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HFA News

HFA Receives Multi-year Cooperative Agreement from CDC

October 5, 2011

FOR IMMEDIATE RELEASE: Tuesday, October 4, 2011 聽HFA Receives Multi-year Cooperative Agreement from CDC Washington, DC: Hemophilia Federation of America (HFA), a national nonprofit headquartered in Washington, DC is pleased to announce the award of a three year Cooperative Agreement from the Centers for Disease and Control (CDC), 聽CDC-RFA-DD11-1103 (Module-A): Public Health Surveillance for the […]

When medical bills top $1 million: One union’s situation highlights reality of big insurance claims

September 7, 2011

Aaron Reeves, Community Advocate, Kimberly Haugstad, HFA Executive Director, and Eboni Morris, HFA Policy Manager are all quoted in the following article by Christopher Snowbeck, Health Policy writer from Pioneer Press: 聽http://www.twincities.com/ci_18816321?IADID=Search-www.twincities.com-www.twincities.com  

HFA Press Release: Inaugural Bike Ride

August 22, 2011

FOR IMMEDIATE RELEASE: August 16, 2011 Hemophilia Federation of America launches Inaugural Bike Ride Washington DC:聽 The Hemophilia Federation of America (HFA) launches inaugural bike ride, “Gears for Good”, September 15 – 17, 2011.聽 A three day 156 mile ride departing West Virginia and ends in Washington, DC, promoting health and wellness for individuals with […]

Changes to the PCIP program

June 2, 2011

From the National Health Law Program (NHELP) www.healthlaw.org     This week, the U.S. Department of Health and Human Services (HHS) announced that premiums for the Pre-Existing Condition Insurance Plan (PCIP) will drop as much as 40 percent in 18 states, and eligibility standards will be eased in 23 states and D.C., beginning July 1, […]

BPAC Holds Spring Meeting

May 27, 2011

The Blood Products Advisory Committee (BPAC) 聽to the Food and Drug Administration (FDA) 聽held their spring meeting on April 28-29, 2011 in Washington DC. This meeting addressed three topics: (1)Testing Source Plasma for Hepatitis B Virus by Nucleic Acid Testing; (2) Current Considerations on the Use of Plasma Obtained from Whole Blood Donors for Further […]

2011 Symposium Video

May 16, 2011

Symposium 2011

May 3, 2011

Highlights from Symposium 2011 in Louisville, KY

HFA Symposium 2010

March 3, 2011

Rare Disease Day 2011

January 26, 2011

“Bad Blood: A Cautionary Tale” will make its 3rd stop in San Francisco as the film marches forward on its multi-city screening program

January 24, 2011

For Immediate Release   ONWARD, THE TOUR CONTINUES… “Bad Blood: A Cautionary Tale” will make its 3rd stop in San Francisco as the film marches forward on its multi-city screening program San Francisco, CA (January 24, 2011) – On the heels of the September Capitol Hill screening, Marilyn Ness takes her documentary and message to […]

HFA Welcomes Three New Member Organizations

October 12, 2010

FOR IMMEDIATE RELEASE:聽聽聽聽聽聽聽聽聽聽聽 October 11, 2010 Washington: DC:聽 Hemophilia Federation of America (HFA), a community focused national organization serving the needs of individuals and families with bleeding disorders since 1994, is pleased to announce the addition of three new member organizations in 2010 as indicated below: The Connecticut Hemophilia Society, Inc. (CHS), founded on February […]

HFA President, Paul Brayshaw hosts President Barack Obama’s Backyard Health Care Policy Forum

September 22, 2010

For Immediate Release: Wednesday, September 22, 2010 Washington, DC:聽 President Barack Obama held a backyard discussion on healthcare reform at the home of Hemophilia Federation of America’s President, Mr. Paul Brayshaw.聽聽Paul, an individual with Hemophilia is a resident of Falls Church, VA. He聽opened the forum with a statement regarding the positive impact of the Affordable […]

Winners announced for 2010 BioRx Educational Scholarships

July 21, 2010

News Release聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽聽 June 21, 2010 (Cincinnati, Ohio)聽聽 BioRx, a specialty pharmacy, and Hemophilia of North Carolina, a non-profit organization that assists and educates persons affected by bleeding disorders, announce the winners of the 2010 BioRx Educational Scholarships.聽 Each of the winners receives a $2,000 scholarship.聽 The scholarships are funded by BioRx through an educational grant, […]

Symposium 2010

May 12, 2010

Thanks for coming to HFA’s Symposium in Kansas City, MO! Hope you had a great time and we will see you next year!

