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Mom’s Blog: Infusing Love

Infusing Love: Physical Fundraising

May 20, 2015

This is becoming one of my favorite times of the year to be a bleeding disorders advocate. It鈥檚 the time of year when individuals of all ages come together to raise crucial money for the community by participating in walks and bike rides across the country. In 2011, HFA hosted its first annual Gears for […]

Infusing Love: A Balancing Act

May 13, 2015

When I am toting around my two preschool aged boys to kids activities or the store, I typically get the comment, 鈥淵ou have your hands full.鈥澛 I reply with a smile in agreement, but in my mind I respond, 鈥淚f you only knew.鈥澛 Recently when someone opened heavy doors for me as I struggled with […]

Infusing Love: My Mom, The Super Hero

May 10, 2015

As a hemophiliac there are many things I am grateful for that most “normal” kids just don’t get like the amazing bonds with my blood brothers and their families during conferences and at camp. However, what I am by far most grateful for is my mother. After dealing with all the challenges related to hemophilia, […]

Infusing Love: Staying Connected

May 6, 2015

I was recently asked about being a single mom and, more specifically, whom I consider my support system.聽 I have no family living in the state of Mississippi with me.聽 My closest family members are actually four hours away.聽 I鈥檝e been here a couple years now, and my son Micah and I just love this […]

Infusing Love: Real Progress on the Road to Independence

April 29, 2015

Note: This is part two of a three part series. Click HERE to read part one. Although my Benny is still not self-infusing, the last few months have been a positive journey for us! As noted in my last blog, my 12-year-old has been extremely anxious and stressed about doing his own needle stick. We […]

Infusing Love: An Advocacy Choir

April 22, 2015

Earlier this month, Jackson and I attended the Ohio Statehouse Days hosted by the Ohio Bleeding Disorder Council. This was a time for families and individuals with bleeding disorders to meet with their senators and representatives to talk about issues and legislation that is vital to our community. This is the third year that we […]

Infusing Love: Blessed to Have Treatment

April 15, 2015

I sometimes forget how fortunate we are to live in the United States. When Max was younger, we had all the typical issues a child with hemophilia has: excessive bruising, bloody noses, and joint bleeds. I struggled to maintain health insurance, and as he aged, I struggled with navigating his infusions. As we attended more […]

Infusing Love: The Brother I Never Knew

April 8, 2015

I have always felt my brother’s presence in my life.聽 He was born in May of 1962.聽 There are no pictures of him or any stories about him.聽 He only lived for five days.聽 I was born, 6 years later, in October of 1968. I remember going to the cemetery to visit the family graves […]

Infusing Love: Not “Just a Mom”

April 1, 2015

The candidates for the HFA Board of Directors Executive Committee were asked to record a short video to share rather than a written resume this year. I thought it was a great idea until I realized that I had to do it too.聽 I totally dragged my feet for a few weeks until I reached […]

Infusing Love: Gateway to Understanding

March 25, 2015

  For someone who spends her days organizing events for a living, it always surprises me how much I look forward to the HFA Symposium each year. It has a similar structure to many of the events I plan 鈥 with plenary sessions, workshops, exhibits, and networking events 鈥 yet it feels completely different. Yes, […]

Infusing Love: Thanks ABC!

March 18, 2015

Wow – what a difference a day makes!聽 Yesterday our community was outraged by a careless remark made on the ABC television drama, 鈥淪ecrets and Lies鈥 which aired on Sunday, March 15th.聽 I, along with thousands of others, voiced my concern in a variety of ways 鈥 social media, emails, and good old fashioned talking. […]

Infusing Love: Tough Questions to Answer

March 11, 2015

I was starting to get Ryan, my youngest, ready for bed while Logan hovered around us. Logan loves Ryan, and wants to be near him always. It is incredibly sweet. But on this particular day Logan was paying close attention to Ryan, and after a few moments Logan casually asked, 鈥淲hen does Baby Ryan get […]

Infusing Love: A True Black & Blue Sensation

March 4, 2015

While the rest of the world is debating whether a dress is black and blue or gold and white, one thing I know for certain is that my son, Thomas, has been black and blue many times over the last eleven years. Do you think the world understands why? You might remember HFA鈥檚 Hemophilia Awareness […]

Infusing Love: A Life Never Imagined

February 25, 2015

Have you ever signed up for something you felt you were not quite qualified for, but went ahead and did it anyway? I have, and I鈥檓 preparing to do it again.鈥 Several years ago, when I first heard about Washington Days, I never imagined myself actively engaging with legislators.聽 For most of my life, I […]

Infusing Love: An Unexpected Haven

February 18, 2015

I鈥檇 be lying if I said my nerves weren’t through the roof upon entering the gates to the Taylor Family Foundation鈥檚 Camp Arroyo. To say that going to a family camp took me out of my element would be an understatement. I had no idea what I was getting myself into or what to expect. […]

Infusing Love: A Mother’s Bleeding Love

February 11, 2015

A mother鈥檚 love is constant and unending.聽 As mothers, we love each of our children unconditionally. Just because I have one son with a bleeding disorder and another one without, doesn鈥檛 result in any more or less love for either of my boys.聽 However, I do think having a son with a serious medical condition […]

