Hemophilia Federation of America is a national nonprofit organization that assists, educates and advocates for the bleeding disorders community.
Bullying has no shame. It shows no prejudice. Bullying affects anyone of any size, age, and ethnicity. It affects all of us. When I watch grown people intentionally hurt each other with words and actions, it always surprises me. One day I asked a young lady why she was making fun of her coworker. […]
Dear Addy, My eleven-year-old son recently shared that he’s being bullied at school because of bruising caused by his bleeding disorder. How can I help him educate his classmates about hemophilia and prevent future bullying? As much as I want to protect my son, I also know that I need to empower him to […]
Children with special health needs such as a bleeding disorder can be at an increased risk of being bullied because of issues like physical vulnerability, social skill challenges, and intolerant environments. Kids with hemophilia may become a target when they use crutches, are limited to certain activities during recess/gym classes, have a visible PICC line/port, or […]
Thomas’s first day of third grade was spent in a wheelchair, thanks to an ankle bleed. It certainly wasn’t the first time he had to attend school in the ‘chair,’ but I hated that it had to fall on the first day of school. We’ve always been very open about hemophilia – in first grade […]
When we send our children off to school, we trust that they will be in the good hands of school staff to keep them safe – both physically and emotionally. But what happens in the hallways at the lockers or on the playground at recess, when school staff is out of sight or not around […]
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999 N Capitol Street NE Suite 301
Washington, D.C. 20002
Phone: 202.675.6984
Fax: 202.675.6983
Email: info@hemophiliafed.org
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