Hemophilia Federation of America is a national nonprofit organization that assists, educates and advocates for the bleeding disorders community.
We’re excited to announce Hemophilia Federation of America President and CEO, Sharon Meyers, will be a presenter in an upcoming webinar with the National Organization for Rare Disorders. Fundraising is one of the top priorities of our member organizations, and as such, we are bringing expert speakers to discuss guidelines for relationship building and engaging […]
Attached are two handouts (pdf) that compliment HFA Families webinar on August 12, 2014. Click on each image to open and download the document.
Since 1988, December 1st has been observed as World AIDS Day. The World Health Organization designated this day to ensure renewed and ongoing attention to the threat posed by HIV/AIDS. It is estimated by Centers for Disease and Control (CDC) that over 1 million people in the United States are currently living with HIV. Hemophilia […]
This is a recorded presentation by Diane Horbacz from a November 2012 Dads in Action webinar. 聽(Currently undergoing an update) 聽
Joby Robinson, PhD, spoke at an August 2013 Dads in Action webinar. 聽This recording is the webinar in its entirety and includes information about everything you ever needed to know about the federal laws that protect children with bleeding disorders in the school setting: The Individuals with Disabilities Education Act (IDEA), Individualized Health Care Plans, […]
These are the slides from an August 2011 webinar presented by Janet Brewer. In the slides, you will find information on the federal & state laws that provide educational services to children with disabilities, the qualification criteria and the process to develop an appropriate plan, your rights and responsibilities and specific accommodations that may be […]
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