Hemophilia Federation of America is a national nonprofit organization that assists, educates and advocates for the bleeding disorders community.
This blog is translated in English below. Este pasado dÃa de las madres celebrÃ© mi aÃ±o nÃºmero 23 de ser madre. Â¡No sÃ© ni como esto pasÃ³ tan rÃ¡pido! En una pestaÃ±ar de ojos mis hijas han crecido y se han independizado, pero soy una mamÃ¡ muy feliz. Criar a hijas involucra mucho tiempo […]
For some of us hemophilia Moms we went through the time where we had to hold down our son to give him his factor or buy out the dollar store for him to be rewarded for his cooperation! Finally, we get to the point when holding down or rewards are no longer part of […]
The following is a press release from Sanofi Genzyme. Find the full press release here. Sanofi Genzyme, the specialty care business unit of Sanofi, announced the launch of a first-of-its-kind audio adventure series designed to provide an engaging and educational infusion experience for ALPROLIXÂ® [Coagulation Factor IX (Recombinant), Fc Fusion Protein] patients and their caregivers. […]
FEATURED STORY What to Watch in the States in 2019 â€“ State Medicaid Trends Legislative sessions have begun in all but four states (Alabama, Florida, Louisiana and Nevada begin sessions in the months ahead).Â As lawmakers begin to tackle the numerous issues they need to address in the coming months, letâ€™s look at what to […]
Even if youâ€™ve been feeling okay, the end of the year can bring mental health challenges for anyone of any age.Â Itâ€™s no coincidence that in much of the United States the winter months can be some of the darkest, longest and coldest. The way many people cope is to celebrate the traditions of […]
Dear Addy, I watched a few of HFAâ€™s PRIDE Project webinars. Can you explain to me how engaging in research will make me a better advocate? Signed, Curious about Research Dear Curious, Itâ€™s great to hear that you watched some of the PRIDE Project webinars, as those webinars provide an introduction to and basic training […]
!Mes Nacional de la Herencia Hispana!Â PublicaciÃ³n de la semana cuatro Alguna vez se ha preguntado como sabe su doctor que el medicamento que le estÃ¡ recentando es efectivo y adecuado para tratar su condiciÃ³nâ€¦ A travÃ©s de la investigaciÃ³n se informan decisiones sobre medicamentos, asÃ como otras preguntas sobre la eficacia, seguridad e idoneidad de […]
Featured Stories: HFA, along with other patient groups, continues to argue against restrictive Medicaid eligibility policies. HFA has written before about a new federal policy that allows states to cut off Medicaid coverage for adults who donâ€™t meet state work requirements. The US Centers for Medicare and Medicaid Services has so far approved work requirements […]
Dear Addy, I saw a post on HFAâ€™s Facebook page about a Virtual Hill Day on June 12. Can you tell me more about this and how people outside of D.C. can be involved? Signed, Virtual Visitor Dear Visitor, Every year, HFA hosts a fly-in for members of the bleeding disorders community to come to […]
Every year at Symposium, there is some special moment that defines that yearâ€™s event for me. As we kick off our 2018 event tomorrow, Iâ€™m reflecting back on my favorite memories from the last five years of Symposium: 2013: Frisco, TX (I actually have two favorite memories from this year.) Â This picture encapsulates our […]
Dear Addy, Iâ€™ve heard writing an op-ed for my local newspaper is a good way to spread awareness about bleeding disorders. Iâ€™d like to submit a piece during Bleeding Disorders Awareness Month. Can you offer tips for submitting my story? Signed, Ready-to-Write Dear Writer, Writing an op-ed or opinion piece is a great way to […]
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