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Dear Addy: Learning Central

December 10, 2018

Dear Addy, I鈥檝e heard about HFA鈥檚 new Learning Central, but I鈥檓 not sure how to find it and the benefits of using it. Can you provide more information? Signed, Lifelong Learner Dear Learner, HFA鈥檚 Learning Central is part of the HFA Institute, a new e-learning initiative designed for the bleeding disorders community. The HFA Institute […]

Dear Addy: Symposium

April 16, 2018

Dear Addy, I鈥檓 attending HFA鈥檚 Symposium next week and I鈥檇 like to gather information about personal and legislative advocacy to bring back to my community. What sessions do you recommend I attend? Signed, Planning Ahead Dear Planner, It鈥檚 great to hear you will be attending Symposium in Cleveland! This year, we have expanded our advocacy […]

Infusing Love: An A+ for Educating the Educator

August 26, 2015

Like all parents, I spend a few hours each August filling out back to school paperwork. It鈥檚 a tedious task. Once I finish all the required forms: emergency contact, acceptable technology use, and parent-teacher organization forms, I begin tackling the hemophilia forms. I update Thomas鈥檚 Individual Health Plan (IHP), and his 鈥淢y Bleeding Disorder鈥 document […]

Infusing Love: Gateway to Understanding

March 25, 2015

  For someone who spends her days organizing events for a living, it always surprises me how much I look forward to the HFA Symposium each year. It has a similar structure to many of the events I plan 鈥 with plenary sessions, workshops, exhibits, and networking events 鈥 yet it feels completely different. Yes, […]

Reid Coleman, A Committed Advocate

March 19, 2011

Reid talks about growing up with hemophilia and the importance of education, self advocacy and social media advocacy.


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