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Mom’s Blog: Infusing Love

Infusing Love: As He Climbs On the Bus

June 28, 2017

By now, for most of us another school year has come to an end. For me this usually means complete and utter joy! No more homework, no more early wakes up to catch the bus, no more worrying about clean PE uniforms, and the list goes on and on. Nicholas just finished the 8th grade. […]

Infusing Love: Change of Plans

June 21, 2017

  It’s that time of year when boys and girls go to summer camp. Church camp, art camp, band camp, sports camp and yes, hemophilia camps. My idea of camping and “roughing it” is when we stay at a hotel that is not a “suite.” When my oldest son, Julian, was nearing the age of […]

Infusing Love: Wonder Women

June 14, 2017

  Motherhood is hard work, and often, moms don鈥檛 give themselves credit where credit is due. As moms, we need to brag about ourselves and celebrate our victories. We asked our Infusing Love bloggers to share those motherhood moments where they thought to themselves, 鈥淵eah, I鈥檓 owning this mom thing.鈥 Try to think of your […]

Infusing Love: Meet Stephanie

June 8, 2017

As parents, we are always talking about the safety of our kids, families, cars, food, neighborhoods, churches, malls etc.聽聽Let鈥檚 face it: our world is not as “safe” as it used to be, except when it comes to hemophilia! As a mother of a very active two-year-old, a sister of a stubborn 40-year-old, and the niece […]

Infusing Love: Meet Lindsay

May 31, 2017

Nine years ago, I was blessed with my oldest son Zachary. With each passing day, he grows into an exceptional young man with love and compassion for everyone he meets. His smile and dimples are infectious and can melt any mother鈥檚 heart. Zachary had been the only child for four years when my husband and […]

Infusing Love: Meet Heather, a Brand New Hemo Mom

May 26, 2017

  My life was flipped upside down nearly 3 weeks ago when I became a hemophilia mom. To say that I was shocked is a true understatement. What I thought were little bruises because I had shoved my son Maddox into his bumbo seat, turned out to be a disorder that would affect my baby […]

Infusing Love: Hit the Road, Jack

May 18, 2017

  Every hemo mom has the day she must send her child off on an overnight school trip, trusting that she has done everything she can to prepare her child for the responsibility of being on their own. My time came a few weeks ago when my son went to Orlando with his Sing Out […]

Infusing Love: A or B (Arthritis or Bleed?)

May 10, 2017

Back in the 鈥渙ld days鈥 before prophylaxis (prophy), hemophiliacs were treated on demand when they had a bleed. Max is just old enough to fall into that category so he didn鈥檛 switch to prophy until he was five years old. By then he had already had enough bleeds in his left ankle that the damage […]

Infusing Love: Life Imitates Art

May 3, 2017

When ABC premiered, 鈥淪peechless鈥 last fall, I wasn鈥檛 sure if it would meet my expectations. Would it show special needs parenting and family life in a realistic, often sarcastic way, or would it have the feel of an afterschool special? I鈥檓 happy to say it鈥檚 readily become one of a handful of shows we watch […]

Infusing Love: Changes

April 28, 2017

As parents of a nearly twenty five year old son, my husband George and I have enough to write a book about being the parents of a child with severe hemophilia B. There are so many ups and downs raising Michael over the years. Our most recent up and down has been the transition of […]

Infusing Love: Virtual Hugs

April 19, 2017

  I need to send a big hug and thank you to all the bleeder moms who have supported me. I thank you for the endless support you continue to give me. But I especially need to send a special hug to the one mom who has been there to pick me up these last […]

Infusing Love: A Letter to A Mentor

April 12, 2017

  Dear Corey, Max was 2 or 3 years old when I first met you. I had been told about this conference happening in Sturbridge, Massachusetts. I really didn鈥檛 even know what it was for, but at that point I was desperate to be connected with anyone who had hemophilia. It was a little shocking […]

Infusing Love: Radical Change

March 29, 2017

  When my son Thomas came into the world, he radically changed my knowledge base about hemophilia and other bleeding disorders. As this March comes to an end, I鈥檝e been thinking about how far we鈥檝e come as a family since Thomas鈥檚 diagnosis. I decided to look for the original email we sent to friends and […]

Infusing Love: This Is Us

March 22, 2017

  My mighty warrior, Caeleb, still has an inhibitor. His Bethesda Unit (BU) is less than one and his half-life is less than four hours, so we have a ways to go. His BU has reached zero a few times, and I was thrilled! It was a victory, and when you live with an inhibitor […]

Infusing Love: 隆S茅 agradecido!

