Hemophilia Federation of America is a national nonprofit organization that assists, educates and advocates for the bleeding disorders community.
During Black History Month, Hemophilia Federation of American would like to shine a light on Black healing and mental health in the bleeding disorders community. In addition to the emotional impacts of chronic illness and living in a pandemic, Black community members may also be experiencing layers of individual and intergenerational trauma from racism. There […]
In the spring of 2020, the usual way of life for the entire nation changed when the COVID-19 pandemic hit the United States. While Hemophilia Federation of America quickly responded by providing resources and information to the bleeding disorders community, the organization also wanted to better understand how the community was affected. HFA conducted an […]
Watch the webinar Hemophilia Federation of America hosted an excellent line-up of experts, including well-known epidemiologists from NIH and UCLA, as well as leading HTC medical professionals, who answered questions about the COVID-19 vaccination in those with bleeding disorders during the COVID-19 Forum on Jan. 26, 2021. The panel included:  • Duc “Bobby” Tran, […]
Now Available On-Demand Hemophilia A, also called factor VIII (FVIII) deficiency or classic hemophilia, is a genetic disorder caused by missing or defective factor VIII, a clotting protein. This means that the blood does not clot normally. When blood cannot clot properly, excessive bleeding (external and internal) occurs after any injury or damage. Patients and […]
Hemophilia Federation of America is appalled by the recent violence at the United States Capitol. Each time our community has visited the Capitol to advocate on behalf of bleeding disorders, it has been an honor and a privilege to be a part of the democratic process set forth in the Constitution. However, the events showed […]
With the pandemic and economic crisis still very present in our lives, a message of gratitude could be seen as a cliché. Instead, they are at the core of my emotions as I tell you how thankful I am for this community. It is with sincerity that I wish you a happy Thanksgiving and express […]
A huge thank you to the performers who made HFA’s 2020 Symposium Final Night Event amazing! Learn more about these talented performers from around the world: Ben Seidman | Magician — Penn & Teller’s Fool Us, Mindfreak, Magic Outlaws William Wei-Lang Lin | Diabolo — Cirque du Soleil ​Steve Langley | Soap Bubble Manipulation — Guinness World Records Michael Karas | Juggler — […]
At its Aug. 24, 2020 annual meeting, the Hemophilia Federation of America Board of Directors approved its most recent officers to serve on the executive committee. The board of directors approved the following individuals as officers: Allie Ritcey, Chair Steve Long, Vice Chair Gillian Schultz, Secretary Clyde (J.R.) Brawner, Treasurer Carletha Gates, Member at Large […]
Each year Hemophilia Federation of America honors the service of special individuals who have gone above and beyond in support of the bleeding disorders community. HFA’s 2020 awards were presented during a virtual ceremony on Aug. 25, 2020. HFA celebrates these individuals:               Watch the 2020 Awards Ceremony Here!
Each year Hemophilia Federation of America honors the service of special individuals who have gone above and beyond in support of the bleeding disorders community. HFA’s 2020 awards were presented during a virtual ceremony on Aug. 25, 2020. HFA celebrates these individuals. Josh Hemann Former Board Chair Recognition HFA recognizes former board chairs for their […]
Each year Hemophilia Federation of America honors the service of special individuals who have gone above and beyond in support of the bleeding disorders community. HFA’s 2020 awards were presented during a virtual ceremony on Aug. 25, 2020. HFA celebrates these individuals. Tracy Cleghorn Volunteer of the Year The Staff at HFA looks forward to […]
Each year Hemophilia Federation of America honors the service of special individuals who have gone above and beyond in support of the bleeding disorders community. HFA’s 2020 awards were presented during a virtual ceremony on Aug. 25, 2020. HFA celebrates these individuals. Hemophilia of South Carolina, Sue Martin, Executive Director Member Organization Spotlight Award HFA […]
Each year Hemophilia Federation of America honors the service of special individuals who have gone above and beyond in support of the bleeding disorders community. HFA’s 2020 awards were presented during a virtual ceremony on Aug. 25, 2020. HFA celebrates these individuals. Rich Pezzillo Ron Neiderman Humanitarian Award This award is for extraordinary and inspirational […]
Each year Hemophilia Federation of America honors the service of special individuals who have gone above and beyond in support of the bleeding disorders community. HFA’s 2020 awards were presented during a virtual ceremony on Aug. 25, 2020. HFA celebrates these individuals. Laveane Lovelady Special Service Recognition This award was chosen by HFA staff in […]
Each year Hemophilia Federation of America honors the service of special individuals who have gone above and beyond in support of the bleeding disorders community. HFA’s 2020 awards were presented during a virtual ceremony on Aug. 25, 2020. HFA celebrates these individuals. Harvey Gates Sr. It Takes a Village Award This award is provided to […]
