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Mom’s Blog: Infusing Love

Infusing Love: Superheroes Need Rest Too

June 8, 2016

Ask for help! It seems easy to do, but it takes a lot of effort. If someone would have told me, as a hemo mom, 鈥淵ou need to ask for help!鈥滻 could have saved myself a few unnecessary headaches. I recall a time when my oldest son, Marques, was in the hospital with a bad […]

Infusing Love: Nurturing My Soul

June 1, 2016

Do you ever wish there was someone who truly understood what you were going through? 聽Do you wish you could surround yourself with a support network of other women in your local area, but can鈥檛 find them? Do you wish you had more support from women in the bleeding disorders community? In 2013, a group […]

Infusing Love: Out of the Mouths of Babes

May 25, 2016

When Thomas was in preschool, my family and I attended our first HFA Symposium. One of the educational sessions featured a panel of speakers who shared how to best prepare yourself, your child, and your school for a child with hemophilia. I took copious notes during that session because we were only two years away […]

Infusing Love: My Blood Gang

May 18, 2016

Not related by blood. Family because of it. I had a button made with this quote when Max participated in the Beards for Bleeders fund-raiser two years ago. Something I have gained from the bleeding disorder community is an oddly mismatched, but amazing group of BFFs. My gang, as I like to call them. What […]

Infusing Love: Isolated No More

May 10, 2016

Until recently my husband and I didn鈥檛 realize how alone Chris felt growing up with hemophilia. He had support from family, friends, coaches, teammates, the treatment staff, and us. Yet he didn鈥檛 have anyone to talk with that really understood what it was like to have hemophilia. We tried our best to not treat Chris […]

Infusing Love: I Get To Decide

May 4, 2016

I have an incredibly sweet and endearing child. I have been told on more than one occasion by his teachers that he has a sense for other children鈥檚 feelings, he knows when children are hurting, and he makes an effort to console them. I would love to take full credit for Logan鈥檚 sweet personality, but […]

Infusing Love: No Promises

April 26, 2016

What is the last thing you say to your child before they leave the house? Maybe it is 鈥淚 love you.鈥 鈥淏e careful鈥 is always toward the top of my list. Ideally, I鈥檇 like to hear 鈥淵es ma鈥檃m,鈥 or 鈥淚 will鈥 in response. Do I ever hear that?! No! Nick鈥檚 favorite response is 鈥淣o promises.鈥 […]

Infusing Love: To Go or Not To Go

April 20, 2016

Daffodils blooming, grass growing, longer days, and camp applications arriving in the mail mark the arrival of spring. We have a top-notch medical camp facility just forty-five minutes from our home. Our local Children鈥檚 Hospital hematology/oncology department sends staff to run the camp and take care of the kids. Camp is a week of acceptance. […]

Infusing Love: Never Too Young To Advocate

April 13, 2016

For the past four years I have been participating in Hemophilia of South Carolina鈥檚 legislative days. During this annual event, I meet with our local representatives to share my experience of raising a child with a bleeding disorder and why it is important to support state programs that support our community. In prior years, I […]

Infusing Love: We Keep on Ticking

April 6, 2016

My first national bleeding disorder conference was in New Orleans in 1998. I was overwhelmed at the over 2,000 individuals in attendance.聽My son was two and the enormity of hemophilia hit me hard when I saw men in wheelchairs, using walkers, and not moving their limbs with ease. What in the world was really in […]

Infusing Love: Family Ties

March 23, 2016

I鈥檓 adopted. My birth mother was a spontaneous carrier and when she put me up for adoption she didn鈥檛 know about hemophilia. When I met her about ten years ago I found out that I have five younger siblings. Two of my brothers, Edwin and Steven, had hemophilia and died from HIV contracted in the […]

Infusing Love: Overcoming Obstacles

March 16, 2016

Does anyone really like getting stuck with needles?聽 I don鈥檛 and I only gets labs drawn yearly and have my flu shot once a year.聽 When you have hemophilia and you have serious needle phobia, infusions don鈥檛 go well.聽 My son Chris, who is now 30, admits he still has severe needle phobia. Chris鈥檚 first […]

Infusing Love: A Double Edged Sword

March 9, 2016

There are three words that I have a love-hate relationship with. The words are spoken with good intention and they aren鈥檛 fancy, SAT prep course worthy words. They are simple words, in a simple sentence, but there鈥檚 no simple answer to the question. 鈥淗ow鈥檚 Thomas doing?鈥 It鈥檚 double-edged sword. It鈥檚 almost impossible for me to […]

Infusing Love: Too Long to Wait

March 3, 2016

Our insurance provider changed at the beginning of this year.* We knew there would likely be some new hoops and apprehensively were preparing in the months prior to Jan. 1.聽 Thinking I was a savvy bleeding disorders mom getting ahead of a game, I knew this may require some extra work. So first thing on […]

