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Washington Wire: January 2019

January 31, 2019

FEATURED STORY What to Watch in the States in 2019 鈥 State Medicaid Trends Legislative sessions have begun in all but four states (Alabama, Florida, Louisiana and Nevada begin sessions in the months ahead).聽 As lawmakers begin to tackle the numerous issues they need to address in the coming months, let鈥檚 look at what to […]

Mental Health Awareness Campaign: Difficult Holidays and Year End

December 27, 2018

  Even if you鈥檝e been feeling okay, the end of the year can bring mental health challenges for anyone of any age.聽 It鈥檚 no coincidence that in much of the United States the winter months can be some of the darkest, longest and coldest. The way many people cope is to celebrate the traditions of […]

Dear Addy: Engaging in Research

October 1, 2018

Dear Addy, I watched a few of HFA鈥檚 PRIDE Project webinars. Can you explain to me how engaging in research will make me a better advocate? Signed, Curious about Research Dear Curious, It鈥檚 great to hear that you watched some of the PRIDE Project webinars, as those webinars provide an introduction to and basic training […]

!Mes nacional de la Herencia Hispana! 2018

September 13, 2018

!Mes Nacional de la Herencia Hispana!聽Publicaci贸n de la semana cuatro Alguna vez se ha preguntado como sabe su doctor que el medicamento que le est谩 recentando es efectivo y adecuado para tratar su condici贸n鈥 A trav茅s de la investigaci贸n se informan decisiones sobre medicamentos, as铆 como otras preguntas sobre la eficacia, seguridad e idoneidad de […]

2018 Gears for Good Itinerary

September 7, 2018

The 2018 Gears for Good Ride takes place Sept. 21-23 from West Virginia to Washington, D.C. Here’s your itinerary for the ride!      

Washington Wire: August 2018

August 31, 2018

Featured Stories: HFA, along with other patient groups, continues to argue against restrictive Medicaid eligibility policies. HFA has written before about a new federal policy that allows states to cut off Medicaid coverage for adults who don鈥檛 meet state work requirements. The US Centers for Medicare and Medicaid Services has so far approved work requirements […]

Dear Addy: Virtual Hill Day

June 11, 2018

Dear Addy, I saw a post on HFA鈥檚 Facebook page about a Virtual Hill Day on June 12. Can you tell me more about this and how people outside of D.C. can be involved? Signed, Virtual Visitor Dear Visitor, Every year, HFA hosts a fly-in for members of the bleeding disorders community to come to […]

Infusing Love: Your Spark Is My Why

April 25, 2018

Every year at Symposium, there is some special moment that defines that year鈥檚 event for me. As we kick off our 2018 event tomorrow, I鈥檓 reflecting back on my favorite memories from the last five years of Symposium: 2013: Frisco, TX (I actually have two favorite memories from this year.) 聽 This picture encapsulates our […]

Dear Addy: Op-ed

March 22, 2018

Dear Addy, I鈥檝e heard writing an op-ed for my local newspaper is a good way to spread awareness about bleeding disorders. I鈥檇 like to submit a piece during Bleeding Disorders Awareness Month. Can you offer tips for submitting my story? Signed, Ready-to-Write Dear Writer, Writing an op-ed or opinion piece is a great way to […]

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February 23, 2017

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