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Infusing Love: ¡Me logré encontrar a mí misma!

May 29, 2019

  This blog is translated in English below. Este pasado día de las madres celebré mi año número 23 de ser madre. ¡No sé ni como esto pasó tan rápido! En una pestañar de ojos mis hijas han crecido y se han independizado, pero soy una mamá muy feliz. Criar a hijas involucra mucho tiempo […]

Infusing Love: Letting Him Do It His Way

April 24, 2019

  For some of us hemophilia Moms we went through the time where we had to hold down our son to give him his factor or buy out the dollar store for him to be rewarded for his cooperation! Finally, we get to the point when holding down or rewards are no longer part of […]

Sanofi Genzyme Launches Innovative and Educational Audio Adventure Series for People Treated with ALPROLIX®

March 15, 2019

The following is a press release from Sanofi Genzyme. Find the full press release here. Sanofi Genzyme, the specialty care business unit of Sanofi, announced the launch of a first-of-its-kind audio adventure series designed to provide an engaging and educational infusion experience for ALPROLIX® [Coagulation Factor IX (Recombinant), Fc Fusion Protein] patients and their caregivers. […]

Washington Wire: January 2019

January 31, 2019

FEATURED STORY What to Watch in the States in 2019 – State Medicaid Trends Legislative sessions have begun in all but four states (Alabama, Florida, Louisiana and Nevada begin sessions in the months ahead).  As lawmakers begin to tackle the numerous issues they need to address in the coming months, let’s look at what to […]

Mental Health Awareness Campaign: Difficult Holidays and Year End

December 27, 2018

  Even if you’ve been feeling okay, the end of the year can bring mental health challenges for anyone of any age.  It’s no coincidence that in much of the United States the winter months can be some of the darkest, longest and coldest. The way many people cope is to celebrate the traditions of […]

Dear Addy: Engaging in Research

October 1, 2018

Dear Addy, I watched a few of HFA’s PRIDE Project webinars. Can you explain to me how engaging in research will make me a better advocate? Signed, Curious about Research Dear Curious, It’s great to hear that you watched some of the PRIDE Project webinars, as those webinars provide an introduction to and basic training […]

!Mes nacional de la Herencia Hispana! 2018

September 13, 2018

!Mes Nacional de la Herencia Hispana! Publicación de la semana cuatro Alguna vez se ha preguntado como sabe su doctor que el medicamento que le está recentando es efectivo y adecuado para tratar su condición… A través de la investigación se informan decisiones sobre medicamentos, así como otras preguntas sobre la eficacia, seguridad e idoneidad de […]

Washington Wire: August 2018

August 31, 2018

Featured Stories: HFA, along with other patient groups, continues to argue against restrictive Medicaid eligibility policies. HFA has written before about a new federal policy that allows states to cut off Medicaid coverage for adults who don’t meet state work requirements. The US Centers for Medicare and Medicaid Services has so far approved work requirements […]

Dear Addy: Virtual Hill Day

June 11, 2018

Dear Addy, I saw a post on HFA’s Facebook page about a Virtual Hill Day on June 12. Can you tell me more about this and how people outside of D.C. can be involved? Signed, Virtual Visitor Dear Visitor, Every year, HFA hosts a fly-in for members of the bleeding disorders community to come to […]

Infusing Love: Your Spark Is My Why

April 25, 2018

Every year at Symposium, there is some special moment that defines that year’s event for me. As we kick off our 2018 event tomorrow, I’m reflecting back on my favorite memories from the last five years of Symposium: 2013: Frisco, TX (I actually have two favorite memories from this year.)   This picture encapsulates our […]

Dear Addy: Op-ed

March 22, 2018

Dear Addy, I’ve heard writing an op-ed for my local newspaper is a good way to spread awareness about bleeding disorders. I’d like to submit a piece during Bleeding Disorders Awareness Month. Can you offer tips for submitting my story? Signed, Ready-to-Write Dear Writer, Writing an op-ed or opinion piece is a great way to […]

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February 23, 2017

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