Today is the 20th anniversary of the death of Ryan White

April 8, 2010

Community member archivist, Barry Haarde has a wonderful collection of community historical news.聽聽He has聽been聽distributing聽the information聽via “archieve e-newsletter.聽聽The HFA would like to acknowledge and thank Barry for allowing us to share with the greater community his post today, honoring the anniversary of the death of Ryan White: Today is the 20th anniversary聽of the death of Ryan […]

HFA Press Release: Facebook Fans Bring Community Friends Together

March 10, 2010

FOR IMMEDIATE RELEASE: Wednesday, March 10, 2010 Washington, D.C.:聽 There is no doubt that the social media trend has changed how the world communicates. From world events and tragedies to simply linking people together in a personal day-to-day style, social forums like Facebook have made an impact.聽 At the Hemophilia Federation of America (HFA), this […]

Press Release: HFA Voices Blood Safety Concerns

December 11, 2009

FOR IMMEDIATE RELEASE:聽聽 December 10, 2009 Washington, DC: 聽The Hemophilia Federation of America (HFA) expresses its concern regarding the ongoing labor issues involving the Teamsters Local 929 and the American Red Cross of Pennsylvania /New Jersey. The national blood system depends on skilled workers to provide clean, safe blood to laboratories. The blood is distilled […]

Press Release: HFA Recently Approved for NORD Membership

December 10, 2009

FOR IMMEDIATE RELEASE:聽聽聽聽December 10, 2009 Washington, DC:聽 The National Organization for Rare Disorders (NORD) recently approved the Hemophilia Federation of America (HFA)for membership.聽 One of 150 member organizations, the HFA is excited about the opportunity to participate with NORD on important public policy, advocacy, awareness and educational issues.聽 Certain standards and requirements must be met […]

Community Member, Barbara Dittrich one of 3 semi-finalist for the The Hope Award

October 27, 2009

The Hemophilia Federation of America congratulates and applauds the good works of 聽Barbara Dittrich, Executive Director of聽Snappin’Ministries for becoming one of 3 semi-finalist for the The Hope Award. Barbara started the support group when her son Charlie was born in 2002 with Hempohilia. We wish her all the best with her ministry and look forward […]

Press Release: HFA Hosts First Advocacy Intensive

October 21, 2009

FOR IMMEDIATE RELEASE:聽聽聽聽 October 20, 2009 聽Washington, DC:聽 The Hemophilia Federation of America (HFA) held its first Advocacy Intensive weekend October 2 – 5, 2009.聽 The program is a best practice model for bringing HFA social advocacy programs full circle and encouraging members of the bleeding disorders community to reach their聽 full potential through role […]

HFA Press Release: HFA Meets Goal of 1,000 Fans on Official Facebook Page

September 28, 2009

FOR IMMEDIATE RELEASE: September 28, 2009 Washington, DC:聽The Hemophilia Federation of America (HFA) launched its first online community social networking medium in July 2009.聽 HFA’s official Facebook site is designed to make connections and build relationships with community members across the country. On September 19, 2009, just two months after the page was created, HFA […]

HFA Press Release: HFA Collaborates with COTT Offering Travel Scholarships to Survivors’ Reunion

September 23, 2009

FOR IMMEDIATE RELEASE: September 21, 2009 The Hemophilia Federation of America (HFA) will collaborate with the Committee of Ten Thousand (COTT) by offering a total of 33 travel scholarships for members of the Blood Brotherhood Program to attend COTT’s twentieth anniversary celebration and survivors’ reunion.聽 The celebration will be held at the Liaison Hotel in […]

HFA Press Release: HFA Collaborates with COTT Offering Travel Scholarships to Survivors’ Reunion

September 23, 2009

FOR IMMEDIATE RELEASE: September 21, 2009 聽The Hemophilia Federation of America (HFA) will collaborate with the Committee of Ten Thousand (COTT) by offering a total of 33 travel scholarships for members of the Blood Brotherhood Program to attend COTT’s twentieth anniversary celebration and survivors’ reunion.聽 The celebration will be held at the Liaison Hotel in […]

PRESS RELEASE: HFA Awarded CDC Cooperative Agreement for FitFactor Program

September 7, 2009

FOR IMMEDIATE RELEASE: September 1, 2009 The Hemophilia Federation of America (HFA), a national nonprofit headquartered in Washington, DC, has been awarded a five-year cooperative agreement from the Centers for Disease Control and Prevention (CDC).聽 The award supports a program aimed at promoting physical activity and maintaining a healthy weight in individuals with hemophilia. 聽Proper […]

PRESS RELEASE: HFA Awarded CDC Cooperative Agreement for Blood Brotherhood Program

September 7, 2009

FOR IMMEDIATE RELEASE: September 1, 2009 The Hemophilia Federation of America (HFA), a national nonprofit headquartered in Washington, DC has been awarded funding for a cooperative agreement from the Centers for Disease Control and Prevention (CDC).聽 The award, totaling $289,000 per year, supports a program aimed at providing social support, health information and skills to […]

HFA Adds Voices Campaign Project Coordinator to National Team

July 24, 2009

Effective July 6, 2009 the Hemophilia Federation of America (HFA) is pleased to announce the addition of Ms. Katie Whittle from Seattle, Washington as its Voices Campaign Coordinator. “We are delighted to have Katie on board.聽 Her enthusiasm and fresh perspective are a great addition to our team. We look forward to significantly furthering our […]

HFA’s “Voices Campaign” Gains Momentum

June 25, 2009

The聽Hemophilia Federation of America’s (HFA) grassroots “Voices Campaign” recently launched at the 2009 Educational Symposium in Indianapolis and is gaining momentum by collecting powerful stories from the bleeding disorders community. “Now is the time for action. As individuals and as a community, we must make every effort to get our voices heard with local and […]


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