Hemophilia Federation of America is a national nonprofit organization that assists, educates and advocates for the bleeding disorders community.
Late this September, during the HFA Gears for Good Charity Bike Ride, I had one of those conversations in life you remember forever. It was with my son’s best friend, Aidan. About three years ago in elementary school, Benny, our now 12 year old with severe hemophilia, befriended a classmate who had just moved to […]
We very nearly spent Christmas in the hospital last year, when Thomas developed a port infection the week before. If you think December is a crazy time of year, try adding in a long hospital stay – you quickly realize how much you aren’t getting done while you sit by your kid’s bedside. I had […]
“Mom, can I have a Cool Tools Tow Truck?” This was the question Max asked me when he was 4 years old and Cool Tools were THE gift of the year. Like so many of us, I had good intentions, but work, bleeds, motherhood, more bleeds, and life kept me super busy. As Christmas approached […]
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