stories of how techniques employed by insurance companies create barriers to care for patients. In 2020, HFA will highlight stories of CALLS respondents. In addition to highlighting their stories, the data collected from more than 200 submissions since 2015 offers a baseline view […]

What We Learned About Inhibitors and Where We Need to Go

September 23, 2020

A Summary of HFA鈥檚 Blood Brotherhood & Families Inhibitor Survey Data BY DEBRAN TARVER, STAFF WRITER Many people with hemophilia A or B or type 3 von Willebrand disease (vWD) treat by infusing clotting factor concentrates into their veins, which helps form clots, and stop or prevent bleeding episodes. Of those who infuse with clotting […]

Turned Away

September 23, 2020

Hemophilia organization hopes to change current Medicare reimbursement that leads aging hemophilia patients struggling to enter nursing facilities BY SONJI WILKES, STAFF WRITER During National Hemophilia Foundation鈥檚 Washington Days, NHF announced The Hemophilia Skilled Nursing Facility Access Act had been introduced in both the House and the Senate. This critical legislation will rectify a longstanding […]

Cornfields, Camping and Camaraderie

November 19, 2019

Nationally-known cycling event creates amazing memories for Team Resilience participants By: Emily Roush-Bobolz,聽Staff Writer While Hemophilia Federation of American has been hosting the Gears for Good National Ride from West Virginia to Washington, D.C., for eight years, the organization had a larger vision 鈥 use existing athletic and competitive events around the country to raise […]

La Menstruacio虂n es un Proceso Natural como Cualquier Otro

November 19, 2019

Por: Andy Anderson y Martha Boria, escritores del personal 鈥淎hora eres una mujer鈥. 鈥淎qu铆 est谩n las toallas higi茅nicas鈥. 鈥淧uedes sostener una toalla de agua caliente en el est贸mago por los dolores鈥. 驴Suena esto familiar? Para muchos de nosotros, hablar de per铆odos era solo algo que pod铆amos hacer con mam谩. No lo discutimos en la escuela […]

Medicare 101: Who’s Paying for Your Care?

November 19, 2019

By: Kimberly Ramseur, Staff Writer With all the talk about health care financing, it is easy to get confused and overwhelmed with all the information being disseminated. If an individual falls under one of the following, he or she may be eligible for Medicare, a national health insurance program administered by the Center for Medicare […]

Advocate Finds Her Voice with New Council

November 19, 2019

Advocacy Leadership Council member shares her experience at HFA鈥檚 2019 Patient Fly-In By: Natalie Parker, Guest Writer I was nervous before walking into a Congressional office. The U.S. Capitol is huge! I didn鈥檛 know what to expect and I wasn鈥檛 sure they would listen to me. After all, legislators and their staff meet with numerous […]

Understanding FDA Drug Recall Procedures

November 19, 2019

It is important to pay attention when a product is recalled, but with all the different sources of information, and the different types of recalls, it can be confusing. Recalls, designed to protect the public鈥檚 health, are used as a way to deliver information to consumers in an expeditious manner. A recall is an action […]

Executive Corner

November 19, 2019

Dear Friends, For nearly 11 years Hemophilia Federation of America has had the same leadership guiding and taking the organization where the community has requested. Throughout this time, HFA has grown by leaps and bounds, not only in the size of the organization, but more importantly in what we are able to offer the community […]


Sign up for E-mails, Dateline Magazine, and other ways to stay connected.