Hemophilia Federation of America is a national nonprofit organization that assists, educates and advocates for the bleeding disorders community.
FOR IMMEDIATE RELEASE: September 21, 2009 聽The Hemophilia Federation of America (HFA) will collaborate with the Committee of Ten Thousand (COTT) by offering a total of 33 travel scholarships for members of the Blood Brotherhood Program to attend COTT’s twentieth anniversary celebration and survivors’ reunion.聽 The celebration will be held at the Liaison Hotel in […]
FOR IMMEDIATE RELEASE: September 8, 2009 Washington, DC – Effective August 24, 2009 the Hemophilia Federation of America (HFA) is pleased to announce the addition of Amanda Winchester, Intern.聽聽 Ms. Winchester’s primary responsibility is Helping Hands Coordinator. Helping Hands is a program for individuals with hemophilia and von Willebrand disease that provides emergent financial relief […]
FOR IMMEDIATE RELEASE:聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽 July 23, 2009 HFA Adds Voices Campaign Project Coordinator to National Team Washington, DC – Effective July 6, 2009 the Hemophilia Federation of America (HFA) is pleased to announce the addition of Ms. Katie Whittle from Seattle, Washington as its Voices Campaign Coordinator. 聽“We are delighted to have Katie on board.聽 Her […]
July 22, 2009 聽聽聽聽 CSL Behring Awards Multi-year Commitment to the HFA Voices Campaign Washington, D.C. – The Hemophilia Federation of America was recently awarded a multi-year commitment to its Voices Campaign.聽 The HFA launched the program in May of 2009 at its annual meeting in Indianapolis, IN and has continued to build positive momentum […]
Share your voice with legislators
The Voices Campaign is HFA’s grassroots advocacy initiative aimed at raising general public and legislator awareness of the bleeding disorders community through personal stories from affected individuals and their families.聽 In the approaching national debates regarding health care reform, HFA wants to ensure the bleeding disorders community is heard, and through the Voices Campaign, members […]
June 25, 2009 Washington DC: Hemophilia Federation of America’s (HFA) grassroots “Voices Campaign” recently launched at the 2009 Educational Symposium in Indianapolis, IN is gaining momentum by collecting powerful stories from community members. “Now is the time for action.聽 As individuals and as a community, we must be accountable and make every effort to get […]
Thomas Wilkes was born with severe hemophilia
April 13, 2009 Washington, DC:聽 Hemophilia Federation of America (HFA) is proud to welecome Stephen May in the newly created leadership position of Public Policy, State Affairs. The position was created to ramp up state-level advocacy diligence in response to community concerns of an ever-changing, turbulent healthcare landscape. The position’s responsibility includes pro-active public policy […]
April 6, 2009
Washington, DC: Hemophilia Federation of America (HFA) has received a $10,000 grant from CSL Behring to fund its Legislative Action Center.
HFA is a nonprofit organization serving the bleeding disorders community. Established in 1994, the organization has offered programming and grassroots advocacy on behalf of its individual members and its twenty-nine member organizations.
The CSL Behring Local Empowerment Grant will be used to provide the community the Legislative Action Center tool (Capwiz) on the Hemophilia Federation website.
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