Infusing Love: Discipline, Divorce, & Dating

February 4, 2015

Oh February, the month of love for those who have someone, or the month of single awareness for those who don鈥檛.聽 I fall into the single category. I鈥檝e been reevaluating some things as to why I am single; reviewing the lessons I鈥檝e learned of being a single mom of a child with hemophilia. I鈥檓 45 […]

Infusing Love: Prepare for the Unexpected

January 28, 2015

I love reading my horoscope. 聽A recent one read, 鈥淐ome to grips today with financial issues that need your attention. Pay bills, go over accounts, and definitely make a budget.鈥 For those of us living with bleeding disorders, that budget should include paying medical bills you hadn鈥檛 bargained for. It鈥檚 important to be prepared for […]

Infusing Love: Do I Get Used to It?

January 21, 2015

I鈥檝e seen a recurring question in the bleeding disorders community a lot in the past few weeks:, 鈥淲ill I ever get used to sticking/poking my kid?鈥 The answer is yes and no. Think about it — there is nothing normal about sticking your child with an IV needle or accessing their port to infuse them […]

Infusing Love: Celebrations & A Heavy Heart

January 14, 2015

My son Caeleb has struggled with an inhibitor since he was 11 months old. Despite many doctors鈥 recommendations, it’s never been as “simple” as waiting to get below a 10 Bethesda Unit measurement to start immune tolerance therapy (ITT).聽 He developed a rare allergy to factor VIII and there is no known treatment or protocol […]

Infusing Love: Hemophilia is the Easy Part

January 7, 2015

鈥淗emophilia is the easy part.鈥 I realized that both my son and I have said this recently.聽 There are many physical and emotional issues that we both face stemming from Max鈥檚 hemophilia, but the actual condition is not one of them. I鈥檒l say it again: 鈥淗emophilia is the easy part.鈥 I鈥檓 not even sure when […]

Infusing Love: I Get By With Help From My Friends

December 31, 2014

              I am a true believer in the saying, 鈥渒nowledge is power.鈥 However, I also believe that the knowledge you attain must come from the correct source and at the right time. I have learned that this is even more true when it comes to hemophilia and motherhood. It […]

Infusing Love: What We’re Truly Thankful For

December 24, 2014

Late this September, during the HFA Gears for Good Charity Bike Ride, I had one of those conversations in life you remember forever. It was with my son鈥檚 best friend, Aidan. About three years ago in elementary school, Benny, our now 12 year old with severe hemophilia, befriended a classmate who had just moved to […]

Infusing Love: Anything is Possible

December 17, 2014

His name was Adam. And when I met him, I let out a huge sigh of relief. He was rather good-looking, and he seemed smart, strong, capable and perhaps most importantly, healthy. (Before you jump to any conclusions, this wasn鈥檛 a blind date.) My friend Carrie had introduced me to Adam. They shared a ski […]

Infusing Love: We Are Stronger Together

December 10, 2014

In March 2014 I attended my first HFA conference, and for the first time in my new journey as a hemophilia mother I didn鈥檛 feel alone and left truly inspired.聽 Beyond encouragement, I also received education which helped me to accept my own diagnosis of hemophilia. For example, I met Julie, who told me about […]

Infusing Love: A Community’s Legacy

December 3, 2014

[glossary_exclude] This past Monday marked the 26th annual World AIDS Day.聽 James W. Bunn and Thomas Netter, two public information officers for the Global Programme on AIDS at the World Health Organization, conceived World AIDS Day in 1987. Since then, messages and proclamations that raise awareness and call for action for an AIDS-free generation are […]

Infusing Love: Gratitude List

November 26, 2014

What are you grateful for? If you鈥檙e like me, it varies somewhat day-to-day. We all probably have a standard 鈥渟et鈥 of items we鈥檙e grateful for 鈥 our family, friends, jobs, etc. But outside of those 鈥 it really can vary from one day to the next. Some days I鈥檓 grateful for my dog 鈥 he […]

Infusing Love: From One Mom to Another

November 19, 2014

My non-hemophilia mom friends have often say to me, 鈥淚 just don’t know how you do it. I just can’t imagine raising a child with hemophilia.鈥 I normally reply with, “my son with hemophilia is my baby, and I’ll do anything for him.” Earlier this summer, this very conversation played out between myself and HFA […]

Infusing Love: Finding Time for Me

November 12, 2014

Often times I am talking with other moms and the conversation comes up about how tired we are or how we find it difficult to make time for ourselves. As caregivers, we are constantly doing for others. We are making meals, help with homework, running errands, or being a taxi for our kids. Being a […]

Infusing Love: Following My Own Example

November 5, 2014

As hemo moms, we are the best when teaching others about self-care, but can be the worst at taking care of ourselves. Quick question — When was your child鈥檚 last doctor鈥檚 appointment and when is the next one scheduled? Now ask those same two questions of yourself. For most of us, we can鈥檛 quickly answer […]


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