Each year Hemophilia Federation of America honors the service of special individuals who have gone above and beyond in support of the bleeding disorders community. HFA’s 2020 awards were presented during a virtual ceremony on Aug. 25, 2020. HFA celebrates these individuals. Chris Bombardier Terry Lamb Health and Wellness Award This award is for exceptional […]
Each year Hemophilia Federation of America honors the service of special individuals who have gone above and beyond in support of the bleeding disorders community. HFA’s 2020 awards were presented during a virtual ceremony on Aug. 25, 2020. HFA celebrates these individuals. Carl Weixler 2020 Charles Stanley Hamilton Legacy Award This award is for extraordinary […]
A Closer Look at Hemophilia Management: Improving Outcomes with Personalized Care is now available On-Demand. The RareDisease Live video education session was presented by National Organization for Rare Disorders, Inc. (NORD) in partnership with Hemophilia Federation of America and the National Hemophilia Foundation in June 2020. Hemophilia A, also called factor VIII (FVIII) deficiency or classic hemophilia, is […]
In this unprecedented moment in history as we grapple with a worldwide pandemic, we must also confront the reality of violence and injustice against people of color in our communities and across the nation. The bleeding disorders community knows all too well the effects of inequality, marginalization and the senseless loss of life. While we […]
The following is a statement from the National Hemophilia Foundation regarding their annual meeting. The National Hemophilia Foundation’s priority has always been the health and safety of the bleeding disorders community. As the COVID-19 pandemic unfolds, it is clear that in the face of an unprecedented situation, we need to make difficult decisions to protect […]
Hemophilia Federation of America is pleased to announce the organization has earned the 2020 Platinum Seal of Transparency, the highest level of recognition offered by GuideStar, a service of Candid. By sharing metrics that highlight progress HFA is making toward its mission, the organization is helping donors move beyond simplistic ways of nonprofit evaluation. With […]
On April 24, 2020, Hemophilia Federation of America extended its plan to have all staff who currently work in the Washington, D.C., office to work from home and to halt all staff travel through the end of May. HFA can assure the bleeding disorders community this will not interrupt communication — all phones and emails will […]
Many bleeding disorders community members are concerned about medical care, doctor visits, and how living with a bleeding disorder is being complicated by COVID-19. We address some of the most frequently asked questions: Q: We have an appointment scheduled with our HTC next week. Should we still go? A:Â All patients/caregivers should contact their HTC or […]
UPDATE: As of March 27, 2020, HFA staff will work from home until April 30, 2020. Beginning March 16, Hemophilia Federation of America staff who currently work in the Washington, D.C., office will begin working from home until further notice. HFA can assure the bleeding disorders community this will not interrupt communication — all phones […]
Update on March 20: Symposium has been rescheduled for Aug. 24-26, 2020. Further Update: Symposium was moved to a virtual format to be held Aug. 24-29, 2020. As the nation continues to respond to the outbreak of COVID-19 we have made the difficult decision to postpone Symposium. We hope to announce a new date by […]
UPDATE: As of March 27, 2020, HFA will halt travel for HFA staff until April 30, 2020. As the nation continues to respond to an outbreak of coronavirus (COVID-19), Hemophilia Federation of America has made the difficult decision to temporarily halt all travel plans of our staff throughout the month of March. While we had […]
We’re excited to announce Hemophilia Federation of America President and CEO, Sharon Meyers, will be a presenter in an upcoming webinar with the National Organization for Rare Disorders. Fundraising is one of the top priorities of our member organizations, and as such, we are bringing expert speakers to discuss guidelines for relationship building and engaging […]
SYMPOSIUM 2020 HAS BEEN POSTPONED—READ THE ANNOUNCEMENT HERE As the nation responds to an outbreak of a respiratory illness caused by a novel coronavirus (COVID-19), HFA is closely monitoring the situation and evaluating steps that need to be taken to best prepare to host its upcoming annual patient Symposium on April 23-25, 2020 in Baltimore, […]
Hemophilia Federation of America is excited to bring inspirational speaker, Lindsay Vos of Brownstown, Mich., to Baltimore as our keynote speaker for 2020 Symposium. Vos’s story began when she spent most of her life suffering from migraines and eventually experiencing left-sided weakness and slurred speech. But doctors dismissed her symptoms as anxiety whenever she sought […]
Hemophilia Federation of America is aware of a drastic increase in social media targeting members of the bleeding disorders community on a number of initiatives. Wanting the best for the community, HFA encourages the community to be vigilant and cautious when interacting on social media platforms. While HFA respects the rights of each individual to […]
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