March 15, 2017

No importa en la circunstancia en que nos encontremos siempre tenemos una raz贸n por la cual estar agradecidos.聽聽 A lo largo de mi carrera como maestra de escuela elemental por m谩s de 15 a帽os y ahora como coordinadora de programas en HFA, he tenido la oportunidad de conocer a muchas personas. Maravillosas personas con caracter铆sticas […]

Infusing Love: Being Bored Isn鈥檛 A Bad Thing

March 8, 2017

I always look forward to reading the weekly Infusing Love Mom Blogs. I enjoy reading about the lives of other caregivers and their perspective on their particular journey or story they take the time to share with readers. I usually have something noteworthy to write about. With three active kids who have chronic illnesses, one […]

Infusing Love: We Are Family

March 1, 2017

  Since my son Thomas was born thirteen years ago, I鈥檝e come to think of the bleeding disorders community as family. Relatively speaking, that feeling came to us very quickly after meeting people in the community. My husband and I jumped right into attending events, volunteering, and generally asking questions of medical providers and anyone […]

Infusing Love: Laugh or Cry

February 23, 2017

Anyone who knows me or has read any of my previous blogs, knows that our household basically revolves around baseball. If the weather is nice and I鈥檓 not at work, I鈥檓 at the baseball field. Sometimes it makes life a little crazy, but it makes Nick really happy and that is what鈥檚 most important. My […]

Infusing Love: Six Lessons Learned

February 15, 2017

  A lot has changed since my daughter was diagnosed with a platelet storage pool deficiency in 2011. Initially, there was little information and case studies to look to for reassurance. Not having a treatment plan led to many fears, doubts, and unknowns and wondering if I could make it through another injury or trip […]

Infusing Love: The Right Time

February 8, 2017

聽 There is this one conversation I鈥檝e had repeatedly with dozens of parents over the past ten years. It always revolves around our desire to be protective and shelter our kids. A child鈥檚 early years should feel safe. However, we know they cannot stay innocent forever. We do want them to grow up to be […]

Infusing Love: Bleeds Hurt

February 1, 2017

  A couple of months ago, my 8th grade son with hemophilia had 鈥淔uture Bruin鈥 night at the high school he will be attending next year. Any time we have to think about making a school move with him it induces anxiety for me as I start thinking about the process we鈥檒l have to go […]

Infusing Love: I鈥檒l Be Ready

January 25, 2017

Every day, I am reminded of how quickly time passes. My kids will only be little for a very short period of time. As working parents, we always tend to wish the days away in order to get to the weekends when we can take a deep breath, relax, and prep for another busy week […]

Infusing Love: Now What?

January 18, 2017

聽 This week the Infusing Love Mom鈥檚 Blog will tackle a touchy subject: What happens to health care in 2017? Is there a replacement for the ACA that will offer support and protections? Whether your politics lay left, right, or center, as a community, we all live with having bleeding disorders in our lives and […]

Infusing Love: Single But Not Alone

January 11, 2017

Being a single parent is challenging for anyone. Being the single parent of a child with a severe, costly chronic illness comes with its own set of issues. I remember the times that Max unable to attend events that were geared toward fathers and sons. I once called our chapter office when Max was around […]

Infusing Love: Smells and Sounds

January 4, 2017

The senses of sound聽and smell are very powerful. Sometimes a smell can spark a memory of a wonderful meal simmering on a stove or the smell of the air from a perfect breeze on a spring day can transport us back. The sounds of elevators dinging as people anxiously wait their turn and the sliding […]

Infusing Love: Naughty or Nice 鈥 It鈥檚 a Choice

December 28, 2016

One of my co-workers often uses the phrase unconscious incompetence. It essentially means you just don鈥檛 know what you don鈥檛 know. The recent election surprised many. I鈥檒l stay away from the politics but I can鈥檛 help but reflect on the flippant comments made by a constitutional law professor post-election who referred to those who were […]

Infusing Love: Growing Up So Fast

December 14, 2016

  This week鈥檚 Infusing Love entry is a poem co-written by our longtime blogger, Kari, and her daughter, Scarlett. I’m learning to be safer, watch my step, and stay out of harms way. Each day a new lesson, on how to exercise and how to play! I might start off feeling intimidated, scared or shy. […]

Infusing Love: Taking a Stand

December 7, 2016

  Every day we advocate for our children and ourselves. Our advocacy ranges on a small scale such as requesting a drink refill when we need one at restaurant to advocating for our children on a larger scale when requesting a doctor to infuse your child before any sort of x-ray when in an emergency […]

Infusing Love: A Boy & His Dog

November 30, 2016

Thomas had a stuffed animal when he was little. “Dog*” went through a lot with us. He was a constant companion, friend and source of comfort. Dog stayed in the hospital, went to clinic visits and traveled with us. We would literally pack factor for an ER visit with one hand and grab Dog with […]

Infusing Love: He Needed Me

November 23, 2016

I am exhausted. So very exhausted. I am pleading to myself that there isn鈥檛 something wrong; that the whimpers and small cries I hear as he sleeps aren鈥檛 there and that it is from sleep deprivation. I am drifting in and out of sleep on the baby glider that still graces his room even though […]


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