Infusing Love: The Costs of Bleeding Disorders

February 24, 2016

We鈥檝e all read those statistics that discuss the cost of raising a child. Most I鈥檝e seen report the costs in the $250,000 range. Kids are expensive. Just recently, at Target, our cart contained a variety of things that were not on my list and, of course, I had to actively tell my 4-year-old that he […]

Infusing Love: Unplugged

February 17, 2016

For those of us with children who have their own cell phones, how many times a day do you say, 鈥淕et off the phone!鈥 or 鈥淧ut the phone down!鈥? But I challenge you to think about yourself: How many things are you doing right now? Other than reading this blog 鈥 one, two, three more […]

Infusing Love: Second Guessing

February 10, 2016

I deal with mommy guilt every time Jackson has a bleed. When my son is having a bleed, he tells me before there is any visible signs off swelling. I never doubt when he tells me鈥e knows his body. Two weeks ago, we got a dreaded call from the school health aide letting us know […]

Infusing Love: For the Love of Basketball

February 3, 2016

It is important for individuals with a bleeding disorder to find a form of physical activity that they enjoy. When muscles are used during exercise it helps to keep them flexible and strong.聽 Physical activity also helps individuals to maintain a healthy weight, which keeps less stress off the joints, and has even proven to […]

Infusing Love: A Letter to Hemophilia

January 27, 2016

Dear Hemophilia, There was a time when you devastated me. You destroyed my little boy鈥檚 knee and ankle, causing tremendous pain and forcing him to undergo several port surgeries. He missed weeks of school. Oh, and let’s not forget the wheelchair you put him in for over a year. That was torture, taking away his […]

Infusing Love: Normal is as Normal Does

January 20, 2016

Sometimes, as I wander around whatever hospital we鈥檙e in, I wonder what the difference in normal is between us and them: those living with a chronic condition and the people that do not. As they were wheeling Max into the operating room for yet another surgery, I wondered when this became our normal. Max and […]

Infusing Love: Summiting Mount Worry

January 13, 2016

I was recently talking with someone about Chris鈥檚 Seven Summit Quest, and the woman I was talking to said something that I didn鈥檛 understand. She said she was glad we raised Chris to not be a victim of his hemophilia. I asked her what she meant by that. She said so often people use medical […]

Infusing Love: Timeline of a January Bleed

January 6, 2016

Thomas has had his inhibitor for more than a decade, causing bleeds to be an unfortunate, but relatively routine, occurrence. We鈥檙e used to holiday bleeds, birthday bleeds, and random 鈥渨here did that come from鈥 bleeds. Be it crass or an obvious statement, bleeding happens, and we push forward. Through these tough times, we try to […]

Infusing Love: Realistic Expectations

December 31, 2015

There is nothing I love more than sitting around the Christmas tree with friends and family, sipping hot cocoa, singing holiday carols, and wearing a warm knit sweater with a reindeer on it. Ok, I admit it. I have never done any of those things, at least not all at the same time. I stole […]

Infusing Love: Wrapping Up The Imperfect

December 23, 2015

Christmas is just a few days away. If any of you are like me, you are wondering where the year has gone. At work, clients want all their matters wrapped up and at home I need all my presents wrapped up!! You鈥檝e probably heard the Walgreens commercial 鈥 on the corner of happy and healthy. […]

Infusing Love: A Sweet Escape

December 16, 2015

Life will almost always be unpredictable; it鈥檚 just part of the experience of being human. You can do your best to try and control how things will turn out, but even with precise planning and micromanaging, we all have to face disappointments and adjust our sails along the way. Accepting this and gaining new perspectives […]

Infusing Love: Volunteers Make the World Go Round

December 9, 2015

With the holidays approaching and this year coming to a close, I have found myself reflecting on the little things I am most thankful for in this community. Micah and I are truly blessed and thankful to have the people and support we have found — all because he has hemophilia. Too often we get […]

Infusing Love: A World of Thanks

November 25, 2015

I was at the craft store the other day looking for Thanksgiving dessert plates and napkins; instead I found Christmas decorations from corner to corner. I asked a sales associate where I could find the fall or Thanksgiving related d茅cor. To my disappointment it had all been removed the day after Halloween. My quick retort […]

Infusing Love: Put Mom First!

November 18, 2015

I have a confession: I am a better talker than doer! Last November I wrote about self-care: 鈥淪elf-care should not only be what we teach our children with a bleeding disorder.聽 We have to practice self-care for ourselves.聽 Our children learn more from watching us anyway.聽 If they see us taking the time to care […]

Infusing Love: With Gratitude

November 11, 2015

It’s said that everything happens for a reason. Someday you’ll look back on this and be thankful. You’ll be able to see what it’s taught you. When my daughter and I were first diagnosed with Platelet Storage Pool Disorder (PSPD), I had a hard time finding the good in anything amidst all the frightening doctor […]

Infusing Love: Losing Myself

November 4, 2015

  I love being a mom. Nothing makes me happier than cooking a great meal for my family, making soup to feed a cold, and even washing and folding their clothes.聽I am blessed to still pack lunches for one of my kids, while I watch my oldest one pack his own for his day at […]


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